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Member Since 26 Dec 2007
Offline Last Active Jul 29 2015 04:05 AM

#663099 Looking For Advice

Posted by on 25 December 2010 - 09:24 PM

Hi, welcome to the gluten-free club!

You could post your test results here and see if some kind could can interpret them for you.

There is an endoscopy test where they take several biopsy samples to check them for villi blunting.

Gluten sensitive doesn't mean you are ok with gluten. I am just guessing but it probably means the doctors saw elevated antibody numbers on your celiac tests. They may have also found low levels of vitamins like Vit B-12, Vit D or low iron. These low Vitmain levels can be caused by malabsorption due to villi damage.

The testing is not 100% accurate. So even a endoscopy can have a false negative. The diet is a big learning experience when starting but like anything else, you can learn it after a while. You just need to keep going and do some research and learning. This board is a great place to do that.

Merry Christmas!
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#662296 gluten-free, But Now Also Dairy, Soy, Egg, Caffeine Free?!

Posted by on 21 December 2010 - 08:16 PM

I used to have a worse reaction to dairy than I do now. But I still react to it so I don't eat it. My other intolerances haven't changed that I know of. Not really sure at this point if they ever will. I have read posts from other people that their intolerances reduced over time though, or even went away. So it just shows that we are all individuals and our results are individual also. You could be like me or you could be like them or you could be like you. Being like you is what you need to learn about. So, perhaps try one of them after 6 months to a year and see if it has changed? Since it is a time related change it would be good to write down your symptoms now and then when you try the food again so you can compare notes. It's sort of like spying on yourself, to find out what you are really like, food intolerance wise. :)
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#661589 Just Had Biopsy- Covered In Hd And Scared

Posted by on 19 December 2010 - 04:33 AM

Yep, start with learning to cook if you are not a cook already. I used to make a big pot of rice and veggies every weekend, with various veggies and meats. Then freeze most of it in smaller portions. Make another version/flavor each weekend and you can have a nice variety after a while.

I suggest you consider avoiding all sauces and salad dressings to start also. Unless you want to spend hours researching them online. Vitamins and meds can contain gluten also. You need to avoid wheat, rye and barley, and some of us react to oats also. There are lists of bad indgredients on the main site. Spice blends might be a problem so it is safer to stick with single spices rather than mixes.

A few things that I do ok with are: GFCFSFNF list (gluten free, casein free, soy free, nightshade free))

Trader Joe's brown rice tortillas.
Bakery on Main Granola
Food Should Taste Good gluten-free chips
Planters peanuts, but check ingredients
Organic or natural peanut butters.
Hellman's canola oil Cholesterol free mayo.

You might like to try quinoa or teff or amaranth as grain/rice subs.

Basically start simple and build up a list of foods you can eat.

I don't have DH but I think the diet advice is ok anyway.

Welcome to the group and Happy Holidays!

:D :D :D
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#660917 Is There A "what Did You Eat Today" Thread?

Posted by on 15 December 2010 - 08:53 PM

B Water

L pistachios

D (Just ate) A couple of wraps made with Trader Joes brown rice tortillas, ham, (baked yesterday), lettuce, mayo, salt, and pepper. Some white wine to wash it down. Danged if I ain't still washing it down too.
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#660902 Grrrrrrrr . . .

Posted by on 15 December 2010 - 07:56 PM

I am sorry that you or others are allergic to soy.
If you can get BC to take the soy flour out, that's great. I don't care if doesn't have soy flour, except, of course, if taking soy flour out leads to the eventual failure of the product, making it unavailable to everybody, including those with no soy problems.


Ha ha! Richard is all like keep your hands off my BC! :D :D :D LOL!

I agree Richard. Better to have it available than not. I remember when I tried the yellow cake mix a few times before the change, it was a little dry and scratchy to eat. It could be the soy flour is to help with that issue. Soy flour is used as a dough conditioner often. It has some kind of beneficial affect for doughs, altho I don't know what exactly that affect is.

My goodness. The tone in some of the responses on this thread are unpleasant. There's no need for rudeness or snide comments here! Everyone is trying to help everyone else out, so to assume people are purposely trying to offend you is silly. This is unfortunate for those celiacs who also can't have soy without a doubt but sadly there are a lot of things that are considered gluten free that many people cannot have. I for one, cannot tolerate Udi's and still have no idea why but I'm not ripping apart others who can eat that product or bashing their opinions about the product.

