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Member Since 19 Jul 2007
Offline Last Active Sep 04 2007 09:56 AM

Posts I've Made

In Topic: My Daughter Had Her Endoscopy Today

25 August 2007 - 05:32 AM

Thanks, I guess we just have to wait it out.

In Topic: Can Anyone Explain The Low Iga Issue

13 August 2007 - 10:06 AM

Thanks so much. That was really helpful. Hopefully we'll get the results of the second testing today.

In Topic: Heart Palpitations And Insomnia

06 August 2007 - 07:21 AM

Glad you're having it investigated, but yes, I have those exact symptoms, and it's always when I've eaten something I have problems with - not necessarily gluten, as I have other food allergies that cause them, but before I went gluten free, it was happening a lot more. It will probably take a few months to see the full benefits of the diet and it seems to be a fairly common experience for there to be set backs in the improvements, even where you're being strict about being gluten-free.

All the best

Susie x

Poor guy. I totally agree with Susie here. It doesn't have to be gluten for me. I am off dairy and don't eat the yellows of the eggs, peppers are also a problem. Sugar and caffeine are big triggers, as well as some chemicals and dyes in food. I eat a very basic diet and that is how I feel best.

In Topic: For Those Who Didn't Have Awful Stomach Problems

06 August 2007 - 04:39 AM

I just wanted to ask if anyone after being diagnosed experienced an increase in their blood pressure or weird heart palpitations. Lately I feel like I can physically feel my heart beating in my chest with such pressure that it scares me. My blood counts such as white blood cells and platelets have always been low but were tested to be even lower after going gluten-free. Does anyone know of a connection between the heart/blood counts/blood pressure and celiac?
mm&j (Susie)

Hi Susie,

One of my main neurologic problems was weird heart palpitations and increased heart rate due to actually a too low blood pressure most of the time but sometimes it is on the high side especially when I'm tachycardic. They say it is neurologic-based because BP is controlled from the back of the brain. I always have an increase in weird heart symptoms when I am ovulating and premenstrual (so basically half the month IF I get a normal period).

I do take a beta blocker which slows the HR down as well as anxiety medications (not SSRI). Relaxation techniques help, as well. Not saying that this is caused by anxiety but getting wigged out about it doesn't help me when it happens.

I am just learning more about the heart/blood count/celiac connection now. Do you have a good hematologist and celiac doctor? I know with my DD, she has a low white count as well as anemia and the doctor always checks BP and HR because high HR is a side effect of low blood counts.

Hope this helps.



In Topic: For Those Who Didn't Have Awful Stomach Problems

05 August 2007 - 10:58 AM

Thanks so much. The more and more I think about it, I think that I just lived with stomach aches for so long that it just didn't phase me as being abnormal. I had diarrhea probably several times a week but for the most part it wasn't unmanageable, but my stomach did burn a lot. I almost forgot about it now that I haven't had gluten in so long.

My daughter will be tested this week for celiac so I pray they figure out whether it is or not.

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