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Member Since 17 Apr 2004
Offline Last Active Yesterday, 10:53 AM

#950141 Our Eloise In Uk For Organ Transplant This Pm

Posted by on 17 August 2015 - 02:03 AM

Eloise got out of surgery at about 6am Ireland time. They did the double lung and pancreas transplant. She did well and her color has returned to normal which is a good sign. She is of course still critical so do keep those prayers coming.

Please also do not forget to add prayers for the family of the little boy or girl who, even in their grief, thought of others and made the transplant possible. 

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#950114 Our Eloise In Uk For Organ Transplant This Pm

Posted by on 16 August 2015 - 10:11 AM

The moderation team and admin would like to let everyone know that this thread is an elaborate hoax and the person who started it has been banned. "Miss Eloise" was posing as multiple family members of someone with serious medical issues.  Miss Eloise was not being genuine and stole information and pictures from other websites.  We have learned that Miss Eloise has been using the same story on other websites to solicit money and gifts.  We would like to remind our members to please guard themselves on the internet and not give out personal or financial information freely.  Here are some links to internet safety information we recommend reading:
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Eloise has been taken by medical transport to the UK for the organ transplant that we pray will save her.

Her family is with her and this is very risky surgery but it is her only chance. We had the miracle that the organs became available, and God Bless the family that was kind enought to think of others in their time of loss. Now we need a miracle that she will survive the surgery and recover.

Keep praying folks as hard as you can.

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#948612 Some Ez Gluten Test Results And A Question

Posted by on 11 July 2015 - 12:57 AM

It looks like most of the positives were from supplements. Of course you have dropped those but if you are looking for safe ones do you live near a Wegmans? I take Wegmans supplements when I feel I need one. They have celiacs in their family and I have never had an issue with any of their products. That said if you can try and get as many of your nutrients from whole foods that is best. If you haven't already you may want to have your doctor run vitamin and mineral panels on you to see what you are low in. You never know you might be able to drop the supplements or fine tune them to just what you need. 

I haven't ever taken any of the prescribed acid blockers even in the beginning when I was still having stomach pain. I use Pepto Bismal liquid and it would help with just one dose. Don't know if that might be something you could try. Do make sure you go back to that pharmacist whenever you need a script for something. they know much more about the gluten statis of drugs than your doctor will and if something isn't safe they can call your doctor for a safe alternative.

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#948528 Neurological Problems Three Years Post Diag., gluten-free

Posted by on 09 July 2015 - 12:00 PM

Have you seen a physical therapist? I found that to be very helpful when my progress seemed to have stalled. If you haven't recently you may want to have your vitamin and mineral levels checked. I find magnesium to be helpful when I am dealing with a lot of cramping and for me supplementing with B12 seems to have helped with some of the nerve issues. 

In my own case, which may not apply for you, soy protein seems to cause a great deal of bone and muscle pain that got a great deal of relief when I dropped it.

It does take a long time to heal nerve issues and some of mine seem to be permanent but I have been gluten free much longer than you have. 

I hope you can get some more positive progress. 

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#947402 Mom Instinct For The Win: Deamidated Gliadin Igg

Posted by on 19 June 2015 - 03:01 PM

So the doctor wants to have her stay on gluten for another six months to see if your child will then be damaged enough that the results are higher so then the doc can do a scope. 

Has the doc suggested getting her gluten free and then retesting in six months to see if the results go down? Since you have one child diagnosed the chances of others in the family being celiac are fairly high. IMHO it makes more sense to go with gluten free then retesting to see if results have gone down since she is having symptoms. 

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#947200 I Haven't Forgotten You

Posted by on 16 June 2015 - 01:05 AM

Nice to hear you are feeling better and able to get out and enjoy some gardening. Good to hear the allergy treatments are helping. 

There is something about working in the garden that can be so theraputic. I wish I had more time to do so but work is physically demanding and leaves me too tired at the end of the day to do much other than eat and get ready for bed. Will keep my fingers crossed that the silos won't be an issue for you this year. 

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#947163 No Printed gluten-free Menu At Red Robin

Posted by on 15 June 2015 - 12:34 PM

I went to Red Robin today and had the first burger with fries that I haven't had to cook myself since I was diagnosed. I did think it a bit pricey but the burger was cooked the way I like it and even though well done was still nice and juicey. They did bring me the Ipad thing and since I have never used one of those the waiter had to show me how to use it but I liked that multiple allergens could be selected. It is definately someplace I will go to again.  The only thing that I would have liked to have seen is some gluten free deserts but since the burger filled me up well it wasn't a big deal. 

