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Member Since 26 Dec 2007
Offline Last Active Jul 29 2015 04:05 AM

#653476 Should I Go To The Nyc Celiac Place?

Posted by on 14 November 2010 - 09:16 PM

Hi Plumbago,

There is a celiac clinic at the University of Maryland in Baltimore. Dr Alessio Fassano is the head of that clinic and is well known in the celiac world. So you could go there as an alternative to NYC. There is also a nutritionist named Cheryl Harris in Alexandria who works with celiac patients.

I am not surprised your antibodies are still a little high though. Going gluten free is kind of like learning to ride a bicycle, most people take few tumbles and get some scratched knees along the way. Some of the common issues are eating processed foods (that may have cc), taking vitamin pills that may have gluten, drinking coffee, tea or other things that may have gluten, sharing a toaster with gluten eaters, sharing cooking pots or utensils with gluten eaters, kissing the gluten eaters and not making a yuck face, sharing peanut butter, or other condiments with gluten eaters, and some people even have trouble with shampoos and makeup that have gluten in them.

Gluten can hide lots of places and it is easiest to just stop giving it a chance to slip in. That means not eating processed foods for a while until you get the hang of things. And many people have problems with dairy at first too and need to stop it for a while.

Pet foods can have gluten also and should be checked.
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#653275 Absence Of Villi In Duodenal

Posted by on 13 November 2010 - 09:33 PM

You finally got the biopsy! Good going for sticking with it Loey. sounds to me like the amarperazole is a stomach acid reducer? Well, maybe they wil put you on antibiotics after the biopsy results are back. I have read they give people a triple package of anti-biotics, 3 different kinds to kill the h.pylori.

Here is some info from wiki on diet related treatments. They are not a cure for h.pylori, but some help.

Helicobacter_pylori on wIki

Studies have recently been published suggesting H. pylori activity could be suppressed via dietary methods. A 2009 Japanese study in Cancer Prevention Research found that eating as little as 70 g (2.5 ounces) of broccoli sprouts daily for two months reduces the number of colonies of H. pylori bacteria in the stomach by 40% in humans. This treatment also seems to help by enhancing the protection of the gastric mucosa against H. pylori, but is relatively ineffective on related gastric cancers. The previous infection returned within two months after broccoli sprouts were removed from the diet, so an ongoing inclusion in the diet is best for continued protection from H. pylori.[39]

A 2008 study published in Korean Journal of Microbiology and Biotechnology found kimchi (fermented cabbage) contains a bacterial strain "showing strong antagonistic activity against H. pylori." The bacterium strain isolated from kimchi, designated Lb. plantarum NO1, was found to reduce the urease activity of H. pylori by 40-60% and suppress its binding to human gastric cancer cell line by more than 33%.[40]
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#653190 I'm Disappointed From.....

Posted by on 13 November 2010 - 02:25 PM

You can test negative on the antibody blood tests and still have celiac disease. They can't exclude celiac, they can only include it as possibility.
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#653104 Dr. Peter Green and Elisabeth Hasselbeck Featured Tonight in Piece on ABC New...

Posted by on 13 November 2010 - 06:25 AM

Way off topic, but, that usually doesn't stop me! Are the encaustic paintings the ones with the black and the stain glass sort of effect on your website? Those are just beautiful.

Hi Karen,

Yes, them are the encaustic ones. They are made from beeswax, resin and pigment on panels. I do actually make them on the stove, and use a torch too. Gots to use that stove for something when I am not cooking. I make my own medium also. Fun stuff!

OK, Mr. creepy tringle is gone and Mr. SP is in. Now that's scary!
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#653099 Dr. Peter Green and Elisabeth Hasselbeck Featured Tonight in Piece on ABC New...

Posted by on 13 November 2010 - 06:03 AM

"Your triangle dude is a little creepy," said The Mr. Potatohead Pumpkin.

I think Cmyst is just making sure the chicken is completely cooked. Don't want food poisoning.

