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Member Since 23 Sep 2007
Offline Last Active Sep 06 2011 07:44 AM

Topics I've Started

Confused And Overwhelmed

04 September 2011 - 01:55 PM

I'm going to give you a bit of history and basically beg for advice, I am so overwhelmed.

In 2002, I was diagnosed with hypothyroidism. I was 24 years old. My family doctor put me on synthroid and antidepressants. The antidepressants made me crazy, so I took them only for about 4 months. I felt a little better but would have bouts of depression and gained about 10 pounds pretty quickly. I started off very healthy at about 135.
My levels were managed on the high end on about 75 mcg for a couple of years.
In 2005, I got pregnant with my first child. I started seeing an endocrinologist and he kept my levels on the lower end of normal and I felt okay. Better than before, but still not too great. I also began using generic levothyroxine around this time. I was really sick during the first trimester, but got a little better once I hit the second. I went full term, but my child was born with several birth defects(heart, spine, hearing loss, and eye issues) My levels were kept normal during the pregnancy and genetic tests were ran to see if they could diagnose him with a syndrome, but nothing came back.
My levels were a little up and down after the pregnancy, but got under control pretty quickly.
In 2007, I got pregnant with my second child and had a miscarriage at 10 weeks. I was completely devastated and began to research natural ways of living. I didn't know what else to do but to try to be as healthy as possible.
Over the next six months, my son was getting stomach viruses every few weeks and was failing to thrive. He was referred to a gastroenterologist. He suggested that my son may have celiac disease because he had a lot of symptoms. They did bloodwork, a stool sample, and an endoscopy. His tests were all negative and he was diagnosed with lactose intolerance. During this time of testing, I became pregnant again. After reading about celiac disease and before getting my son's tests results, I removed gluten from my diet because I was afraid I had it too and that may have caused my miscarriage. After the tests for my son came back negative, I assumed I didn't have it, mainly because it was soooo hard to be so sick and try to adopt a gluten free diet at the same time. During this time, my OBGYN ran some tests and found out I have a genetic blood clotting disorder called mthfr. I was told this could have been the cause of the birth defects in my first child because with this disorder, the body doesn't absord folic acid and other B vitamins properly. So I began taking a ton of folic acid, blood thinner shots, and B6 and B12. My son was born without any problems.
About 4 months after this pregnancy, my thyroid levels became extremely hyper. I had never experienced these symptoms and it was extrememly hard to cope with. After a couple of months of dealing with this, I decided to stop taking my thyroid medicine. I was in an extreme state of desperation with two young children and the extreme symptoms of hyper made me think maybe my thyroid was working again.
WRONG! In December of 2008, after two months of no levothyroxine my TSH was 219, my T3 was 50(low), and my Free t4(low) was 49, Oops, guess that was a really bad decision. So I began taking levothyroxine again and my levels seemed to be mostly normal after a few adjustments.
In August 2009, I became pregnant again. Another healthy baby was born in April 2010. But I started going through the hyper to hypo trainreck again. This past summer I was taking 137 mcg and started feeling the extreme symptoms of hyper again. It was awful again and I had trouble coping. So after getting tested, I was right, and they lowered my dose to 112. Two months later, I began feeling hypo, rechecked, and my TSH was at 13. So instead of putting me in between at 125, my annoying endocrinologist would not listen to me and put me on 150.
Last month, week after going on the dosage f 150, I started seeing a new doctor who tested me for a lot of things, including hashimotos. She said it sounded like I have all the symptoms, and suggested I start eating a gluten free diet to see how my body responds. So two weeks ago, I followed her advice and started eating gluten free. Last week, I got a call saying I was low in vitamin D levels, and that my bloodwork suggest that I have hashimotos. My antithyroid peroxidase was 440 and apparently normal is below 35. My Free T3 was also on the low normal end, but total t3 was normal. She didn't recheck TSH or T4 since I had just changed my dose a week before.
This past week, I began feeling extremely hyperthyroid again, and I am having trouble coping with the symptoms. So I am now taking my 112 dosage until I can see my current physician to put me on 125. I'd rather be hypo, hyper symptoms make me feel crazy.
So now after all these years, I find out I most likely have hashimotos. I know nothing about this and I honestly hate chagning my diet so drastically. I will be honest and say I despise having to be gluten free and alter my lifestyle so much. I feel like emotionally if I could get back on track, I wouldn't be so overwhelmed, but I am so confused at what to do. I don't feel any better so far, I really feel worse to be honest. I want to eat bread, but I won't because if it is truly causing me to be sick, it isn't worth it. Anyone have advice to help me understand what is going on? I am so overwhelmed today and I just want to be happy. I have a fantastic life and a ,wonderful family, it grieves my soul that these health issues are preventing me from enjoying my blessings. :(

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