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#946901 Negativity?

Posted by on 10 June 2015 - 01:00 PM

I also get severe depression and negativity along with an increase in paranoia. The depression is so severe I get suicidal but fortunately that lifts within a day or so and I now know it is the gluten reaction so I can fight off the suicidal ideation. Off gluten I am even tempered, heck you would have to do a lot to even make me slightly angry and even though my life is very stressful because of financial and remaining physical issues I am for the most part happy. 

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#945712 More, Worse Symptoms,.... Depression Taking Hold.

Posted by on 16 May 2015 - 01:02 AM

It sounds like you are still getting glutened. You say you travel for your job what are you doing for food when you travel? Can you talk to HR and explain the situation or possibly take sick leave while you get this figured out?  If not can your doctors order a celiac panel for you and then get a blood draw done before or after work? That would at least give you a starting point for you and your doctor to start at. 

Sorry you are going through this. I am going through something similiar as far as the exhaustion on your days off is concerned. I call them 'lost days' and it can make things very difficult. Hope you get some answers soon. 

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#944688 Questions About Crumbs

Posted by on 26 April 2015 - 11:01 AM

This is a huge problem for me to figure out :(. At this time, I don't know what I'm going to do, but I'm grateful to get the facts here. I will research different types of feed and be sure about wearing the mask for now. Thanks.

Do look into other feed. You may be able to find some that is gluten free and that your horse will tolerate. Perhaps make a call to the horse's vet. He might have some feed suggestions. Also be careful when grooming. 

If no one else in your household can handle the feeding perhaps a neighbor, 4 H kid, or another horse owner might be willing and able to help out. Someone that loves horses might even do it in exchange for being able to ride one when they are done. If your horses will tolerate other riders. 

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#944627 Major <3 For Andalou Naturals

Posted by on 25 April 2015 - 09:57 AM

I never meant to post something that would cause a problem. I do not use their hair care after seeing that they run out so quick after the first time. As for the face cleaner I use triple checked that one and it's clear that I can see but I'm no chemist. Again if I caused a problem I apologize. I double checked my post and did not see any links I posted in regards of claims.

You are not the one that posted any claims.  I think the response from admin was in reference to post #2. Please don't be concerned you didn't cause any problems. 

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#944522 My Celiac Disease Is Causing Stressful Family Conflict

Posted by on 22 April 2015 - 11:51 AM

one of my best friends is now a co-owner of a restaurant.  i was like, YAY!!!  i'll finally have somewhere to eat out without worry!!!!  nope.  his business partner wants nothing to do with food allergy responsibility aka he's afraid if they tout something as gluten free/celiac safe that someone will sue them if they make a mistake.  'too much risk'  even though i can read their menu and most of it is completely and easily could be prepared gluten free (simple, fresh menu - steak, lobster, salads, etc nothing really fancy or intricate).  i even said i would go into the kitchen and supervise.  (i even offered to train the staff)   smh.....   <_<  it sure would be nice to go (anywhere) and not have to fingerprint every meal    :(

If it is not a big restaurant you could go in with that friend on a day when the co-owner wasn't there and talk to the chef. You could certainly have something like a steak and baked potato with no problems. All the chef would need is to cook it in a clean saute pan and not use gluten seasonings or sauces. Then when you go in just tell the waitress to tell the chef to give you an 'arlene special'. 

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#944494 Push For Diagnosis Or Just Wait?

Posted by on 22 April 2015 - 12:53 AM

OP- it sounds like your little one is responding very well to the diet. It is great news that she is recovering so quickly. If it was my child I would keep her gluten free. If you do decide to test later you will have to challenge but with the preschool years being so important for growth and development I think you are wise to continue with the diet for at least now. 

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#944493 Push For Diagnosis Or Just Wait?

Posted by on 22 April 2015 - 12:49 AM

Yes HLA it's the genetic test and if she comes out negative that roules out celiacs for ever, but is she's positive for dq2 or dq8 it's very likely she'll develop celiacs, so maybe go gluten free. 

While rare there are diagnosed celiacs without one of those 2 genes. Having one of the 2 genes does not make it "very likely" she will develop celiac many people carry the genes but never develop celiac. 

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#944182 Bumps In Throat?

Posted by on 17 April 2015 - 01:19 AM

Have you seen an ENT (ear, nose and throat) doctor? If not perhaps make an appointment with one. You also might consider seeing an allergist in case this is an environmental allergy unrelated to food. It sounds like it is making you miserable so I hope they find the cause soon. 

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