Well gee Mr. Potatohead, why not come over to my house Saturday night and I'll show you a little creepy.. can you say pumpkin french fries? :D :D :D

OK, I get your point though, my tringle guy has been around a long time, might be time to change him out. All these years and he hasn't aged at all, snot natural. And CMyst doesn't have to worry about undercooked food I don't think. :P :o :) Shoot, I do the same thing on the stove, use a torch. But it's to make my encaustic paintings, not food, so it's leettle different.
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#653091 Hi, I Am New!

Posted by on 13 November 2010 - 05:32 AM

Hi everyone,
I am new here too. Just recently diagnosed with Celiac myself. I've had stomach problems since I was a teenager but in the past two years it's gotten worse with each passing month. To the point that I had nausea, vomiting, severe pain and diarrhea with every meal I've been on a gluten free diet for a week now and have gone from that to being able to eat at least small meals with none of the symptoms except some pain that I wouldn't call severe anymore. I've been reading and reading about gluten free foods and Celiac and it's a bit overwhelming so thought I'd drop in here to see if I can learn something from all of you. Thanks for having a support group for this life changing (for the better I hope) diagnosis.


Welcome to you too Judy3! Glad you found us. I hope you are doing well on your gluten-free diet start. It is nice to have beginners to the gluten-free diet come around since we were all beginners at one time too. Take a look around, we have a great recipe / cooking section with cooking tips and the ingredients labeling section helps with finding about safe foods. There are also a lot of great articles on the main site about celiac disease and eating gluten-free. etc. Also a gab/chat forum in case you want to chew the fat.

At the top right side of the forum is a "view new content" link that will list all the recent threads. Very handy for catching up on whats a happenin'. Threads you have posted in will have pencil in the icon. Threads I have posted in won't look any different to you although I think they should be glowing gold or silver. :o :D Just kidding! I have been hanging around the silly thread to much I guess.

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#653062 Hi, I Am New!

Posted by on 12 November 2010 - 08:13 PM

Welcome. Some people do indeed have withdrawal symptoms. Stick around and read read read and ask questions questions questions. :-) You might get some benefit from a pro-biotic and also enzymes.
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#653003 Dr. Peter Green and Elisabeth Hasselbeck Featured Tonight in Piece on ABC New...

Posted by on 12 November 2010 - 04:17 PM

Thanks for the link to Dr. Viki's response CMyst

I was very surprised to hear Dr. Green say the gluten-free diet is dangerous. The whole story was pretty negative about the gluten-free diet.
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#651563 Please Read This..i Need Inputs..

Posted by on 06 November 2010 - 09:42 AM

I put in some links that might give you some ideas of foods to eat. That's actually a pretty frequent topic around here as people are always wanting to find snacks or candy or breakfast ideas.

There are some cheap subs that work for wraps. Like Mission corn tortillas, Trader Joe's brown rice tortillas, or Food for Life brown rice tortillas. You can run water over these just to wet and then microwave them for 25 seconds to soften them. Or throw them in a skillet with a lid while you are cooking something else.

There are tons of recipes in the cooking section here and lots of product suggestions in the gluten-free products section. And there is a store on this site that sells gluten-free foods also. You can learn to make rice and veggies with chicken or other meat protein pretty easy. I cook the meat separately first and then mix it into the rice while it's cooking. You can brown the meat that way and it adds some flavor.

It's really not a bad diet at all once you get used to it. Learning to cook is an important talent that everyone should strive to do at some point in their life. It is more important for us though.

Breakfast ideas

Help With Breakfast Ideas eating

Quick Breakfast Ideas?

Dairy-free Breakfast Ideas? need hints!

