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carecare

Member Since 18 Dec 2007
Offline Last Active Nov 28 2012 02:51 PM
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#747455 ? I Got Answered Wasn't What I Expected....

Posted by carecare on 14 November 2011 - 10:07 AM

So either the University of Chicago Celiac people are flakes or they just misinterpreted my question. I asked about my son's deamidated IGg being strong positive and if they would think that would indicate more of an sensitivity/intolerance and not celiac if his biopsy was negative (which hasn't been done yet). I know I've read research saying it's very specific and highly indicative of celiac disease but curiosity got the better of me and I posted the question. The last response to me stated: "Elevated IgG (for tTG, I presume) are notoriously unspecific and should be simply disregarded."
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#737235 What To Do?

Posted by carecare on 08 October 2011 - 06:33 PM

I also want to say...since my husband is anti-doctor he wouldn't go in when he was having gallbladder attacks. It was right before going gluten free...and a couple months into the gluten free diet as well. He spent his attacks in pain on the floor whereever they occured (at home luckily)...almost passed out a couple times from them. We did a lot of reading and he eliminated the foods that tend to cause gallbladder attacks in some people. Then slowly reintroduced them back into his diet...except gluten. After about 5 months he no longer had attacks and was able to add everything back successfully besides the gluten. I don't think people really think you can avoid gall bladder surgery...but my husband is one that did. Truthfully, I was really upset with him for not going to the doctor. I didn't think he could heal from those attacks. Amazing what diet can do for your health!
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#728357 Halloween Help

Posted by carecare on 07 September 2011 - 10:31 AM

Does anyone have a good list of gluten free candies handy? I hadn't even thought about Halloween...something I'll have to be doing from now on.

CC
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#727420 2 1/2 Wks Gluten Free And 11 Yr Son Is Muscle Pain Free!

Posted by carecare on 02 September 2011 - 05:00 PM

My 11 yr old son tested positive on his blood test 3 wks ago. His deamidate IGg was high but his tissue transglutemate was negative. I decided to start a gluten free diet with him immediately and not wait the possible 2-3 months for a biopsy. I couldn't see putting him through pain every day to tell us something we already know. I am soooo happy I did that. 2 days ago he said he was pain free. I believe he's been suffering muscle pains for the past year...at least I know that is when he started telling me his muscles hurt. He thought it was always from too much activity the day before. Now he said he knows the difference between muscle pain from gluten and muscle pain from activity. Now to decide what to do with the appointment I initially made with the pediatric GI doctor in the celiac clinic at the Children's hospital in Milwaukee....which is a 2 hr drive for us. Do I still take him to that appointment at the end of the month or call and cancel? If we go...will the doctor be upset that we went gluten free already?...because a biopsy would be useless at this point...since he's gluten free.

Oh and he's been having some constipation issues this past week...I wondered if he was glutened...but not sure. He never has told me about that issue before but that one day last week he told me about his troubles. My husband said his body went through changes when he first went gluten free...that he alternated between C and D for a couple months but then it all evened out. Dh never complained of constipation before so it's something new.
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#727417 Pity Party/ College Search

Posted by carecare on 02 September 2011 - 04:50 PM

I feel your pain. It was something we asked the colleges my daughter applied to last year. She just started college last week. She has not been diagnosed but knows gluten bothers her. Eating at home she was basically on a gluten light diet because she knew too much made her sick. I had blood work done a couple weeks ago...but should have known it probably wouldn't come back positive...especially eating gluten light. Now she's in college...no diagnosis and realizes it's going to be very difficult to eat gluten free in the dorm. When I talked to the head of the kitchen in June at orientation the first thing she said was "is she officially diagnosed?"...told her the situation and she said well, let us know what we can do for her..but also mentioned a doctors' note. We were a little misled at the orientation...during those meals things were labled and every meal had gluten free main meal options...and even gluten free desserts. Now she's on campus and there aren't main gluten free main dishes. Just a little tiny refridgerator in the cafeteria with gluten free foods. Kind of sucks for her. I told her to just eat the best she could and if she's feeling awful she'll have to talk to someone about her meal options. She knows gluten makes her feel sick...I hate that she has to get that official diagnosis to really have any options as far as what the school will do for her.

Good luck with your search! I hope you find a school that works and works with you!
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#723490 What Do You Think Of This Article Saying Celiacs Can Consume Gluten?

Posted by carecare on 17 August 2011 - 09:01 AM

http://jacksonville....dards-are-sound

Doesn't this just sound wrong? Everything I've read and researched seems to say you can't have any gluten what so ever if you are celiac. The leading dr at University of Chicago Celiac Disease Center says celiacs can have up to 10 mg of gluten a day safely. It doesn't come across as correct for everyone.
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#722626 Walmart Stew Meat...i'm Guessing Is Not Gluten Free

Posted by carecare on 13 August 2011 - 05:31 PM

I never thought I'd have to read the label on meat before. Specifically, meat like stew meat. However, I noticed after purchase that the walmart stew meat had stuff added to it. That really sucked but my husband ate it anyway and a day later was really really sick. I'm guessing it was the stew meat. His guts got really messed up from it. I suppose I will contact walmart and ask for specifics of what is in the solution they inject into their meat. I know one thing...never buying meat from walmart again!!! :angry:
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#376586 Anxiety Relief From Going Gluten Free?

Posted by carecare on 22 December 2007 - 08:55 PM

So my husband has been gluten free for a week and it's amazing how well he feels...even with a cough he's been struggling with for 2 wks. Can't imagine what he'll feel like when the cold is gone. Anyway, he has always had a bit of anxiety out in public...just never felt good going into crowded places...or being around a ton of people. We went shopping yesterday for a couple hours...Christmas madness...and he came home saying he didn't have any crowd anxiety. I have read gluten can cause some people to experience anxiety. Do you think my husband's anxiety was actually the gluten in his system? Wow...who would have thought if it's true. Amazing what a week of no gluten can do!!!!

Now to try and get my girls to be gluten free and clear up the problems they have...if it's gluten related. I'd be thrilled if that was the case!

carecare

ps...what a great forum this is...being able to throw questions out there and get responses so quickly :)
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