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bonnieo

Member Since 03 May 2004
Offline Last Active Nov 17 2004 07:28 PM
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Topics I've Started

Sed. Rate/esr

04 October 2004 - 05:30 PM

I've been mostly lurking on this board since April. I've learned a lot about Celiac by reading here and elsewhere. My 8-year-old son is scheduled for small intestine biopsy on Thursday. His antigliadin IgG and IgA are elevated, tTG and antiendomysial are negative. The doctor has finally decided to do the biopsy to "rule out Celiac." Nothing we've done has improved his symptoms. Does anyone know if there's always inflamation (as indicated by elevated sedimentation rate) in one who has Celiac? He does not have elevated SED rate.

Bowel Movement Urgency

29 July 2004 - 08:03 AM

Does anyone have the symptom of bowel movement urgency when ingesting gluten?

...sorry to get so personal -- just trying to figure out what's causing this.

Thanks!

Dietary Challenge

22 July 2004 - 09:38 AM

My 8-year-old son had to have blood drawn 3 times to get a full celiac panel. He has had these results:

IgG anti-gliadin antibody - strong positive
IgA anti-gliadin antibody - weak positive
Anti-endomysial - negative
tissue transglutaminase - negative
Total IgA - normal

Other abnormal tests:

IgE egg whites - positive
IgG casein - strong positive
creatinine - low
white blood cell count - low

We've seen the pediatrician, gastroenterologist, and allergist. All have given different advice (some conflicting).

Because symptoms have not resolved, the pediatrician recommends eliminating wheat to see if symptoms resolve. If symptoms resolve, we'll put wheat back into his diet and do the small intestine biopsy.

Please provide any opinions about his blood test results.

Wouldn't it make more sense to do the biopsy before we just try eliminating wheat?

Thanks in advance.

JO

Parties -- Food Focus

07 July 2004 - 11:10 AM

My child has been to a few parties and family gatherings since we started carefully watching what he eats. It seems that everything at a party is "off limits" for him. How do you deal with this? Do you bring just enough "allowable" food for your child? Bring enough for others? Excuse your child during the meal? I don't think he feels deprived at home where we all support him by avoiding the foods he can't have. But I can't expect everyone to understand what he can/can't have. Any ideas to make this easier??

Celiac Blood Tests

26 May 2004 - 07:09 PM

Does anyone know...

If TTG is the best indicator for Celiac Disease, why are gliadin IGG and gliadin IGA tested also?

My 7-year-old son has gliadin IGG of 126.2 units (strong positive), gliadin IGA 22.2 (weak positive) but his TTG is 17.9 (negative).

Does this mean he is:

- gluten intolerant?
- gluten sensitive?
- has a potential to develop celiac?

The doctor advised me that my son is not celiac and there is no reason to remove wheat from his diet.

Another blood test was IgE to casein - 19.6 (score III). We were advised to remove all forms of milk from his diet but not to strictly eliminate other foods he has trouble with (soy, eggs). Does this sound right??

Thanks,

JO