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ravenwoodglass

Member Since 17 Apr 2004
Offline Last Active Today, 02:41 AM
*****

#630061 One Good Thing.

Posted by ravenwoodglass on 08 August 2010 - 03:12 AM

Yea I have to agree with the other poster that pain and being sick for a couple weeks is a really strong motivator. Some of us do have trouble sticking with the diet because their symptoms are not as strong so it is harder for them. Sometimes I envy those that can take the risks and not suffer as severely. It is always good to find the silver lining in the clouds though.
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#629950 Worried A New Clinical Manifestation Will Arise

Posted by ravenwoodglass on 07 August 2010 - 01:54 PM

If you have recently been getting glutened that may also be increasing your anxiety. You seemed much calmer for a while so I think that your possible CC issues with girlfreind and your reluctance to discuss what needs to done to keep you safe are contributing to how anxious you are feeling right now.
You are saying in other posts that you are now intimate with her. You really need to talk to her about what she needs to do to keep you safe. She is trusting you, and you her, not to be giving each other an STD, or you have discussed it. If she trusts you enough to be intimate, and you her, you should be able to trust her enough to let her know about needing to do things like brushing her teeth before you kiss deeply and making sure her lip products are safe for you.
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#629600 Brain Fog=Car Accident?!

Posted by ravenwoodglass on 06 August 2010 - 04:00 AM

It could have been brain fog but I think the real key is in this statement
" I just remember looking down or something, and when I refocused forward, people were braking...hard"
You were moving fast, in heavy traffic, and for some reason traffic was stopping fast and you didn't notice in time or space to avoid hitting the car in front of you. Accidents happen and fortunately no one was seriously hurt. Glad your ole rust bucket is still running and that your rust bucket was such a well built car to begin with.
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#629525 It's Official....i Am Crazy!

Posted by ravenwoodglass on 05 August 2010 - 06:24 PM

Hidden Valley states that they will clearly label their products and that their original ranch dressing is gluten free.


It does contain soy though. As I said in my other post I think you should try to go without soy for a bit and see if it helps.
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#629524 It's Official....i Am Crazy!

Posted by ravenwoodglass on 05 August 2010 - 06:21 PM

I also think you should drop the soy, just because you have been eating it your whole life doesn't mean it may not be affecting you. After all until you were diagnosed you ate wheat your whole life right? I would also drop the Amy's foods. They are hit and miss as far as CC goes.
I know you are reluctant to go with drugs, I was too. I fought for years not to take them. It seemed everything they gave me just made me worse. My anxiety was horrible and crippling. Doctors kept giving me stuff that had antidepressants mixed with antianxiety meds because they were convinced I was depressed. I am not unless glutened. One doctor finally listened and now I take a med that is strictly an antianxiety med and now I can sleep and function normally. Sometimes we have to try a few things before we find something that works.
The acupuncture is a good idea. I don't like needles either but the needles are very fine and it really doesn't hurt. You should consider trying it once, keep your eyes closed while they are doing the treatment and just listen to the music that is playing. It is amazing how helpful it can be.
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#629294 Tested Negative This Time?

Posted by ravenwoodglass on 05 August 2010 - 06:13 AM

That's good news that your test results were negative this time as it shows you are doing the diet strictly. A negative retest is what we are striving for. If you are not eating gluten you are not forming antibodies that are what the test is looking for. Stay on the diet, you were diagnosed and you have shown progress not only health wise but with the negative panel. Good for you and don't let the other doctor talk you out of your diagnosis.
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#629103 Confusing Blood Tests

Posted by ravenwoodglass on 04 August 2010 - 11:56 AM

It may be that she's IgA deficient. They could test total IgA and tell you for sure.


That is quite possible, did they do a total IGA?
Also if you are going to do more testing you need to keep her on gluten. If you are not going to biopsy then go ahead and get her on the diet strictly but keep in mind that when she gets to the GI any tests he does will be negative if she is on the diet already.
Also with those positive results it is a good idea to have everyone in the family screened.
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#628166 "But You Can Eat Whole Wheat, Right?"

Posted by ravenwoodglass on 01 August 2010 - 07:34 AM

New acquaintence "There is no such thing as food allergies, no one has them"
Me "I don't have food allergies I have celiac which is autoimmune and there really are lots of folks that have actual allergies" (The only full sentence I actually got out.)
N A " Those folks are just eating the wrong foods :o and your nasty attitude is why you have stomach problems" <_<
Me "Uh okay, goodbye"

This person had only known me five minutes. His entire tirade lasted for 4 of them. If anyone has 'stomach problems' because of a nasty attitude I guess it would be this guy. :D
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#628002 Low Total Igg--What Does This Mean?

