Last night I did dessert for first time in a long time (we don't need it). But our plums are ripe and they are those big meaty red ones, yummy thingers they are. So I did a plum crumble with cinnamon and O.M.G. I can't decide if it is best plain, with Greek yogurt, or with ice cream.
As wolfie says, for some of us gluten is highly addictive, acting like an opioid to the body and when we stop eating it we go through withdrawal, as we do with any addictive substance. Think of gluten as your particular heroin (or nicotine, or oxycontin). Your body is craving it right now, begging for it, and you are being strong and saying NO, NO, NO!!! Notice that it was the toast on your plate that you wanted to eat, not the nutritious egg. It was the siren temptress calling to you, I am gluten, eat me!!! Think of the agonies of withdrawal others go through and that is what you are going through. I went through withdrawal from a pain medication cold turkey and I had crying jags and the shakes and felt like hell. I went through withdrawal from nicotine and thought my muscles would break every bone in my body, they were so tight and painful.
Do not give up, because you are almost over the hump. Hang in there a little while longer and the siren song will stop and you will start feeling better, I promise you.
Get back on the gluten!! You do not want to go gluten free until all testing is finished, I'm afraid, as it can affect the results. The antibodies start to disappear if there is nothing there to attack
Yes, joint problems are a common symptom in celiac persons, ranging from stiffness to rheumatoid arthritis, so here's hoping once you get off gluten - regardless of your test results, do give the gluten free diet a good trial once your testing is complete - that they go away
In view of that one positive result, I would insist on the full celiac panel being run:
Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA
and referral to a GI. That is very incomplete testing. The old school doctors love their tTG testing, but in reality it is not a specific test for celiac disease and the DGP is very specific. It is possible to have intestinal damage on endoscopy with a negative tTG score.
I am assuming with all his testing that they ran a celiac panel on him before he stopped eating gluten, and that one of the biopsies was for celiac along the way.
Those ulcers sound like they must be really painful, and again I am assuming they are not h. pylori.
Until you can get to the allergist I would suggest the blandest of diets; things like mashed potatoes, bananas, applesauce, canned fruits, white fish, spinach, swiss chard, squash, scrambled eggs, fruity herbal teas, soups made from bone broth. See how he copes with something like that.
Hello, ann. Can you tell us a little more about what your husband eats because of his health issues, and your reactions when you prepare gluten free foods for him? For example, do you have a contact dermatitis when you touch gluten, or do you have a problem breathing in gluten flour, or do you think you are getting gluten crumbs from his foods (this would be the biggest source of cross-contamination, especially from counters, toasters, colanders, etc.) You could also get contamination from wooden and plastic spoons and cutting boards where gluten foods have been, and from scratched teflon pans where gluten has gotten in the scratches. You can contaminate food by dipping a knife with crumbs into spreads that are shared. Gluten free food can be contaminated in pantries and refrigerators if it is on lower shelves and you drop gluten food from upper shelves onto it. It is best to keep gluten free up high and gluten down low if you have to share.
It is not usually necessary to wear gloves to avoid contamination if you wash your hands after touching anything gluten containing.
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i guess im just tired and overwhelmed... and yes, there are other issues in this marriage and i guess if all were well, i would have a different outlook or try harder
Okay, so I guess the question we should be asking here is, are you committed enough to this marriage to want to make it work? Because if the answer to that is no, you are going to be dragging your feet every step of the way.
Once you have that question answered we can talk more about how you can do it
If you have not already done so, you should have all your vitamin and mineral levels checked; A, B's, D, E, K; calcium, potassium, zinc, copper, magnesium, iron/ferritin, and yes, a DEXA scan with a family history of osteoporosis - which may well mean a family history of celiac and low Vit. D. You should also get your thyroid function checked, and not just TSH but also free T3, free T4 and TPO antibodies.
The usual genes they test for are DQ2 and DQ8; there are, however, other genes recognized as celiac genes in Europe. Do you know if any of your relatives have had genetic testing? or even celiac testing?
In the meantime, I would continue to call myself 'celiac' to increase the chance of being taken seriously. No one can prove you are not.
I don't think your self-diagnosis is at all crazy, with your family history. We know the genetic predisposition had to come from you or your husband, and you are the prime candidate. But don't go gluten free, if you don't think you will believe yourself in the future, until you've been tested, because once off gluten it's hard to go back on.
I imagine if gluten made you feel really crappy in the past, which was the reason you gave it up, you would have to wait until you feel really crappy again to be sure that you have reactivated all your gluten antibodies