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Member Since 26 Dec 2007
Offline Last Active Today, 06:00 AM

Posts I've Made

In Topic: I Think My Doctor Is Wrong?

17 October 2014 - 06:29 PM

Hi Janedoe,


Maybe it makes sense to try some food eliminations?  Some of the foods that seem to cause problems for some of us are nightshades, soy, dairy, eggs, and corn.  There are probably others I am not thinking of right now.  Anyhow, some of the other food intolerances can cause fainting symptoms for some people.  An elimination diet can help you determine if it is a food related issue.  A mistake people sometimes make is thinking elimination diets are about eating less food.  They are really about eating fewer foods, but as much of those foods as you want.

In Topic: How Long Does The Vomiting Last?

17 October 2014 - 06:15 PM

Thank you so much.  What he has is "dry heaves"...what is happening is after he eats he feels bad and has pain then he goes to the bathroom and has dry heaves.  Sometimes something comes up...sometimes it is just bile or liquid.  He is going to school and I send him with 64 oz of fluids...usually he drinks all of that.  I am very careful about the dehydration issue and thank Stephanie for her comment about being alert to this.  Here is the history:


The first week of August he had a terrible stomach flu (or so we thought)...over the course of the month, he lost 20 pounds...I took him to the pediatrician during this time and she recommended prilosec, gasX, crackers and easy to digest food.  I took him to another physician who referred us to a gastroenterologist who did the blood test in Sept and had the endoscopy on Sept 25th.  Since Sept 25 I've been feeding him "gluten-free" food.  I have only tried milk once since then.  As far as I can tell, there is no cross-contamination occurring.


How long does the pain last?  




So it seems he has been gluten-free since 25-Sep-14.  That's less than a month right?  It's not unusual IMHO for symptoms to continue for months.  The immune system has to wind down from being on constant alert mode.  When I was new to the gluten-free diet I used to vomit sometimes too.  It could be his stomach is gassy and the pressure is making him vomit.  His stomach could get much gassier right after eating and that could cause pain also.  If that is the cause it would help to make sure he eats foods that are not so gas-making.  Sugars and carbs are great food for bacteria that make gas.  Dairy is also a problem for new celiacs sometimes.


Try to get him eating more whole foods like meats and vegetables.  Avoiding cookies, breads (bakery items) and other carby foods may help.  Peppermint tea is good for helping to get gas out of the stomach.

In Topic: Peanut M&ms

12 October 2014 - 06:15 AM

Yep CAP6, lots of questionable stuff in the candy bars.  It's probably safer to go to some kind of health food store or such and look for more natural candies with fewer chemicals etc.  http://www.nuts.com/ has some simpler options I think.

In Topic: Family's Attempt At gluten-free Thanksgiving

12 October 2014 - 06:04 AM

I've heard of a pepsi can in the turkey.  That should work, or orange soda.   :o


Great that she is trying to make it work for you though! :)


Oh-oh, why not gluten-free beer in the turkey?

In Topic: New To Celiac And Need Help

12 October 2014 - 05:59 AM

Hi Godschild,


Welcome to the forum! :)  Many of us have been in a similar situation.  When the gut is damaged it from antibodies things can go kinda haywire.  One thing that happens is the villi are destroyed, which impairs the ability to absorb nutrients as you described.  Another thing that happens is the gut environment that lots of bacteria call home is disrupted.  Those bacteria can help us digest food and are important to our health.  So it's good to take some probiotics at the beginning of the gluten-free diet.


It's also helpful to avoid sugar and starchy foods.  The gut bacteria (flora) being out of whack can cause lots of gas to be produced.  Sugar and starchy carbs feed those gas making bacteria and they to multiply.  So it's better to stick with simple foods with few ingredients.  Things like home cooked meats and veggies are good for you and simple to make.  the fewer the ingredients in a food the less chance there is fo getting accidental gluten CC (cross-contamination).


Gluten CC can be hard to detect as the amounts needed to cause an immune reaction are very small.  So we have to be careful of things like eating toast in an old toaster that might have crumbs in it etc.  Or sharing peanut butter jars etc with other people who aren't



Constipation is often treated with magnesia.  Here in the USA there is a product called milk of magnesia that is sold for treating it.


Your doctor should test you for vitamin and mineral deficiencies also.  You may need to take extra vitamins for a while or even get vitamin shots.


I suggest you avoid eating out at restraunts or other peoples houses for a few months.  It takes a while to get the hang of the gluten-free diet.  Many non-gluten-free people don't understand the need to avoid even trace amounts of gluten to allow healing to continue.  Making your own food at home can avoid a lot of potential problems and set backs.


You may need to stop the steroids slowly rather than all at once.  Your doctor can tell you how to taper off them.


I suggest you take digestive enzymes with your meals also.  They can help improve digestion which is important for newly gluten-free peeps.


Dairy was already mentioned as a possible problem.  You might want to avoid it for a while (month or so) to see if it helps.