Jump to content

Follow Us:  Twitter Facebook RSS Feed            

   arrowShare this page:

   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac.com Sponsor:                                    


Member Since 25 Oct 2007
Offline Last Active Nov 19 2007 10:13 AM

Posts I've Made

In Topic: Misdiagnosed Or Not? That Is The Question!

01 November 2007 - 01:24 PM

Thank for those of you who took the time to read my situation. I am now going to try and respond to those that did;


Do you eat a lot of vinegar/acidic foods b4 the canker sores show up, or do they just show up randomly? Or do they stay?

I have to say that they show up randomly. And they stick around for over a week (10 days or longer) I hate them more than anything. I had my dentist look at them, who then told my doctor to look at them, and then my doctor told my dentist to look at them. And these are really great doctors.

And the bloating...does it get worse in the hot shower, at night, when you eat ... or is it constant?

When it was really sever, I actually had to go in the tub and sit there for a while (an hour or so). It was really uncomfortable.

Does passing gas make it feel better, or does it just go away on its own?

Majority of the time, it is a temporary feel good feeling and I have to wait at least an hour for it to go away.

And does your tummy hurt when you have the bloating?

It is a very dull feeling, but also hurts at the same time. When it occurs I really have to just sit around and wait for it to go away.


Thanks for the input, I am going to have to fully check out those tests more, and see where I can get them.


Thank you for your perspective. It has been a stressful ride so far. I am an entrepreneur in the U.S. who needs to get better insurance (but didnt because that is what I could afford), and when I say I have spent 10K, that is the low number. What I noticed is that the blood tests cost the most amount. I can go into a Lab, have my blood drawn, and come out spending a 1K - 2K later down the road. LABCORP is making a killing off guys like me. It got so bad, because the doctors kept running blood tests, that I said I couldn't do it anymore. So they came up with the solution that if they run the blood tests under the license, then I could get wholesale prices rather than paying the huge mark up. I actually called LABCORP because I was a little P.O. Their answer was that I should run it through my doctors, because my insurance would not cover the costs of the labs, and that they charge a higher premium because I am only doing one person, as opposed to a whole office running a lot of tests. This makes business sense, but when it comes to health, it hurts a lot.

I know there is an opportunity somewhere for affordable testing.

Now back to health related issues-

I do have billirubin as noted earlier, and it has consistently come up high on every test. Three doctors didn't seem alarmed, in fact they were casual about the test results. They just said I may have gilbers disease which is supposedly harmless.

That is interesting what you said about the METAMATRIX test being "non-regulated analytes" . Does this mean that the test is not accurate? I was also told by another doctor that the IGg4 is not an accurate measurement for allergies. The test was based on the anti body. Maybe that is why another doctor got pissed off when he saw this test, and said is was a complete bunch of B.S.

About the Mixed Connective Tissue disease - I had two blood tests for this disease and they came back positive. Even the Rheumatologist who told me that I 100% had this disease, and started prescribing all sorts of meds, told me that LABCORP was the one who developed the testing for this condition. He even told me that he was working under the doctor who came up with the exam. I then went to MAYO CLINIC who had their labs do all the necessary testing (in fact they told me that just positive ANA + RNP although not normal is not the only indicator for MCTD) My results came back without a trace. Thats when I said what the F*$k. They thought that the LAB that it could be the LAB and that they did not specialize in this sort of testing, and that it was important to find a lab that did specialize in MCTD, as well as, use another testing place other than LABCORP. My question to you is, how can you find another lab that specializes in this testing? I have yet to get another test because of the fiasco.

The Mayo allergist told me I have IBS just as you have been told. I actually don't know if I should keep pursuing celiac disease as a possible candidate or switch to something else. All I know is that I have had those symptoms.