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ravenwoodglass

Member Since 17 Apr 2004
Offline Last Active Yesterday, 02:42 AM
*****

#633597 Gluten Free...and Stressed Out

Posted by on 21 August 2010 - 02:33 PM

I think a lot of us can sympathize with that. I cope by keeping a couple of things on hand that I can throw together real quick. I'll give you 2 of my favs and hopefully others will add to it.
Dinty Moore Beef Stew I add a handful of a green veggie, either peas or green beans when I heat it up and a gluten-free roll or bread and butter. Dinner done.
I keep a package of Kinnickinnick pizza shells in the freezer, a package of Hormel Pepperoni, pizza sauce and some cheese on hand at all times. The pizza shells come 4 to a package for about 9 bucks and are a good size for a personal pan pizza. If the rest of the family isn't gluten free you could fix one or two of those for the nongluten eaters and let the rest of the family 'order in'.
I know it's not the same as going to grab something but at least it isn't hours at the stove.
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#633595 Spot The Gluten

Posted by on 21 August 2010 - 01:46 PM

I'm mystified as to what I'm reacting to in this gluten-free biscuit recipe I'm making. All utensils are gluten-free, never seen wheat before, and all ingredients *should* also be gluten free. However every time I eat one I get a sore stomach and feel a bit glutened, and I want to get to the root cause. I don't want to never be able to eat gluten-free biscuits again :(


Gluten-free flour mix made by "Nature's Choice" (A South African health food company that makes a large range of gluten-free food).
- This contains Rice flour, Tapioca Starch, Corn Starch, Potato Starch, Nature's choice Healthy Baking Powder, Xanthan Gum.
- I've had this in my nice rice biscuits and in corn bread, and both times have reacted to the item :(

Thoughts/comments?


Since you have reacted to other items that you have made with this flour mix I would find a different mix.
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#633586 Can Anyone Help?

Posted by on 21 August 2010 - 11:54 AM

You do sound like your in the right place. Before you spend your money on the biocard call your doctor and make sure they have tested you for celiac. If they haven't then ask them to give you the complete celiac panel.
You can try the diet to see if it helps but do wait to try until after all your testing is done or you will have a false negative. Sometimes there can be false negatives even when on a full gluten diet so do give the diet a try after testing no matter what the test results.
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#633576 Where Do I Find Gluten Free Toothpaste?

Posted by on 21 August 2010 - 11:12 AM

Hi everyone! I'm new here. Please tell me where to look for gluten free toothpaste, mouthwash, lotion, shampoo and conditioners,soap, and makeup? Also, what about laundry detergent? And fabric softener?

Thank you so much!


I use Tom's of Maine toothpaste and when I use mouthwash I get one that is alcohol free. Arm and Hammer Free and Clear is my choice for detergent and fabric softener. For skin and hair care I like the Garneir line, they will clearly label gluten ingredients. Dove and Suave are also good about labeling.
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#633493 Shampoo And Conditioner

Posted by on 21 August 2010 - 03:01 AM

The bottom line is that you have to ingest a certain amount of gluten for a reaction to occur and it was somewhere around a 1/4 of a teaspoon.


Then why do we have to injest 4 slices of bread a day for a period 2 to 3 months to have even a remote chance of accurate blood test or biopsy? With your thinking couldn't we just eat a 1/4 teaspoon before testing?
What about those of us who react to CC from just a crumb in butter? If at least 1/4 teaspoon is needed to be injested why do medical professionals tell us to have our own toaster and not to share condiments?
You do what you feel is safe for you. I'm happy for you that you have such great blood work. I had great blood work also. Over and over again as my children watched me die.
There is an excellent way to tell if we are getting gluten that is IMHO even more reliable than the blood tests and that is our bodies reaction. IMHO that is the best test and those of us who do react to small amounts are in misery when we do. Will we get a positive on a blood test taken after a small amount of CC, of course not, that is why we have to challenge for months for those tests to have a chance of being accurate.
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#633437 Modified Corn Starch

Posted by on 20 August 2010 - 05:53 PM

Modified corn starch is gluten free however you can get just as much benefit from the probiotic action of a yogurt with many less added ingredients. Yoplait yogurt is for sure gluten free and will give you the same benefits. In general I tend to go for stuff with less 'iffy' ingredients and ingredient lists with the least amount of additives.
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#633392 *sigh* Went To The Gi, More Confused Than Ever

Posted by on 20 August 2010 - 01:56 PM

Why isn't she doing an endoscopy at the same time as the colonoscopy? Sounds like she doesn't even want to consider celiac in my opinion.
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#633322 Had Appt With Gi Dr Today And Confused About Something He Said

