I have been dealing with abdominal pain since Last February. I have had my gallbladder removed, several ERCPs which resulted in my bilary duct being opened. I was okay but never better for a few months and by December of 2006 was in immense pain all over. My GI decided to do another ERCP and opened up my pancreatic duct this time. Resulting in pancreatitis and a 1 week hospital stay. I was and still am in pain worse than before. My Celiac tests came back normal several times so my GI dismissed it. REcently I switched GIs who is ordered other Gastric tests but meanwhile my other covering Internist (who I also work for) put me on a gluten free diet and told me that even though the blood tests were negative/normal doesn't mean I am not gluten sensitive. This was last Thursday- I started the diet on Saturday and just find it hard as I am a carb lover and have a husband and 2 children to cook for. We live a busy live and I am trying my best to adjust. My daughter is only 3 and doesn't understand why I can't eat what they do. I have stuggled with eating disorders in the past growing up and worry that my mindset will go back there again while changing my eating habits. So far I am still in pain but have lost 2.5 lbs since Saturday so I am happy about that but find everything so overwhelming and so much stuff not clearly labeled. I stumbled upon this site over the weekend while I was searching for more info and decided to join today. I really hope this solves my problem but know it may not. Is it bad that I hope this is the problem. I could use as much advice as possible as no one I know deals with it. I also have found information about it being a "family" thing also and wonder if it could be what my sister has and not IBS as well as my mom. The one thing I have noticed is I can eat dairy and not get an upset stomach since I have cut out the gluten. Trust me one icecream used to send me running within an hour so that was a nice to know. Sorry for rambling.
As everyone has said you will find a bevy of information and support here.
Info from Lame Advertisement on Celiac Disease (Gluten-Free)
* Because malabsorption is prevalent with celiac disease, daily vitamin and mineral supplementation is essential. Important supplements for celiac disease include iron, B vitamins, magnesium, calcium and vitamin D.
* Add organic extra virgin coconut oil to your diet to benefit from healthy plant-based saturated fat.
* Add foods rich in omega-3 essential fatty acids to your diet in the form of ground flax meal, wild-caught salmon, minimal-mercury albacore tuna, walnuts, fish oil, and sprouted walnuts.
* Eat plenty of vegetables and vegetable juices (kelp, sprouts, green and black olives, peppers, spinach, chard, celery, zucchini).
* Add nutrient-dense and unprocessed foods such as sprouted nuts and seeds to your diet.
* Drink purified water throughout the day.
Foods and other products to AVOID include:
* All foods that contain gluten in the form of wheat, rye, barley, and oats.
* All processed foods that contain gluten as an ingredient. Read all processed food labels carefully for hidden gluten. Foods that may contain gluten include canned soups, salad dressings, ice cream, candy bars, instant coffee, luncheon meats, ketchup, mustard, processed and canned meats, yogurt, and sausages.
* All supplements that contain gluten. Wheat starch can be used as a binding agent in tablets and capsules.
* Cosmetics. Gluten can be found in cosmetic products such as lipstick.
* All grain alcohols such as beer and malted liquors.
* All dairy products, since those with celiac disease also tend to suffer from lactose intolerance.
* All foods containing refined sugar or artificial sugar-substitutes such as aspartame, Splenda®, etc. Choose a natural sweetener like Xylosweet instead.
* Excessive caffeine intake – While moderate amounts of caffeine may be beneficial, excessive consumption of caffeine can disrupt the body’s systems, causing irregularity (constipation or diarrhea)
* Sweetened fruit juices that spike blood sugar levels too rapidly
* Carbonated soft drinks that alter pH levels, making the blood more acidic
* Bottom crawlers, such as oysters, clams, and lobster that may contain toxic levels of mercury
* Deep-sea fish such as tuna, mackerel, and swordfish that may contain toxic levels of mercury. Choose minimal-mercury albacore tuna instead.
* Sodium nitrite found in processed foods such as hot dogs, lunch meats, and bacon
* Monosodium glutamate (MSG) found in many foods as a flavor enhancer
* Hydrogenated or partially hydrogenated oils (trans fats) found in many processed foods, deep-fried foods, fast food, and junk food – Read more about good fats and bad fats.
* Products (such as soy milk and ice cream) that contain carrageenan, a seaweed extract that’s added to foods to retain their creamy texture. For some people, carrageenan irritates the stomach.
Other tips for Celiac Disease
* If you have “silver” dental fillings, get an evaluation from a mercury-free dentist who specializes in the safe removal of mercury amalgam fillings. Heavy metal toxicity may cause gastrointestinal symptoms. Find a mercury-free dentist in your area now!
* If you need help covering the costs of getting your "silver" fillings removed safely, the Lame Advertisement Foundation may be able to assist you. Read more about the Lame Advertisement Foundation.