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Member Since 19 Apr 2004
Offline Last Active May 03 2004 09:04 AM

Posts I've Made

In Topic: Just Need To Vent

01 May 2004 - 06:44 AM

Thank you all so much for your replies. My husband took my test results to a doctor he works with(he works in medical records in a hospital) and the doctor said the IgA level was negative and that the ranges beside of it wasn't the right ones to go by but the ones to the IGG. My IGG was positive 33 and my IgA just has <20 so it is negative. The doctor said I may have had something for a while from both pregnancies and am now its going into remission and it could be nothing but simply pregnancy, that it can cause all kinds of weird things. Also he said I should request to have the test to determine exactly what may be causing my anemia. I've had it for years and never knew I could do that but he said they only do it if you request it. He said I may just not be absorbing iron. I am surprised the GI didn't even mention IBS. I always thought that if everything came back negative then that was their usual diagnosis. I still don't know what is wrong but I'm feeling better. Again thanks for all of your help!

In Topic: Just Need To Vent

30 April 2004 - 11:47 AM

I called the doctor back and she said all of my labs were fine other than the anemia. I know better. Both gliadins where positive. She said no IBD on colonoscopy, no food allergy, just anemia and that I am fine. I know better. I think I may start the diet on my own and see for myself. I am so upset right now all I can do is cry. I'm right back to where I started, sick and no idea why. I can't afford to lose anymore weight. I am already underweight and depressed. I eat all the time, love food so something is going on. I have no idea what ingredients or things to avoid on the diet so any help right now would be appreciated.

In Topic: Restaurant Eating...is It A Possibility?

30 April 2004 - 06:39 AM

[COLOR=blue]Hi jewlr22. I am not yet diagnosed but my doctor thinks I may also have celiac disease. I had both antibodies come back positive but the endomysial was negative. I'm still waiting on a call back from my doctor to see what this means. I have been reading a lot on this and I think there is a board about eating out and also you can go to the restaraunts websites and some have gluten-free menu's. The places so far that I have found with online gluten-free menu's are Wendy's, McDonalds, Outback Steakhouse, Chili's, Chik-fil-A, Steak N Shake and Burger King(has I think items containing wheat on their nutrition menu, not an actual gluten-free menu). If I do go on the diet my husband already says he will go on it with me. I think someone mentioned it is healthier than any diet. I am currently in a depression because it has been two years and even though I feel closer to finding out what is wrong with me, I also feel like we will never find out. I guess with the high antibody levels that I at least have a gluten intolerance, if not celiac. I hate the thought of going on the diet, but at least it is an answer and will get easier with time. Good luck and even though I don't know much, I hope I helped you some! Take care![COLOR]

In Topic: Positive Gliadin, Negative Endomysial

26 April 2004 - 12:04 PM

Thanks for your replies. The doctor hasn't said anything. My husband got the results himself because he works in the hospital and has to pull patients labs all the time for their records. The doctor or her office has not called to let me know the results are back or what they are. I do not see the doctor again until May 25 which is a long time away for me. I may give her office a call tomorrow or Wednesday if they do not call me and ask if the results are back and what they mean. I just don't understand that if I have Celiac and it is bad enough for the antibodies to leak into my blood stream and be detected that the endomysial didn't detect anything. I guess it happens but it definately has thrown things off. <_< I read that if its not the disease but just a food allergy then usually your Globulin will be high (or low, can't remember which for sure) but she had mine tested and it is within normal range, as is my albumin. Everything on my blood work is fine other than the anemia, and the Gliadin IgA and IGG. Thanks again for your replies...I just hate the wait when the appointments are so far way, its silly. Hope you are all doing well! :D

In Topic: Positive Gliadin, Negative Endomysial

26 April 2004 - 09:20 AM

Sorry but I forgot the major symptom...weight loss. My normal weight was always around 135-139lbs and my last doctor appointment I was 117lbs, 2 lbs less than the month before. Thanks again!

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