Posted by ravenwoodglass on 31 July 2010 - 02:01 AM

If the kids that have low IGA and IGG are continueing to have issues with D and other possible celiac related issues I would strongly advise going ahead and giving the diet a good strict try. Those low values could very well cause a false negative in testing for celiac, IMHO, and the diet won't hurt them. It may not help all their issues but if it relieves the tummy issues and helps with growth it certainly won't hurt.
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#627129 Want To Cry-So Frustrated!

Posted by ravenwoodglass on 28 July 2010 - 03:51 AM

"I cut out gluten for the last week or so and definitely feel so much better! My poo has become brown again (albeit still floating and poorly formed) and I have more energy. But now I've been told my blood work is negative for celiacs or malabsorption, I feel like a fraud doing it, cutting gluten out I mean, as there is no rhyme or reason why I should. I guess o probably shouldn't cut it out now he's put me on these meds too?"

I'm so sorry your doctor is so clueless. Please continue on the diet. Many of us do have issues with depression and anxiety due to celiac's impact on the brain. It is up to you but you may want to hold off on the meds until you can see if the diet helps. False negatives on both blood and biopsy are not uncommon and can make it really hard for some of us to get diagnosed. Since you were feeling so much better on the diet stick with it, your body knows the answer.
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#626845 Elimination Diet - Help!

Posted by ravenwoodglass on 27 July 2010 - 03:38 AM

Thanks so much for your input everyone.

I have been able to start a modified elimination diet. I was able to taper off of green tea (albeit with headaches when I finally quit; I think I'm really sensitive to caffeine) Now, I'm only eating: sunflower seeds, tuna, quinoa, sweet potatos, kale, bananas, and olive oil and sea salt. So far, so good. My GI symptoms have resolved. I'm hoping my diet will make a difference in my neurological symptoms.

And, the best part is that after a rocky start, my cravings have disappeared (at least, for now). I feel free! Free!


P.S.: A friend who is certified in TCM suggested that a good option for vegetarians would be mung beans, which would provide good protein and are still easy to digest. I remembered that my inlaws in India feed mashed-up mung beans to infants. I decided to go with tuna instead though since it's more filling.


Glad to hear that your feeling better. When you are ready to start adding things back in be sure to add an item in for a full week, in it's pure form, before you decide that you can tolerate it. It can take up to a week for a reaction to occur with intolerances. I hope your progress continues well.
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#626844 Got The Diagnosis-Finally

Posted by ravenwoodglass on 27 July 2010 - 03:34 AM

Welcome. I hope you heal quickly. Ask any question you need to and read as much as you can. We sometimes have some ups and downs at first, hang in there if you do.
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#626767 Beating Myself Up Today

Posted by ravenwoodglass on 26 July 2010 - 03:55 PM

Everyone has regrets. It doesn't do any good to dwell on things you can't change all it will do is make you depressed and make others not want to be around you. You can't change the past but you can mold the future. Concentrate on what is ahead of you not behind. When we walk looking backwards we just keep tripping over every little rock.
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#626762 Need To Find A Dentist

Posted by ravenwoodglass on 26 July 2010 - 03:34 PM

Gum issues can be due to inflammation so it is not surprising that your issues there have improved. They have for me also. I did 'interviews' when I was looking for a dentist I simply went in to talk to them before I made an appointment. If they were clueless I simply moved on. I have had a couple that were knowledgeable about celiac, one was so paranoid about glutening me she even checked the cotton balls. LOL Unfortunately she was a lousy dentist so I moved on and have crowns that will need to be redone. My dentist now is great, he didn't know much about celiac when I first saw him but he was quite willing to learn. Much of what they use is safe anyway but the flavoring in the tooth polish and flavoring in the numbing gel used before they give you a needle should be checked.
If you are fearful of dentists there are also sedation dentists who if you need a lot of work can give you oral sedation. Mine now can't legally do that but he was fine with my getting something from my doctor to self sedate when I had to have 5 teeth pulled in one sitting. Going into the dentist after years of not going was one of the best things I ever did for myself. Sometimes we don't realize how much pain we are in until its gone. Good for you for getting yourself in there. Just ask questions first and you will be fine. Dentists see lots of folks that haven't been in years, they won't chastise you for it.
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#626451 Visually Most Repulsive Gluteny Food

Posted by ravenwoodglass on 25 July 2010 - 10:31 AM

For me it is the little frosted mini wheat guys dancing around saying how your kids will think better in school after eating them.
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