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mat4mel

Member Since 21 Apr 2004
Offline Last Active Apr 21 2005 01:37 PM
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Posts I've Made

In Topic: Diagnosis

03 March 2005 - 12:10 PM

inmyhead, could you please tell me where you got those statistics-- my dd had both antigliadin igg and iga positive but all others were negative-- i did a lot of reading and it was over 95% chance of celiac with both of those positive. oh wow now i just read your email again and it says from your child's GI dr. that is very interesting-- i wonder what else could cause those #'s to be elevated? i have heard that the iga part is very specific.

In Topic: A Day In The Life Of A Gf Child

13 January 2005 - 05:56 AM

These menus sound great; I wanted to add that somebody mentioned Kraft's parmasan cheese and I almost 100% sure it has wheat flour in it (the kind you buy off the shelf in the green container).

My dd can't have much dairy at all (little cheese here and there) AND no chocolate (usually has dairy anyway)... AND she is underweight, so I am having a hard time coming up with ideas to help her gain. Any ideas?

breakfast-- peanut butter banana muffins (homemade), or van's gluten free waffles, or malt o meal's fruity dyno bytes with soy or rice milk
lunch-- lunch meat, french fries, applesauce
dinner-- peanut butter and jelly roll ups (heat corn tortillas in a skillet with margarine, spread peanut butter and jelly in the middle and roll up)

snacks are usually some form of chips

In Topic: Is This A Sign Of Celiac?

12 October 2004 - 04:35 AM

Renee, my dd's story is very similar. Around the age of 2 she had loose frequent stools exactly as you described. She also had positive igg and iga at her ped's office but he did not run the endomysial antibodies. We couldn't get into the ped gi dr for a few months, and decied to go ahead and put her on a gluten-free diet. her poops improved a great deal after the gluten-free diet.. also eliminated casein (milk protein) at the same time. Although her poops ar estill not formed at all and I suspect there are several food sensitivities. She still is very sensitive to milk protein. Our ped GI dr ran the endomysial antibodies after being gluten-free a few months and it was negative but he said her total IgA was slightly low so the endomysial antibodies being low was not very reliable. He recommended teh same thing-- do a gluten challenge and endoscopy. We aren't sure if we are going to do that yet. We keep going back and forth. I am pretty sure celiac is in our family because of some of the family history (nobody has been dx'd with celiac, but there are some people with symptoms) so I am hesitant to reintroduce gluten back into her diet right now.

I hope I didn't confuse you any more than you probably are. Excuse my typos if there are any-- I am holding my newborn while trying to type. :)

Mel

In Topic: Is This A Sign Of Celiac?

11 October 2004 - 05:18 AM

Renee,

Yes, fatty stools is a major symptom in kids with celiac. My 2 1/2 yr old dd had frequent greasy (and mucusy sometimes too) looking stools until gluten-free diet.

So your child is on a gluten-free diet? Is that helping at all?

Mel

In Topic: What Would You Do? 2 Yr Old And Endoscopy...

30 September 2004 - 06:02 AM

I totally know where you are! I have a 2 1/2 yr old, who also has low IgA and neg ttg. Did they also run the anti-gliadin antibodies? That might help, maybe not though with the low IgA. Anyway, I keep going back and forth on the endoscopy issue. Seriously-- one day I will be okay doing the gluten challenge and biopsy, and then one day I am set on just sticking to my instincts (that tell me she does have celiac). I have heard too many stories of kids having negative biopsies, only to be found to improve greatly on the gluten-free diet.

Sorry, I am not too much help, but there have been several people in your same situation. It is a really tough one. Is your husband supportive? Mine is very very supportive. So is my family (parents, siblings). But his family, the ones that I suspect the gene is coming from (his mom has all the symptoms but is in denial, and my husband and his brother had symptoms as children) think I am complete nut!

Mel