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T-Bird

Member Since 14 Apr 2007
Offline Last Active May 07 2007 06:26 PM
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Posts I've Made

In Topic: How Does Oranges Affect You?

29 April 2007 - 06:47 PM

When you are feeling bad enough to drive to the Er, go in. Your husband felt that he needed medical attention, but did not have a good reason to go in and take up a spot in the system. I felt that way when I first went in before my diagnosis. I came back two hours later unconscious- and nearly dead from dehydration, hypokalemia (low potassium), low salt, a heart rate of 250, and extremely thick blood. My body was giving up the first time I went in, and I felt that a stomach ache, a week of the dreaded "D" and a funny feeling in my chest were not a good reason to keep JR with a broken wrist from going in. Turns out, my condition was much more life threatening than anyone else in the room- in a New Orleans hospital. They immediately put me on fluids, potassium, and a monitor, then moved me to ICU. I stayed there 2 weeks with no food before I found out what was wrong. Celiac was a near-death situation for me.

Turns out, the condition was made critical by orange juice I used to treat my "Hypoglycemia" I do not have. The oranges upset ulcers in my stomach and small intestine caused by Celiac, which caused massive stomach trouble and stress on my immune system. The Celiac also caused interstitial cystitis in my bladder, and the oranges were acidic enough to set off bleeding, which allowed a infection to set in and back up to my kidneys, which are already 50% scar tissue, and that caused kidney failure, which thankfully reversed itself with enough fluids. My heart rate slowed with no permanent damage with potassium, and my consciousness returned with the addition of iron, salts, and more potassium. The regular amount of potassium in the blood is 4-6, my amount on entering the ICU was .58.

If oranges caused significant upset to make your husband think he should see a doctor, make an appointment ASAP, or go back to the ER. Celiac is a life threatening illness, and he very well may have ulcers. He needs to see his GI doc within a few days, and ask for a new endoscopy to check for ulcers. With treatment, they are barely noticeable. Without treatment, they can be very dangerous and cause internal bleeding and infection. They can be caused by H. Pylori, a common bacterial infection, as well, so even if the gluten free diet has been followed to a T, get it checked out. A week on antibiotics could save much worse troubles. Hope he feels better soon!


Thank you for the information, he feels much better and has said he'd let me make any kind of doctors appt. I wish to, just so he doesn't have to feel like that again. I'll start calling tomorrow to find a GI/stomach doctor. Hopefully the dr. will know about all the things you have mentioned.

Sincerely,
Tabatha

In Topic: How Does Oranges Affect You?

29 April 2007 - 02:09 PM

T-Bird, I hope that you husband is feeling better.

I just had a recent glutening and I usually do not get the sharp pain associated with gluten, but I did this time.

I took Pepsid Maximun Strength. I wrote the company and found that Pepsid-Reguar Tablets and Pepsid-Regular Complete Tablets are gluten free.....No mention of Pepsid Max Strength.

Just thought that I would pass that on.

Prilosec generally works well for me.

Momma Goose, thanks for your concern and input. He is sleeping right know, which I guess celiacs do often when they've been glutened. I worry about him and get frustrated at the same time. I take it very serious when he gets glutened because I'm the one feeding him, and ofcourse I don't want to see him suffer. I joke with him all the time that he's at my mercy and I could poison him at anytime:) I joke about it but I do know how serious this is to all of you. I can relate to the wife who spoke of the many different moods her husband has when he is not well. My husband can't be the loving dad and husband we know when he is ill, so I make sure to pay special attention to all things going in him, including my lotion:). He has suffered for most of his life that he can remember and we just found out about celiac and gluten in March of this year.

Hey, do you know of a good bread recipe? I think I'd like to buy a bread maker and make him some "normal" bread.

In Topic: How Does Oranges Affect You?

29 April 2007 - 01:31 PM

Had to take my husband to the ER this afternoon, we didn't go in thought! He said he'd feel so dumb going in with all those people who could really be in need of ER help and all he had was bad stomach pain. So we sat in the car and waited for the pain to subside. Well it subsided and he's in bed sleeping now. He said it wasn't the same pain as when he has been glutened. He couldn't compare it to anything except for when he had kidney stones maybe. It all started with that darn orange he ate Thursday night. He said the fire in his stomach was in one spot, a very bad. Well today is Sunday, he woke up with the burn and it just got worse. Enought to bring him to his knees and freaked me out enough to say lets go to the ER! He has taken rolaids and pepcid and no help. I picked him up some activated charcoal tablets and he took one and ate lite lunch and says he feels about 80% better. We are only 2 months into the gluten-free world and all these different stomach pains are confusing for me and painful for him. I'm just glad I can ask you guys/gals. I want to take him to a stomach doctor just to have everything checked out. How would I find out if we had a doctor that new enough about gluten-free or celiac?

In Topic: How Does Oranges Affect You?

26 April 2007 - 08:04 PM

I always heard that Tums had gluten? :blink: I just looked up their website FAQ http://www.tums.com/..._contents.asp#4 and this what it says -

Does TUMSŪ contain gluten?

Although we do not use gluten as a filler in TUMSŪ, there may be trace amounts of gluten in the tablets via ingredients that are supplied by outside vendors.

Not sure about the Rolaids. I wasn't able to find any information. Maybe someone has some info or experience.

When I first went gluten-free, I had problems with all sorts of food. I still can't eat more that a couple pieces of apple at a time. It's still hard for me to digest. So even the most benign sounding foods can cause problems for a while.

Nancyc


We don't have Tums in the house, but he has rolaids. I'd suggest it to him, but I just went to check on him and he is asleep, which is good, I kinda think he is not suffering if he's sleeping. Thanks so much for response. Everyone here is so giving of there time and aknowledge.

Thanks, Tabatha

In Topic: How Does Oranges Affect You?

26 April 2007 - 07:24 PM

[quote name='larry mac' date='Apr 26 2007, 10:06 PM' post='295690']
tb,

Pepto-Bismol always made my stomach hurt, even when I was a little kid. I would recommend Tums or something similar.

May sound like a dumb question, but why did he eat an orange if he's never been able to eat oranges?


When he asked "can I have oranges", I was thinking they are fruit and shouldn't have gluten in them so yes you can have oranges. He probably thought, why would they hurt my tummy since gluten was the problem for the years.

Can he take rolaids instead of tums? Also, can he take rolaids after the pepto?

Sincerely,
Tabatha