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stomica

Member Since 19 May 2004
Offline Last Active Jun 30 2005 06:19 AM
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Topics I've Started

Negative Ttg And Ema...is That Conclusive Enough?

13 May 2005 - 06:57 PM

My 3 1/2 year old daughter has had poop issues (sorry for the bluntness!) since she was about 18 months old. She's been diagnosed with colitis through a colonoscopy. She's taking medication for colitis, which is a non-specific topical anti-inflammatory for the colon. She was tested for celiac but only the IgG's and IgA's were elevated. The other two more sensitive tests were negative. The ped GI retested her again (while she was on gluten) but he only did the ttg and ema tests, both of which were negative. He's a great doc. He says without doubt she does NOT have celiac. He does feel she has a wheat allergy in addition to inflammatory bowel disease (colitis). The allergist, however, feels she could very well have a gluten intolerance. I did put her on a dairy free/gluten free diet for a few months. It was hard to say if it worked or not...she was doing well (digestively speaking) at the time, so it wasn't a huge difference. I do think she slept better. (She has night terrors every stinkin' night...I don't think she's ever slept through the night!) Anyway, my question is how conclusive are the ttg and ema tests? Any thoughts would be appreciated!

Sue

Night Sweats, Night Terrors...when Did They Stop?

22 January 2005 - 07:16 PM

My daughter is 3 years old. She's always been a poor sleeper, rarely sleeping through the night. However, she's had night sweats frequently as well as night terrors almost nightly. She's a very restless sleeper! She was tested twice via bloodwork for celiac disease. Initially her IgG's were elevated (52), but the others were all negative. The ped GI feels confident that she does NOT have celiac. He's diagnosed her with inflammatory bowel disease.

We took her off gluten and dairy in November. She started sleeping MUCH better. NO night sweats. Night terrors still occasional, but not as frequent. She recently had back to back illnesses, stomach flu followed by a nasty upper respiratory infection. She wasn't eating much and complained frequently that her tummy hurt (meanwhile she's gluten-free). Anyway, long story short, we gave a small amount of gluten (bread, few cookies) as well as some dairy (4 oz yogurt, soy cheese) based on the pediatrician's recommendation. She felt it was more important to get her to gain some weight at this point. She's great, so I'm not knocking her. I think she feels confident in Natalie's IBD diagnosis and feels celiac has been ruled out.

Okay, finally getting to my question. We decided to take gluten out again. It's only been a few days. Just wondering if any of your children have had the same sleep issues...and how long it took to improve. Any thoughts would be greatly appreciated!

Bloodwork Question...

22 October 2004 - 04:33 PM

My 3 year old daughter was tested for celiac about 6 months ago...the antigliadin IgA's and IgG's were both elevated but the reticulin and endomysial antibodies were negative. Because the antigliadin antibodies were elevated, the ped GI wanted to retest her, which we just did last week. Course they performed different tests this time, so we're unable to compare, but they did the endomysial and the ttg tests which were negative. Her total IgA's (not antigliadin specific) were actually elevated, so she's not IgA deficient. Just wondering if I should interpret this bloodwork as an absolute negative. The allergist did suggest trying a gluten-free diet due to the possibility of a wheat intolerance instead of celiac. Just wondering what your thoughts are! Thanks in advance!

Sue

Sleep Issues Related To Celiac?

26 August 2004 - 05:09 PM

My 2 1/2 year old daughter hasn't formally been diagnosed with celiac, though her anti-gliadin IgA's and IgG's were both elevated. (The other two were negative.) She's going to be retested via blood work again in the next few weeks. I was just wondering if any of you have found a connection between sleep and gluten. She's a horrible sleeper! She goes to sleep on her own, which she's been doing since she was 6 months old. However, she is a very fitful sleeper and wakes numerous times in the night. She also seems to have frequent nightmares with an occasional night terror. She's been like this since she was 1 1/2 years old. She seems to be frightened most of the time she wakes. I haven't done the elimination diet yet because of her second test coming up. I was just wondering if any of you have had similar experiences. Thanks for any input!

Sue

Is Bleeding A Symptoms?

27 June 2004 - 03:12 PM

I was just wondering if bleeding is a common symptom of celiac disease? Sounds as if plain ole diarrhea or constipation are the main symptoms. My daughter has had trace amounts of blood on occasion in her stools on/off for the past year now. She's 2 1/2 years old. We had her tested and the IgA's and the IgG's were positive, but the other two were negative. The doc wants to retest her soon to see if they've changed. Anyway, I'm most concerned about the bleeding of course. I haven't tried the gluten free diet because we're going to get the blood test in the next week or so. After that, I plan on starting gluten free, and maybe even casein free as well. Has anyone had similar experiences?

Sue