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Zeno

Member Since 22 Oct 2007
Offline Last Active Oct 25 2007 06:09 AM
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Posts I've Made

In Topic: Greetings

25 October 2007 - 06:09 AM

Glad to hear that your iron levels are improving with the supplements, it sounds like you have a great and knowledgable doctor, she's a keeper.
It will be an adjustment to go gluten-free, some of us do it easily but they are in the minority. Keep it as simple as you can at first and try and go with naturally gluten-free food as much as you can. My DH ate a lot of steaks and baked potatoes those first few weeks, his favorite food. I was stuck with bland stuff like plain rice and chicken and applesauce since my gut was in very bad shape but the boredom was worth it as my system healed and I started to feel better. This is a good place for info on the diet and it is a great place to vent in the first weeks.

If you are living with Mom and Dad or a significant other it can help a lot to get them to come on and read a few posts. Sometimes that can help them get a handle on the effects we sometimes get when we eliminate the toxin. You may have a withdrawl period with a bit of ups and downs the first couple of weeks. This is not unusual and you will get through them. When things get the worst and if you get tempted to cheat at a low point try to remember that if you do you will prolong the withdrawl. That aspect is over for most of us in about 2 weeks so hang in there.



I will admit it helps when dealing with doctors that your father is a doctor, mother a nurse, and you are one semester away from a degree in biology. But, yes the GI I've been dealing with seems very knowledgeable.

Thank you so much for the advice. I really appreciate it. I have managed to do alright on the diet for the past couple days, but I am sure there will be some serious venting. I'm also still going through bouts of denial with a lot of frustration.

Sadly mom, dad, and girlfriend (along with their respective cooking abilities) are all 200+ miles away, and I live in very much a typical college house with 3 roommates (and relentless exposure to pizza and beer). My girlfriend has already been very understanding, and I think visiting her will be an enjoyment rather than a strain as far as the diet goes. She is a vegetarian so waiters are going to have a great time dealing with us. :D

In Topic: Greetings

24 October 2007 - 03:00 PM

My iron levels were very low, the hematologist recommended taking 3 325mg ferrous sulfate iron pills a day. I didn't have B12 problems though, which is why I didn't have "iron deficiency anemia." I started taking the iron supplements (albeit not diligently) and my levels are back into the low end of the normal range.

So I talked to the GI again today and asked her about whether I need to keep consuming gluten until my endoscopy. She said that the 4 gluten free weeks won't matter, and that I should start going gluten free now even though my endoscopy isn't for another month. Which is good news and bad news in a way I guess.

In Topic: Greetings

24 October 2007 - 09:38 AM

That is correct, if they are looking for celiac damage to diagnose you then they do want you to keep poisoning yourself.



That wasn't made clear to me. However, I would like to do that just so they get as much information as possible when I have this endoscopy done. Do you know by any chance if I can have iron deficiency and not have damage though? I mean, common sense would say that if you have iron deficiency, your villi aren't absorbing it...but I guess I was wondering if this could be caused by something else? However, I'm a male and not anemic.

In Topic: Greetings

23 October 2007 - 07:14 PM

Thanks for the advice. I spoke with my mom today (she spoke with the GI), and I guess they do need the endoscopy for a Celiac diagnoses. The antibody results just prove I have some form of gluten sensitivity and not necessarily full blown Celiac.

I guess what I'm wondering is if the normal range is 5 and mine was 100+....what are my chances that I do not have Celiac disease? Can people with just a gluten allergy or gluten intolerance exhibit iron deficiency? Or are nutrient deficiencies usually just found in those with full blown Celiac? I have been taking an iron supplement since we learned about that, and my levels are back into the normal range.

My endoscopy will be over Thanksgiving. Right now I am still to the point of letting it sink in. I mean pizza, beer, sandwiches from the bagel shop, fast food, Chinese food...I basically live off this stuff (not really by choice though). Believe me, I would love to be able to have fresh salmon and mashed potatoes for dinner. But in a college town and this environment it just doesn't seem feasible.

I don't know how to cook nor do I have time learn, and subsequently start cooking. Luckily I enjoy gourmet food and seafood. The diet isn't a problem as far as taste and finding foods I like (except the chocolate chip cookie part). It's just a problem of having access to the food and time to cook.

Do a lot of people order food online? Is anything from a fast food restaurant safe?

In Topic: Greetings

23 October 2007 - 10:49 AM

The normal ranges for different labs vary, so I don't know if any of yours were abnormal, although you had normal results for the ones which are thought to be most accurately suggestive of celiac disease, the anti-tTG and endomysial antibodies.


The supposed normal ranges for Igg and IgA are 5-7, and mine were 101.3 and 49.2. I am under the impression that they are certain I have this and are just doing the endoscopy as a formality (and to check for damage of course).