Ease up people....it's the holidays!

Happy Holidaze! :D :D :D And I agree with you.

Thanks for the heads up. I can't tolerate soy either.

To me this is the key point of this thread and something I ponder too.

These items have also been crossed off my list because ingredients have change to add one of the major 8 allergens (soy & milk):

  • Burt's Bees added soy to their products when they were bought by Clorox
  • Cool Whip recently added milk and cream to their recipe, previously it just had cassein but not lactose

I do think it's odd when a company makes a product and markets it to people with food intolerance issues and then changes the recipe to add a top 8 food allergen. Just seems like a nonsensical thing to do. Kinda like the king going out in his shiny new invisible clothes. They just don't seem to get it.
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#660332 Poll: gluten-free Diet - Easy Or Hard

Posted by on 13 December 2010 - 06:36 PM

Voted The gluten-free diet is relatively easy and I have been gluten free for more than one year but less than three years. (6 votes [19.35%] - View)

The gluten-free part is pretty easy for me. I work at home most of the time but go to the office or work meetings sometimes and I can usually find some fruit to eat. Today I spent the day at our local office and had a banana and a small bag of Planters peanuts at the cafe for lunch. If I was at the office every day I'd be a packing my lunch for sure though, or just not eating during the day. Often when I go out for meetings I take a Lara bar with me for snacking in case I feel hungry. Finding all my other food intolerances was the thing that took me a while and made it hard while that was on-going. But I am right on the cuspy edge of 3 years now and it is what it is and that's ok. 'Snot a bad deal. :)
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#660327 Celiac Switching From gluten-free Back To Gluten..help!

Posted by on 13 December 2010 - 06:03 PM

Well, since we are all guessing what the unmentionable situation is I vote for a space shuttle trip to Mars. Joint US/Russian mission with forced sharing of meals for cultural enhancement reasons. Months of eating gluten filled space goodies in a weightless environment. Sounds fun, not. :(

But back to the question. Your body may tell you the answer before then if you start eating gluten again right now. Why wait and be surprised by the answer? You can test it yourself right now and have a good idea how things are going to go before it happens. If that will help you prepare somehow I don't know. The thing is, we all have our individual bodies and your bodies reaction can be totally different from mine or anyone elses. At least you will have an answer that directly relates to your own situation, not someone elses.
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#659065 Daiya-- Dairy,soy,gluten Free Cheese

Posted by on 07 December 2010 - 09:39 PM

I actually made an omelet with Daiya cheese for the first time in a couple years just last week. Not bad at all. It does have pea protein in it just in case anyone has a problem with peas. :)
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#655876 Feeling Like An Idiot

Posted by on 23 November 2010 - 09:17 PM

Ahh, Shrommie, can we take over New Zealand? All those beautiful mountains and beaches to explore! Or I suppose we could settle for Maui, if New Zealand is taken, darn it.

Don't feel bad PBScooby. I bought some tuna in water tins because it was on sale a bit ago and didn't notice until after I ate a can that it had soy in it. Then I felt it. Dratted soy! Soy should be illegal in civilized countries. Along with taxes and cold weather. There, I said it. :angry: :huh: :D
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#655806 Feeling Like An Idiot

Posted by on 23 November 2010 - 05:01 PM

Or a tropical island with lots of palm trees and sandy beaches. Glutenfreeland is born!

I think Treet is similar to Spam right? Spam is gluten free.
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#655805 Charitable Contributions For Celiac Orgs?

Posted by on 23 November 2010 - 04:58 PM

Well, it's that time of year again, it gets cold outside and people start sitting around fires inside and roasting marshmallows. Meanwhile my employer is offering to match charitable contributions. So, thinking about that, what is a good group to do a contribution to? I have a few pennies saved up from spare change and they really weigh down my pockets and eventually wear holes in my pockets. So they gotta go. Is there a group that take contributions and distributes them to celiac organizations? Something like a combined charity fund for multiple celiac related organizations? I suppose I could send one or two pennies each to several groups but then I will have spent more on stamps than the contribution is. Of course I could just buy something from the gluten free mall for a change too. This forum being one of the premeire support mechanisms for celiacs around the world it seems. I doubt my employer would match that though. :)

Any ideas?
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#655185 Need Some Advice

Posted by on 21 November 2010 - 10:32 AM

My first question is: Have you all experienced diarrhea when eating gluten-free bread or bread-products?