Posted by on 20 August 2010 - 08:55 AM

While we are born with the genetic predisposition to develop celiac it can hit at any age. Usually there is a triggering event, in women that can be childbirth it can also be a severe emotional, physical stress or an illness. Some of us with the genes never develop it. Since you have been symptomatic for a year chances are that you developed it a year ago. Try not to worry too much, stay on gluten until after your endo is done and then as soon as the test is finished start on the diet. You don't need to wait for the results to begin. You can use the time before the endo to learn what you need to learn about the lifestyle and what you need to do to keep yourself safe. Do also encourage other family members to be tested.
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#633266 My Neuropathic Pain Has Disappeared!

Posted by on 20 August 2010 - 03:14 AM

Great News!!!! It's amazing how much pain can go away after we get diagnosed.
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#633075 New To The Forum And To Coeliac Disease

Posted by on 19 August 2010 - 11:19 AM

Welcome to the board and the gluten free family. If there is anything we can do to help with your transition to the gluten-free lifestyle feel free to post a question. It can be tough at first and many of us have ups and downs so do feel free to vent if you need to.
I hope you are feeling much better soon.
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#633068 Do Any Of You Wear A Med Bracelet?

Posted by on 19 August 2010 - 11:03 AM

I have one on my car key chain that lists celiac and another that states that I have a penicillin allergy.
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#633064 How Long Do I Need To Torture Myself With Gluten Before My Blood Test?

Posted by on 19 August 2010 - 10:55 AM

4 slices of bread a day for 2 to 3 months. Even then you may have a false negative. If the blood work is positive the doctor may want you to continue on gluten to get the biopsy which could also be a false negative. Only you can decide if it is worth it. If your doctor is willing to test your vitamin and mineral panels and to schedule a scan for osteoporosis without the challenge then if you have seen great results on the diet you don't really need the doctors permission to eat gluten free. It can be helpful in getting other first degree relatives to be tested, as they should, but sometimes your recovery will be enough to encourage them. Also some doctors will diagnose based on the resolution of symptoms gluten free and the reoccurance of problems when gluten is added back in. You may want to talk to you doctor about that.
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#632941 Snyder's gluten-free Pretzels

Posted by on 19 August 2010 - 04:07 AM

Well no wonder I haven't seen them yet. No whole foods here (nor Wegman's). Raven since you have bought them can you tell me if they have soy in them? The only pretzel I have found in my area are Glutino and they are made with soy flour. Trying not to get my hopes up while searching.


No they don't. Another pretzel that doesn't have soy is Wylde. If your local store can get the Glutino they should be able to order the Wylde for you. I really like the Wylde but figured I would give the Snyders a try. Both are good and soy free.
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#632639 More Testing On Tummy Problems

Posted by on 18 August 2010 - 04:31 AM

So went to the Doctor the Celiac panel isn't back yet however she told me that in the mean time to go gluten free for at 3-6 months and see how that goes. She will call me when the panel comes back to let me know what it says but she told me the same thing that I have read here in so many posts the "False negatives are extremely common" I also was diagonased with hypoglycemia which if I don't watch it will turn into Diabetes within 5 years.... just one more thing to add to the list. My fathers side is riddled with it and the celiacs would come from my moms side (so I think mom & grandma have major tummy issues) However I talked to my dad and my cousin started with hypoglycemia then turned out he has celiacs....


It sounds like you have a good doctor. If you have celiac in your family then your chances of having it yourself a pretty good. I hope you have good results from the diet. Ask us any questions you feel you need to. Although it sounds like your doctor is going to be willing to diagnose you based on family history and response to the diet do call and check that she isn't going to want you to have a biopsy. If you go gluten free before the biopsy they won't be able to diagnose you without a gluten challenge.
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#632463 Other Allergies Disappearing After Gluten Free?

Posted by on 17 August 2010 - 12:18 PM

Raven what type of allergy testing did you have done? If I were to go get an allergy test for foods what would I ask for? I used to have seasonal allergies but they were not really diagnosed. I just always sneezed and had nasal drip and itchy eyes during the high pollen season. Since going gluten free my seasonal allergies were much less this year. I still react to dust though.


The allergy testing I had was the skin prick kind. After the skin prick test the doctor immediately put me on a strict elimination diet. I really don't know if any foods were tested as the thing from the results I most remember was him saying 'Well your not allergic to beech trees'. He later said that those results made him pretty certain that I was celiac but he didn't mention it until after I had added gluten back in and had a strong reaction. He then told me that he thought I was celiac and referred me to a GI.
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