Need Breakfast Ideas -- Gfcfsf

Breakfast Ideas




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#651431 Does Anyone Like Being Celiac

Posted by on 05 November 2010 - 03:04 PM

I figure we are all made the way we are for a reason. And we need to accept that there is a reason for it and it is for the good. We may not understand it, but that's ok. We is just people after all. My cousin is unable to walk since birth, he is studying to be a teacher, and my ex has a son who can't walk. I've had friends who were blind, and I know a woman who is a quadraplegic and runs an IT department for the Navy and comes to work everyday in a wheelchair. She can't even drive. I like that I am not any of those people, even though they are actually amazing and wonderful people.
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#651405 Please Read This..i Need Inputs..

Posted by on 05 November 2010 - 01:36 PM

I take an aspirin sometimes, or some wine. But none of that stinky smoke stuff. Hiding the pain is a temporary thing and won't keep your gut from being damaged. You could be stunting your growth and development due to not absorbing vitamins and minerals that your body needs also. Young people especially need to keep a healthy diet as the brain is still developing at your age. Lots of muscles and bones that need nutrients to properly grow also. So my advice is to get on the gluten free diet and stay there. There are lots of people on this site doing gluten free so you know it is not impossible. We are proof it can be done. And it does get easier the longer you are on it as you learn new eating habits and new favorite foods. Lots of the things people miss are just their habits of eating this or that thing whenever they want. All that is stuff you learn and you can learn a different way also. And feel better too! Pain free!

Welcome to the site and I hope you like it here and stick around to read and ask questions. We are all going thru the same thing. It's big boat! :D
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#651223 Celiac Cop

Posted by on 04 November 2010 - 04:02 PM

Oh no, surrounded by potato heads and pumpkin heads!

Welcome to the site! You might want to avoid the Starbucks coffee too. There are some threads around discussing possible gluten in some versions of the lattes I think it was. I quit coffee and tea a while back so I don't remember what the issue was really. Starbucks was selling a gluten free snack cake for a while but then scrapped it and now I think they sell Lara bars or Kind bars, something like that. Probably the plain coffee is the safest choice if you like that yugly stuff.

Try a search on snack ideas and breakfast ideas in the search box on left top of site. There are several threads with good ideas for things you can take to work easily. Fruit is a good one for many people or hard boiled eggs.

Hmmm, hard fried pumpkin slices might be good too... Eh Karighnne? :D
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#651086 Running From Crazy

Posted by on 04 November 2010 - 02:18 AM

Welcome to the forum RP. It's not too late to start the diet again so hop on in and get going with us! :D We all got here one way or another and all have things we can learn from each other. Congrats on your new hubs and getting back to a healthy diet.
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#650356 So Overwhelmed!

Posted by on 31 October 2010 - 07:06 PM

Happy Halloween!

Here is a short article that talks about latent celiac and silent celiac. Latent Celiac Disease Afflicts Many Who Tolerate Gluten Basically, people who have celiac but little or no GI symptoms. Anyway, they may start out that way but get sicker as time goes on. And there are many other negative affects of celiac beyond the gut symptoms. Like you said, it has a multitude of affects/symptoms. Some of them include R. arthritis, brain affects (ataxia, schizophrenia), weakness, confusion, sterility, depression, other auto-immune diseases etc. Not the kind of stuff you want to mess around with. gluten-free is a change in diet, and the way we look at food. But you will most likely end up with a healthier, happier family as a result. Since celiac is a herdiatary condition, you might want to look back at your family history and see if there are other auto-immune diseases that have occurred. Diabetes, lupus, bowel cancers, R. arthritis, Hashimoto's thyroiditis, are just a few of the things that can be associated with celiac diesase. Extra thirds eyes in the back of the skull, long hair and fangs on full moons, a craving for raw fish. Since it is Halloween, I figure it's ok to try and scare you a little. So BOO! :D Those last three are not real that I know of at least. Welcome to the site and it's good to have you here! :)
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#649683 Lasted Year In The Air Force

Posted by on 27 October 2010 - 06:12 PM

Great, sounds like there is some positive understanding about the condition around the AF. Congrats!
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