Sure, with some of them. I react to soy and dairy and nightshades, so those ones are a problem for me. So I don't eat them. Some people have problems with tapioca flour too, or eggs or ____ that you can fill in the blank.

I'm wondering if my system is just too weak to handle the gums (xanthan, guar etc) and do they cause GI problems for a lot of people? (My husband even reacted to my home made gluten-free bread?)

Yes, some people here report having trouble with xanthan gum. I don't think that is a lot of the people, but if it is you that's what matters.

And secondly, do symptoms get WORSE as your body gets better?

Many people seem to get more sensitive and have stronger reactions to small amounts of gluten not long after going gluten-free.

My guess is that if my intestines are damaged at this point, it will take time to heal. How long has it taken you all to really see symptom-free improvement?

It varies for everyone. I had some improvements within a week. But developed additional intolerances that took me a good 3 years to get over. But everyone has a different row to hoe as they say.

Do you give up grains to heal?

I went on the paleo diet for a while, but ended up going back to a limited grains diet. It didn't seem to make any big difference for me to be completely grain free or not.

I'm interested in what you've had to do to successfully recover?

I gave up the things in my signature.

I also started taking sub-lingual B-12, vitamin D, some calcium here and there.

Sounds to me like you are on the right track, and most likely are celiac or maybe NCGI (non-celaic gluten intolerant). Either way, a doctors diagnosis doesn't do a whole lor for us. The treatment is the same regardless, go on the gluten-free diet and get healthier!

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#655040 Diagnosed Yesterday...anxious And Need Advice Plz!

Posted by on 20 November 2010 - 06:01 PM

That's don't panic and carry a bath towel! Geez! :D

There are celiac groups on Facebook with many members. Most areas have a celiac support group also. The CSA (celiac Sprue Assocaiation) has them, and GIG and ROCK. About 1 in 133 people have celiac, so there are a bunch of us around. But most of us'n don't know we's have'n it ya know. Doctors tell us we have IBS, or depression, or deficiencies of expensive pharamceuticals.
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#654395 The True Story Of Celiac Disease

Posted by on 18 November 2010 - 06:47 AM

I whole-heartedly agree with RavenWood about the dangers of celiac disease. The work load on our medical system would most likely decrease and health care costs for all of us decline if proper preventative care was given to the population. How may people would be healthier if there doctors told them to try the gluten-free diet to treat their IBS instead of telling them to take drugs? We don't know, but it could be millions of people. But that doesn't make as much money for the medical community so it isn't done. This simple change which doesn't require research, drugs, a whole lot of hard thinking even could be the biggest health improvement for our country in decades.

RavenWood, sorry you had to go thru all that!

OK, this article on Heath-wyze is really off the mark. When they recommend people eat whole wheat flour to cure celiac disease they are outright dangerous.


How To Cure Celiac Disease

Treatment goals are:

* Suppress candida (yeast) overgrowth
* Stimulate healthy intestinal flora
* Stimulate intestinal repair


Changes To Your Diet

* The diet is: no sugar, lay off alcohols (especially beer), no mushrooms, limit yeast, limit caffeine as much as possible. You may eat meat, vegetables, milk products, and whole wheat, but it has to be only brown, wholemeal flour, brown rice, etc.. Do not eat any processed foods. They are mostly "enhanced" sugars, processed vegetable oils, and engineered flours. Avoid all white flours, and white breads. This is critical. *
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#654372 Symptoms Returning After Initial Cure

Posted by on 18 November 2010 - 05:22 AM

... I just can't figure out why the miracle cure went away. I am also off of dairy.

There is no cure for celiac disease. When ya got it, ya got it.

Lots of us seem to get more sensitive after going gluten-free, reacting to tiny amounts of cc. When you get rid of all gluten and gluten cross-contamination, you will most likely feel better. There are also other food intolerances that crop up for some of us though, like soy, nightshades, dairy etc... So you may be reacting to some other food also.
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