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Member Since 26 Mar 2007
Offline Last Active Oct 10 2011 04:56 PM

Topics I've Started

Piazza Sorrento

23 October 2008 - 05:27 PM

Just wanted to let everyone know that Piazza Sorrento is open in Hershey and has Gluten free pizza! I have had it 3 times, and only fell icky afterwards once, and that may have been the starbucks i had that sometimes does do it to me.


Go Eat Pizza... Be Merry!

Update And Venting

29 May 2008 - 07:31 PM

Hey all, I've been away for a while. Life has been crazy I went on a cruise earlier this month (didn't get glutened once... Yes Carnival Cruises are safe! )

Now I'm back and back to doctors in force. I went to my GP and she ran alot of tests. I am low on folic acid, and what I concider low on B12 (will be calling her about that tomorrow). My Celiac tests came back negitive so I'm adhering to the diet! (Gold star for me!)

However she sent me to a Gastro and a Derm. The Gastro is worried about my continued D even though I am on the diet and testing "clean" for gluten. I have to have a colonosopy on Wednesday :( She is testing me for some sort of colitis that is common in people with auto immune diseases. Bah! She is not doing a endoscopy and or making me do a gluten challenge... thank god!

The Dermatologst was looking into my hair loss, but now he is worried about Vitamin C deficency due to hair loss and rough skin.

So as my doctor ruled out celiac, seems like the specialists are finding ways to blame it on celiac 14 months after I stopped eating gluten.

I just sort of feel frustrated, I say "celiac disease" and they blame that for all my problems. I'm really feeling as if none of them are really looking outside of the Celiac box.

I really am much more than a "Celiac Pacient"!!

Oh, today the Derm asked what sort of medications I was taking for Celiac Disease... i almost laughed until I realized he was prolly a med student and it's not nice to laugh at med students as they are really just learning.

Ok that's the end of rant.. i welcome comments and ideas!

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