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Member Since 17 Dec 2007
Offline Last Active Jan 12 2010 05:35 PM

Topics I've Started

Metabolic Syndrome?

07 January 2010 - 08:20 PM

I went to my doctor today and upon reviewing his diagnosis paperwork, I became confused. I know why the diagnosis was added, but the symptoms are the exact opposite of mine. The symptoms of Metabolic Syndrome are high blood pressure (mine is chronicly low), cholesterol problems (mine is PERFECT), obesity (I am only 3-5 pounds above normal weight), and insulin resistence (never been checked for it).

The reason I was diagnosed was because: back in April and May, I lost my car for a full 60 days. I was dead broke and so I couldn't afford anything to eat while walking everywhere. I pretty much lived off one meal a day and water and walked 10 miles or more per day. But I gained 21 pounds in the first 30 days, all in the stomach area. I was fatigued all of the time but kept pushing myself. The only way I got my weight down was by adding metformin ER to my meal each day. It also got my energy back. My doctor told me that I wasn't digesting sugars. basically they would sit in my stomach and turn to fat without being used as energy first. That's when the "Metabolic syndrome" diagnosis was added.

But I dont understand. How can I have this syndrome when my symptoms are the exact opposite?


30 October 2009 - 07:07 AM

I am by no means a certified doctor, but I am also not an idiot. I have an eye appointment on Monday. Both my dentist and my regular doctor have requested that I get tested for Sjorgren's, which of course, my eye doctor could easily run the eye tests for at this appointment.

A little background info: I am 19 years old and have had over 80 dental fillings. At the moment, I am in the process of having ALL of my teeth replaced with crowns because if I don't do it NOW, I'll need dentures by time I'm 23. My teeth are horribly rotten, from a permanent dry mouth and from lack of nutrients prior to celiac diagnosis. I have dry itchy eyes all the time and wake up with the most disgusting thick filmy goop covering my eyes each morning. I have also suffered from vaginal dryness for at least 2 years. My aunt was also diagnosed with Sjogren's last year. Considering these symptoms, both doctors think Sjogren's is the likely culprit and want the stupid tests done.

Like any good patient, I called my eye doctor ahead of time and let her know that these tests were being requested. I also asked of course whether or not I would be able to drive myself home after these tests and all those safety questions. I got the brush off from my eye doctor though. She basically told me that while its fine that the other doctors want her to run the tests, she doesn't know if she will bother because the disease is so rare. When I offered to get her in touch with the two other doctors, the response was "Oh I'm too busy for all of that." I hope she reserves time on monday to argue with me...cuz if she decides not to bother running the tests, I'll get the doctors on the phone and argue with the eye doctor all day until she backs down and does the tests.

I don't know if I would be as cheesed off if it was just a whim of mine to ask for the tests, but I'm livid that she brushed off the tests after 2 other medical professionals ordered me to get them. I have been using the same eye doctor since I was 2 years old, and that fact is probably the only reason I'm not hunting for a new eye doctor. My mom is livid at the way this is being handled too, and she has a calmer disposition than I do.

This is not the first doctor that has acted this way towards me...I had a pediatrician tell me after I was diagnosed celiac that the disease DIDN'T exist, just to cite another example. Don't get me wrong, I like my regular doctor, the dentist I could do without, but she does her work well. But after my numerous "ignorant doctor" experiences, I'm starting to wonder...are these people really working for our best interest at all?! Some of them have even made me wonder if their degrees are fake. I'm getting so frustrated with doctors....


25 August 2009 - 04:52 PM

Last July I lost the only person that mattered to me. He died of cancer. He was my best friend, true love, and soul mate(and yes, he was a horse, not a human). Since then, it's been really hard to even function. I mean, I think the grief has gone kinda beyond the bounds of normal sane grieving...and I wonder if it has taken a toll on my health. I really don't know what to do. I haven't talked to a therapist because prior to his death numerous doctors told me that my love for him was unhealthy and bordering on insanity...but when he's the only friend you have, the only caring anything u have, and he's a lovable perfect ANGEL, what do you expect?

I don't want to hear how unhealthy the emotions are. I know that and I can't fix that. I live everyday just trying to force myself out of bed and I have no one to talk to about it. My parents would like me to go to a psych ward...that was always their way of getting rid of me when they were too busy to worry about being supportive. I truly have no friends...the kids in my area are manipulative and cruel, and I have NVLD (autism spectrum disorder), which makes me a prime target for their taunts. But I don't know what to do anymore. I don't want to lay down and let the grief cause me to give up and die. I mean, god knows I'm lonely enough and sometimes I do wish I had died too, but I lived and I gotta try to make a life work without him. I really do think the grief has become not only an emotional issue but has made me physically sick as well.

Any ideas on what I can do to recover? I know I'll always miss him and it will always feel like half of my soul died, but I've gotta find a way to at least function normally....any ideas would be great....

At My Wit's End

14 August 2009 - 09:10 PM

This has happened 3 times in the last few months. the first 2 times happened within a week, then it stopped for about 6 weeks and tonight it happened again. I'm trying to find a cause for it but even my doctor seems stumped.

