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ravenwoodglass

Member Since 17 Apr 2004
Offline Last Active Today, 03:46 AM
*****

#631185 "But You Can Eat Whole Wheat, Right?"

Posted by on 12 August 2010 - 12:19 PM

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.


Actually I think you are right. Spelt is wheat and I do think someone allergic to or intolerant to wheat would react. But I could of course be wrong.
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#631168 Gluten-Free Products And Sugar

Posted by on 12 August 2010 - 11:17 AM

It is best at first to go with as much whole unprocessed food as you can. Go light on the replacement items, perhaps a bread or cracker but for the most part just go with naturally gluten free food. You will heal more quickly and it will be easier to control your calories that way.
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#630796 Help! Unexplained Scary Symptoms.

Posted by on 11 August 2010 - 04:32 AM

Your onset of symptoms and the symptoms are very familiar to me. Your B12 levels are really quite low so I hope you are supplementing with sublingual B12. After you are done testing I hope you will give the diet a shot no matter what the results.
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#630597 Help With These Symptoms! Tmi

Posted by on 10 August 2010 - 07:21 AM

Ughh I wish I didn't eat that cheese, I don't eat dairy, haven't in months and just wanted to try it. In the past I had accidental dairy exposure and had the bloody stools but never as bad as this last one.

No more dairy for me ever. Dh ate the same cheese and had no issues.


I think your wise to avoid dairy permanently if this is a common reaction for you. If DH ate the same cheese with no bad effects then it was likely IMHO that since you have been avoiding it that your body was telling you in no uncertain terms that it doesn't want you consuming dairy.
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#630575 Funny Restaurant Phone Call

Posted by on 10 August 2010 - 03:09 AM

In her case it's very much like diabetic neuropathy, but she is not diabetic. As far as I know, her symptoms are sensory. She gets tingling, pins and needles, numb patches, and sometimes outright pain in her feet. As far as I know there is no wasting but she is completely unable to wear tight shoes like pumps because they hurt her too much. She also suffers from vertigo.

She's had full neuro workups and they can't find any reason for the neuropathy other than some B12 deficiency. She has been taking B12 for a while and it hasn't helped so her neurologist suggested gluten. She's not positive for anti-gliadin IgA, so it's a bit of a shot in the dark but nothing else has worked.


I hope you can get her to fully understand what the gluten free diet means. When we have neuro effects we need to be strict with the diet to have them resolve. It also takes more time than getting rid of just tummy issues. It sounds like she may have ataxia and things will only get worse if she doesn't adhere to the diet.
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#630574 Help With These Symptoms! Tmi

Posted by on 10 August 2010 - 03:03 AM

I agree that you likely have food poisoning. Go to your regular doctor and get a stool sample taken to find out what bug may have gotten you and if it is still present. If it is a short course of antibiotics will be needed. Some of the bugs can be with you for quite a while if not treated so insist that a stool sample is done even if your doctor is reluctant. I had salmonella for weeks and my doctor insisted that my 'IBS' was just flaring up worse or I had a virus. I finally got the stool samples done and two days later got a phone call and an apology.
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#630388 "But You Can Eat Whole Wheat, Right?"

Posted by on 09 August 2010 - 09:37 AM

some people are so insensitive! after years spent not eating ever, I think I would say, 'thank you. and how are you doing on YOUR diet?' and look very concerned :) probly hard to do with a straight face :D


After the description of the aforementioned person I think that is a perfect response. :D
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#630062 "But You Can Eat Whole Wheat, Right?"

Posted by on 08 August 2010 - 03:16 AM

im new to the 100% gluten free... question- do we ALWAYS have to avoid "natural flavors" & "artificial flavors" ?? it's EVERYWHERE :( still confused on that one.

and.. LOVE David Sedaris :D


Artifical flavors are not ususally a concern. I always check with natural flavors to be on the safe side.
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#630061 One Good Thing.

Posted by on 08 August 2010 - 03:12 AM

Yea I have to agree with the other poster that pain and being sick for a couple weeks is a really strong motivator. Some of us do have trouble sticking with the diet because their symptoms are not as strong so it is harder for them. Sometimes I envy those that can take the risks and not suffer as severely. It is always good to find the silver lining in the clouds though.
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#629950 Worried A New Clinical Manifestation Will Arise

Posted by on 07 August 2010 - 01:54 PM

If you have recently been getting glutened that may also be increasing your anxiety. You seemed much calmer for a while so I think that your possible CC issues with girlfreind and your reluctance to discuss what needs to done to keep you safe are contributing to how anxious you are feeling right now.
You are saying in other posts that you are now intimate with her. You really need to talk to her about what she needs to do to keep you safe. She is trusting you, and you her, not to be giving each other an STD, or you have discussed it. If she trusts you enough to be intimate, and you her, you should be able to trust her enough to let her know about needing to do things like brushing her teeth before you kiss deeply and making sure her lip products are safe for you.
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#629600 Brain Fog=Car Accident?!

Posted by on 06 August 2010 - 04:00 AM

It could have been brain fog but I think the real key is in this statement
" I just remember looking down or something, and when I refocused forward, people were braking...hard"
You were moving fast, in heavy traffic, and for some reason traffic was stopping fast and you didn't notice in time or space to avoid hitting the car in front of you. Accidents happen and fortunately no one was seriously hurt. Glad your ole rust bucket is still running and that your rust bucket was such a well built car to begin with.
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#629525 It's Official....i Am Crazy!

Posted by on 05 August 2010 - 06:24 PM

Hidden Valley states that they will clearly label their products and that their original ranch dressing is gluten free.


It does contain soy though. As I said in my other post I think you should try to go without soy for a bit and see if it helps.
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#629524 It's Official....i Am Crazy!

Posted by on 05 August 2010 - 06:21 PM

I also think you should drop the soy, just because you have been eating it your whole life doesn't mean it may not be affecting you. After all until you were diagnosed you ate wheat your whole life right? I would also drop the Amy's foods. They are hit and miss as far as CC goes.
I know you are reluctant to go with drugs, I was too. I fought for years not to take them. It seemed everything they gave me just made me worse. My anxiety was horrible and crippling. Doctors kept giving me stuff that had antidepressants mixed with antianxiety meds because they were convinced I was depressed. I am not unless glutened. One doctor finally listened and now I take a med that is strictly an antianxiety med and now I can sleep and function normally. Sometimes we have to try a few things before we find something that works.
The acupuncture is a good idea. I don't like needles either but the needles are very fine and it really doesn't hurt. You should consider trying it once, keep your eyes closed while they are doing the treatment and just listen to the music that is playing. It is amazing how helpful it can be.
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#629294 Tested Negative This Time?

Posted by on 05 August 2010 - 06:13 AM

That's good news that your test results were negative this time as it shows you are doing the diet strictly. A negative retest is what we are striving for. If you are not eating gluten you are not forming antibodies that are what the test is looking for. Stay on the diet, you were diagnosed and you have shown progress not only health wise but with the negative panel. Good for you and don't let the other doctor talk you out of your diagnosis.
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#629103 Confusing Blood Tests

Posted by on 04 August 2010 - 11:56 AM

It may be that she's IgA deficient. They could test total IgA and tell you for sure.


That is quite possible, did they do a total IGA?
Also if you are going to do more testing you need to keep her on gluten. If you are not going to biopsy then go ahead and get her on the diet strictly but keep in mind that when she gets to the GI any tests he does will be negative if she is on the diet already.
Also with those positive results it is a good idea to have everyone in the family screened.
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