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stomica

Member Since 19 May 2004
Offline Last Active Jun 30 2005 06:19 AM
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Posts I've Made

In Topic: Celiac Plus No Dairy

14 June 2005 - 01:47 PM

Hi! Well, we did the no dairy, no gluten diet for several months with my 3 1/2 year old daughter. It was tough, but not impossible. Actually, I found it harder to keep the dairy out of her diet than gluten! Anyway, what about soy ice cream and soy yogurt? My daughter wouldn't eat the soy yogurt at first, but now she loves it. I basically just mixed it with regular yogurt...over the course of a week I had phased out the regular stuff. She loves the Silk Vanilla yogurt, which I find at Whole Foods. I'm not sure if Tofutti brand ice cream is gluten free, but my daughter loves it. I eat it occaionally as well. Especially the chocolate. Anyway, hope that helps! Good luck!

Sue

In Topic: Negative Ttg And Ema...is That Conclusive Enough?

17 May 2005 - 06:19 PM

Hey Michelle - Sorry I'm so delinquint in responding, but I've been out of town...Anyway, I wanted to thank you for your response! The information has been very helpful. It's always nice to know there are actual facts out there! Thanks again!

Sue

In Topic: Please Help, Don't Know Where To Turn

01 April 2005 - 02:17 PM

Sorry you've had such a long few years with all the medical testing! My daughter, who's now 3 1/2 years old, has undergone similar things. They initially dx her with a milk allergy. The elimination diet did nothing. In fact, it made her worse. (Though now we suspect a wheat allergy or gluten sensitivity...taking her milk away caused her to eat more wheat...making her worse.) Anyway, she underwent a colonoscopy which resulted in a diagnosis of inflammatory bowel disease. They think it's ulcerative colitis, but crohn's can't be ruled out at this time. I know that Crohn's disease can be difficult to diagnosis. It often presents itself as gi symptoms as well as poor growth. Scopes may not be able to reach the terminal ileum, which is often where you'll find Crohn's disease. I don't mean to scare you, but it's just something to keep in mind with all the tests. If you've kept your son's diet gluten free, and he's experiencing symptoms with a vengeance...you might need to look elsewhere for answers. I'd ask the doc for a stool occult test as well as blood work (sed rate/crp, cbc, albumin, hemoglobin). I'd also ask they run the celiac panel again if you're son is eating gluten presently.

I hope you get some answers soon! Good luck!

Sue

In Topic: How Young Can Cd Be Tested

03 December 2004 - 11:14 AM

I don't really have any answers for you, but I wanted to add that allergy testing is not always accurate, especially for such a young child. Our allergist said prick/blood tests can help guide you, but elimination diet is the ONLY true test for food allergies. Food allergies can be associated with IgA or IgG response, not IgE response. Standard allergy testing is based on IgE response only. So, I wouldn't rule out allergies at this point. Obviously, which I'm sure you're doing, I'd steer clear of those foods and continue adding others slowly. Stay away from highly allergenic foods such as nuts, corn, soy, berries, cow's milk and eggs. It shouldn't be that hard right now since he's so young. Stick with the good ole baby veggies, fruits and meats! Good luck!

Sue

In Topic: Bracing For The Endoscopy

02 December 2004 - 10:08 AM

Hi! My daughter had a colonoscopy when she was 26 months old. She was extremely anxious about being in the hospital with all the medical staff. They gave her some versed orally, which completely calmed her. (Actually, they gave it to me to give to her so she wouldn't be afraid.) She just watched as they inserted the iv. NO crying. NO anxiety. My husband and I stayed with her while she was put under anesthesia. That was definitely the hardest part. Then we had to leave. The procedure was very quick, though she didn't have an upper gi done at the same time. She had a rough time coming out of the anesthesia, crying for about an hour straight. But, after that, she was back to her old self. I'm sure it's a lot harder on the parents than the child, especially if they can give her something to calm her a bit. The versed worked great!

Good luck. It will be over before you know it!

Sue