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JoyfulM

Member Since 19 Nov 2007
Offline Last Active Dec 16 2007 01:37 PM
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Topics I've Started

Diagnosis

27 November 2007 - 08:57 AM

I'm going to see my Dermatologist tomorrow for the first time since I was diagnosed, and I have a bit of a bone to pick with her.

When I was diagnosed, I was told over the phone by the office secretary. I was told that I have DH, I need to go on a gluten free diet, to start taking Dapsone immediately, and to come in in two weeks for blood work. No explanation of what gluten is, no help with the diet, etc. Luckily I have a friend who is gluten-free who has been a big help. I called the doctor's office yesterday to see when I needed to come in Wednesday (all I was told was "sometime in the afternoon") so I could speak with her, and they acted surprised that I want to talk to the doctor. Did they just expect me to come in for blood work and leave?

Is this the normal experience during diagnosis? How should I express my concerns to her when I see her tomorrow?

Dh And Reactions To Eating Gluten

25 November 2007 - 09:13 PM

Ok, I've got a newbie question.

I was just diagnosed two weeks ago with DH and was put on Dapsone. My rash never itched to begin with and is my only noticeable symptom. How can I tell if I have eaten gluten? As much as I'd like to think that I managed to not eat gluten on Thanksgiving, with 80+ people around and 5+ tables of food with serving spoons everywhere I doubt it. Any advice would be wonderful! I haven't spoken with my doctor yet, but I go in to see her Wednesday. What questions should I ask about this?