I get a burning in my throat like heartburn and within seconds, a sudden onset of a bright red rash that starts on the face and BURNS, and travels from face to chest to arms and legs and back. It does not cover my stomach. My face is not itchy but physically burns under the skin and the skins surface. The rest of the rash area itches like crazy and my whole body is covered within 5 minutes or less. Along with the rash comes a horrible cramping in my abdomen, a need to poop, and a severe need to vomit. The symptoms worsen quickly. The rash burning feeling spreads down my body and finally, I feel I have to take a cold shower to stop the burning. Since I am unsure whether an allergy is playing a role, I have taken benedryl all 3 times prior to the shower and washed my hair and body with tea tree oil wash in the shower. I am unsure what the result would be if I just washed with cool water and didn't use benedryl. normally the rash starts going away as soon as I enter the shower but the cramping stays for a few hours, often leaving me doubled in pain for a while.

now here's the odd part.

the first time it happened, I was in the bathroom preparing for a nice romantic bath with the fiance. i had just woken up and taken my morning meds with water (this includes my daily allergy med, zyrtec). I hadn't eaten for a good 12 hours at least and there was no stress at all.

the second time was 3 days later. i had woken up late, rushed around, and barely made it to work. at work, i encountered a hatching egg sack of spiders in my area. the stress was high. I was drinking tea and waiting for an order of potato skins to munch on. I honestly thought I was dying. the "heartburn" was so bad I used my inhalor 4 times in an hour and my mom had to drive me to her house from work. both the first and second times, i was living with my fiance.

now tonight, i am living with the parents again due to finances and actually, its been a nice sort of break from the fiance. i had been up for a while but had eaten little (water, some kool aid, and a few pieces of gluten-free ham with cheese melted on it). I was sitting on my bed beginning to close down my computer for bed when the burning started. I thought, oh its just some heartburn cuz I ate too little. my appetite has been down lately. then it hit suddenly that my face was on fire (not literally) and I needed the bathroom instantly. as i sat there, my upper lip kept burning horribly (most sensitive part of my face) and i couldnt breathe well from the heartburn. thats when i noticed my chest and extremeities were covered in bright red itchy blotches. a quick look in the mirror confirmed it. another "attack". i hadn't taken my zyrtec in a few days (been busy and forgot) so i took it right away, woke mom up so she knew, and popped in the shower, again lathering all over with tea tree oil. the stress level for all of today: none, in fact, i was happy because i had wonderful news today.

so stress doesn;'t fit. location isn't the same either. neither is food (all that matches food wise is that its all gluten-free). nothing makes much sense here and i'm worried. what might be causing these attacks?


30 January 2009 - 07:36 AM

Okay so my friend dragged me to a meeting last night for a product called Mangosteen. In case you haven't heard of this product, Mangosteen is a fruit that contains tons of the best antioxidants in the world called xanthones, and the company markets it via a distribution pyramid scheme. I was dragged along for two reasons. One, my friend has money saved up but is gullible and wanted my help protecting her from scams. And two, the product claims miraculous health benefits and she knows how sick I have been.
So here are there claims (almost word for word from last night): Diabetics went from near-amputations to complete limb recovery. Almost dead lupus patients recovered almost completely. Skin problems go away. Hypertension goes away. A man eaten up with cancer shrunk and completely eliminated all of his tumors. People taking hordes of medications decreased or eliminated the need for medications. All after using the product for 3 months or less. With an open, but critical mind, I swallowed the one ounce sample they provided for me. They recommend taking 1 ounce, 3 times a day.
But you see, they made a huge mistake with me. First off, a fruit juice company is legally forbidden from advertising its product as a cure for anything. So the above paragraph was full of 2 hours of them speaking felonies. I am not joking, I have seen other companies make the same claims and are now in federal court over it. Distributors are limited to sharing their own personal stories and telling what the ingredients of the product are known for doing. And we all know how wonderful antioxidants are. But these people not only claimed ALL of the above, they also had the AUDACITY to claim that if I took the product for 3 months, it would cure my celiac disease. I sent my friend a text message reading SCAM SCAM SCAM, these people are LYING and made the excuse of work to leave early. Frauds put me in a bad mood.
But let me tell you a little something. My friend and I both had our ounce shot at about 4 PM. I worked from 7 PM to Midnight and I did not consume ANY caffeine or energy product that evening. And as some of you might now, I have put posts up here LAMENTING about the extreme fatigue Ive had for months, among other symptoms. Both my friend and I were up ALL NIGHT. We could not sleep. We both took our regular sleeping medications and still did not even begin to feel tired. We were not jittery, just wide awake. At 4 AM, we were still going strong. Since we both had school today, we forced ourselves to sleep at 4:30AM. 90 minutes later when my first alarm (it takes 8 alarms and some parental cattle prodding to wake me up in the mornings) went off, I was up and wide awake as if I had slept a week. But my stomach was in AGONY. I promptly went to the bathroom and lost 5 pounds with (D). I thought my intestines were going to explode. My friend experienced similar problems when she woke up. SHE does NOT have any digestive disorders.
So, beware of these wild claims. I mean, with my energy the way its been, I might invest in the stuff for myself just to be ALIVE throughout the day, but it made my bathroom issues a million times worse.
And here is a question in an immune disease like celiac, with a poor immune system, one would think the immune response caused by a glutening or cc would not be as bad as the immune response from a healthy celiac system. So one would think that boosting said craapy immune system would also boost the immune response to gluten, therefore meaning any glutening incidents would be more painful. Does that make sense? Or am I totally wrong?

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