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Member Since 26 Dec 2007
Offline Last Active Yesterday, 04:39 PM

Posts I've Made

In Topic: Weird Problem With Acetaminophen

20 July 2014 - 07:41 AM

Seems the FDA is working on label changes for acetamenophen related to skin reactions.




You could also check ask a patient http://www.askapatient.com/

In Topic: Help! Positive Blood Test For Celiac, But Nothing Abnormal On Biopsy. Adv...

20 July 2014 - 07:34 AM

HI Valerie,


I suggest you consider yourself celiac based on the positive blood antibodie results.  The endoscopy results are not always positive for various reasons.  For one thing they can only reach the first 5 feet or so of the small intestine.  But the small intestine is around 20 to 22 feet long.  So they aren't even testing the majority of it for damage.  You could have villi damage at 6 feet and the doctor would never see it.


Antibodies aren't present for no reason.  The immune system learns to make them in response to an irritant.  And the immune system learns real good.  It doesn't forget to make antibodies just because your doctor says something.  It'll keep making antibodies and fighting the gluten for the rest of your life.  Whenever you consume gluten the antibodies will kick into action and their lifetime is weeks to months.  So small amounts of gluten can cause weeks of symptoms.


Otherwise it's all a lot of fun tho.  :)  Eating gluten-free gets easier after you've got some experience at it.  Some people find that staying away from processed foods for the most part and eating whole foods instead is better at the beginning.  The fewer processed foods we eat the less chance of gluten sneaking into the diet there is.

In Topic: Peanut M&ms

19 July 2014 - 04:51 AM

I don't eat the peanut or regular M+M because they have dairy in them and I react to that.  Just saying because it's not always gluten that makes us sick.

In Topic: When To Give Up On Symptoms Improving On The gluten-free Diet?

19 July 2014 - 04:47 AM

Hi Nicole,


I don't think you should accept things as being done at 2 years.  I feel much better now than I did for the first 6 years of gluten-free.  I had to identify and eliminate various other foods as I went along.  Some didn't seem to show up right away but popped up after a few years gluten-free.  Either that or I was just really dumb for the first few years.  (Not saying that isn't the more likely scenario.)  Those other food intolerances beyond gluten can really play havoc on your well-being.


My most recent change I made that really helped my energy levels was to add more selenium to my my diet.  I feel better now than I have for the past 6 years, so I know things can improve.  And for me it was change in diet (beyond gluten) and thyroid supplements and selenium that made the big differences.  Although my stomach ulcer wouldn't go away no matter what I tried.  Until I prayed about it in Jesus name and it went away then.  Scared that ulcer right off.


So don't give up looking for improvements.  If your body is reacting to some food (other than gluten) and you are consuming it regularly it can be real bad for your health.  But you can change that by eating differently.

In Topic: 15 Years They've Had To Pick Up On This!

17 July 2014 - 02:44 PM

Hi Birdsong,


Sorry you've had such a long  process of finding your way to a possible answer.  Unfortunately it's not real unusual for it to take years for a person to be diagnosed with celiac disease.  But regardless of the length of time it takes, there is still only one treatment for the condition.  And that's staying 100% gluten-free every day for the rest of your life.  There is one test you can do without consuming gluten.  A gene test can tell you if you have the known genes associated with celiac disease.  Having the genes doesn't automatically mean you will get celiac disease though.  It just means it is a possibility for it to develop.


 There may be improved testing available in the future, but that could be years away.  Personally I wouldn't do a gluten challenge after stopping eating gluten for a while.  Having a doctors diagnosis doesn't change the treatment at all, so it seems pointless to me in many cases.  But each person has to decide for themselves what benefit they will get from a diagnosis vs what risks they are willing to take for testing.