It has been two weeks since I had my blood work done and I called the GI's office Wednesday and she still hasn't called me back to let me know what they are or mean. I am getting very frustrated and depressed. I feel like I will never find out what is wrong and will always suffer. My appointment to follow up with her isn't until May 25th! I cannot and will not wait that long to find out if I actually have a disease or not. My opinion is if you can't be courteous enough to give a patient a call back about theirs results then do not tell them they may have a disease they will have for the rest of their lives! Its crazy and stressful for us. I guess I vented enough for now. Thanks for anyone that listens and hope your day is going great!
I read somewhere I think yesterday about someone with Celiac or maybe just an intolerance that has to read the same paper about five times. I also do this except instead of doing the page a lot I have to re-read most sentences and if I travel with directions I have to read the paper the first 3-4 times I go to make sure I know where I am going. I never use to have to do this and I have been reading books constantly since I was about 12 and I am now 23. All of my symptoms started after I had my first child 2 years ago.
Also starting a couple of months ago my left elbow will hurt and get real sore for days and this past week my right knee has been the same way. I have anemia, weight loss, diarrhea, constipation, abdominal pains and cramps, headaches and sometimes in bed at night my left leg will tingle but not like it is going to sleep, and I get the urge to jerk it constantly.
My GI thinks I may have Celiac and after blood work came back both of my gliadin antibodies were both high, not extrememly but high enough for a moderate positive. My antiendomysial came back negative. I think I read I can still be Celiac but if not then with both antibodies high that I more than likely have a gluten intolerance.
Any replies would be greatly appreciated and I hope everyone is feeling well today!
I am new here and I have a few questions. I went almost 2 weeks ago for a colonoscopy to test for Crohn's Disease but the GI said before the procedure began that she bets I have Celiac and wanted blood work done. The colonoscopy came out fine, no Crohn's. I just got my blood work back...which was sent to Quest this time and not Promethus like my IBD blood tests were. There were:
GLIADIN AB IgA - <20 H REFERENCE RANGE (0-5) UNITS GLIADIN IGG - 33 <20 units Negative, 20-30 units Weak Positive >30 units Moderate to Strong Positive Antiendomysial - Negative
I know the endomysial is the best test for Celiac Disease but I also though that with both high levels of Gliadin could also mean you have it. My symptoms have been some diarrhea but not daily, constipation, stomach cramps, bloating, some rectal bleeding but bright red and not very often, painful bowel movements, iron-deficiency anemia which is currently down to 9.8, stomach tenderness (no one can put any pressure on my lower abdomen) and loud stomach grumbling. I honestly was expecting the endomysial to come back positive because of the other two high levels but in a way I am glad it didn't, but also I'm kind of upset that it didn't because now I may be back to square one of not knowing what is going on. I was dying that the thought of the diet and giving up my favorite foods but at least I would have finally known what is causing my problems. I don't see the GI again until May 25th. Anyone know if there is anything else that causes the positive Gliadins other than Celiac? I know its still possible that I have it but just curious. Thanks!