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Member Since 08 Jul 2007
Offline Last Active Jan 07 2010 09:43 AM

Posts I've Made

In Topic: Illustration On Celiac

06 January 2010 - 08:26 AM

I sort of describe it to others like this:

1. I eat gluten and my body things its poison or a foreign object
2. My body makes antibodies to attack/eat the gluten (I think of ms. packman here)
3. The antibodies cannot distinguish between the gluten and the intestine walls (happy little fingers - like a sea anemone) and start eating the villi too!
4. Keep eating gluten, it gets worse and if the intestines cannot properly function, everything goes to s**t, literally.

In Topic: I Want To Delete My Account And Post Content

29 December 2009 - 09:03 PM

Thanks for the quick response.

In Topic: I Want To Delete My Account And Post Content

29 December 2009 - 08:58 PM

Will deleting an account delete all post history as well?

In Topic: I'm Planning My Cheat Day

30 April 2009 - 06:04 AM

Did you ever see the SNL skit for adult diapers called "Oops I Crapped My Pants"?

The thought of gluten makes me think I could do similar ads.
I have a friend who is lactose intolerant and we call it EMERGENCY FACE.
(That look you get where you need a restroom ASAP and you don't want people to know but then have to break out into a modified sprint.)

There are lots of recipes and alternative products and encouragement for you to stay gluten-free.
That said, only you can want to do it and make that happen.

If you are going to cheat, I recommend access to a private, well ventilated toilet for the post-cheat. Be prepared, be very prepared. (This is not the time to buy the cheap tp either. If you are going to splurge on junk food consider the fluffy 2-ply as well.)

In Topic: I Am Having A Hard Time With This!

30 April 2009 - 05:52 AM

1. You are a really fantastic human being for seeking out a place like this to ask questions and get support! (Not all persons are so lucky, so pat yourself on the back for wanting to find out more)

2. This is hard for you and your whole family because it involves food - everyone needs to eat and eating has so many social and cultural components. Your wife is going through a whole slew of emotions and undoubtedly feeling left out and that is is very unfair that she has to give up so much and probably doesn't want to give up her family meals and wants to see her home as "safe."

3. How you feel about gluten and how she feels about gluten will change. This level of emotional intensity over everything is new and everyone in your house is trying to learn what this means.

If she is recently diagnosed she is probably dealing with a slew of other health issues. It takes a while for bodies to heal and she probably doesn't feel 100% better and might blame the current gluten-in-the-house situation for not feeling or getting better. (she also might be getting cross contaminated which SUCKS and feels like starting over from day one)

4. I am almost 2 years gluten free and often envious of those who are able to have a gluten free house. I live with two roommates and it means doing double work every time I want to eat something. (Cleaning up their crumbs, laying down a clean dish towel, getting my gluten free utensils out of a special bucket, having to use and clean things separately and get them back into the bucket, etc.)
It sucks. I feel like I did not choose to be gluten intolerant and I should not have to clean up after other people who leave out POISON on the counter... but the fact of the matter is my working definition of "clean" had to change and means something very different to me than it does to them.

I wouldn't doubt if your wife is feeling scared of your kitchen, crumbs and fingers. Again, this can change. (I no longer have roommate rage, I roll my eyes and clean up crumbs daily, because that is what I have to do to be healthy.)

5. Talk to her about separate spaces. Color coding, like others mentioned can be really useful.
But go gentle and say its because you want her to feel at home in her house and safe. Ask her what she feels is reasonable.

Here is the thing... she might not feel like she can share her space right now. She might feel gross and bloated and uncomfortable and tired and doesn't want to have to THINK about one more thing in her life that could make her sick. It sounds paranoid but when you are first diagnosed and all of a sudden you find out that things with gluten can be in ridiculous places - like twizzlers & envelope glue! - you think you are going mad and will never find all of the hidden gluten and never be healthy.

So while this feels really like she is punishing you, its probably because she wants to be healthy for herself and her family. (but when you are going through the beginning stages its really hard to know how you feel and articulate it because it feels overwhelming)

Hopefully the stories here can shed some light onto what it feels like from the can't-eat-gluten perspective and if you are able to have a conversation with your wife where you can say "man this has to be overwhelming and scary, lets work on this together" she is going to feel like you are her partner in this and that you will be helping her too (reading labels, respecting the rules of the kitchen, etc).


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