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Member Since 03 Jan 2008
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#629832 Misery Loves Company...what Do I Do?

Posted by on 06 August 2010 - 09:18 PM

I have been gluten free for 4 months or so and last night after coming in contact with some cross contamination I am in major pain! Hit quite quickly (in the restaurant) and even though I made it home before getting worse I woke up today with horrendous bloating and pains. Is there anything I can do to speed up the healing process? It has been 24 hours and I am still quite uncomfortable.

Sorry you are in such misery. Some people advise to drink lots of water; others say pepto bismol helps them. Hope you feel better soon.
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#629364 Lectins - Things Everyone Should Know

Posted by on 05 August 2010 - 09:43 AM

It is possible that people who are lectin-sensitive have some degree of dysbiosis.

It is also possible that people who are gluten intolerant have some degree of dysbiosis. It is also possible that even when they do not have dysbiosis they are still gluten (lectin) intolerant.

This is the statement I took issue with. Gluten is not an issue for everyone, just as lectins are not. One should be thankful one does not have that problem instead of dissing those who do.
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#629358 Lectins - Things Everyone Should Know

Posted by on 05 August 2010 - 09:26 AM

Not all lectins are bad, just as not all bacteria are bad. But if you happen to be sensitive to particular lectins, they are nasty little blighters :unsure: just as the wrong bacteria in the wrong place can do a number on you. I have had to eliminate most of the major high-lectin food groups, and am very interested in Lectin Lock as a means of keeping the odd ones at bay, and to avoid becoming intolerant to more of them. I don't think you should dismiss them so lightly, Skylark.
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#629237 So Why Do People Get Headaches When They Quit Gluten?

Posted by on 04 August 2010 - 08:57 PM

Why do people get headaches when they quit drinking caffeine? Why do they sometimes get headaches when they quit smoking? It's the withdrawal effect. If you get a headache when you quit eating something, you are most likely addicted to it, and therefore much better off without it.
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#629167 Trying To Figure This Out And Would Love Some Input

Posted by on 04 August 2010 - 04:43 PM

Dotcommom, it is important to distinguish between lactose in dairy, and casein. The products that are pure lactose are milk, cream, ice cream, frozen yogurt (not a true yogurt). The other dairy products contain lactose to a greater or lesser degree, because they are either cultured like yogurt and sour cream and cheese (the cultures digest the lactose for you), or they have the lactose removed by the churning process as in butter (the buttermlk contains the lactose, the butter the casein, for the most part). So it is perfectly possible for him to get sick with a glass of milk and yet be able to eat a cheddar cheese sandwich (gluten free, of course). The harder the cheese the more likely he could tolerate it. So a grating or two of parmesan would probably be okay for him whereas milk with his cereal might not. But there are so many other milks - rice milk (but NOT Rice Dream), almond milk, hemp milk. I would not personally choose to try him with soy at this point. At any rate, it would be worth testing to see if it is all dairy or just the lactose. :)
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#627593 Anyone Not Have Kids And Not Work Too?

Posted by on 29 July 2010 - 12:36 PM

Yes, there is that pressure that you have to "do" something to "be" someone. I would merely say that I had to drop out of grad school due to health problems, and that as soon as I can get things under control I will be able to make career decisions again. And if they question you further, just tell them to MTOB in a nice way, like "I would prefer not to discuss that."
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#627310 Chelsea Clinton - Gluten Allergy

Posted by on 28 July 2010 - 02:34 PM

Well, that would explain her porcelain complexion.

I doubt it would be the best gluten free cake in history, but it may be the most expensive gluten free cake in history. In fact, unless it was baked by a gluten free experienced baker, it could be sort of a not so great tasting cake- this is not something I would want to leave to a regular baker unless they were into taste testing the first batches. Imagine some of the dreadful recipes out there.

There's just something about large volume, plain white commercially made cake frosting that is all wrong, too. Ick. Didn't even like it back in the gluten eating days. I think they were using Crisco or something. Bleck. :blink:

Couldn't agree more - American wedding cake = blechh!!! No wonder the bride and groom smash it in each other's faces, gluten-free or not. :lol:
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#619628 New To Eating Out Gluten Free

Posted by on 26 June 2010 - 10:15 AM

aw shroomie :( , come to my house, I'll make you any ethnic food you want, with your preferred list of ingredients. :)

Still bet you couldn't do Mexican :ph34r:, but thanks for the offer :):wub:
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#619526 New To Eating Out Gluten Free

Posted by on 25 June 2010 - 08:18 PM

I don't eat at any ethnic restaurants any more :( If it's not wheat it's soy, if it's not soy it's corn, if it's not any of those it's either nightshades or citrus. Mexican food is a nightmare :blink: Lectins in flour and corn tortillas, lectins in tomatoes and salsa, lectins in refried beans (legumes), lectins in anything citrus (think Margaritas) :unsure: Good ole 'Merican food is all I'll eat. :D Hopefully served by someone who speaks good English. No holes in the wall for this gal :ph34r:
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#617199 What Other Food Allergies Do You Have?

Posted by on 16 June 2010 - 02:23 AM

A few months ago I started having stomach pains and terrible gas with bloating. To my knowledge I have not been using gluten. I just had blood work, breath test, ultrasound and CAT scan to rule out gallbladder, pancreas and some other things as the cause. Tests were all clear.

I see that a lot of people seem to develop other food allergies along the way to recovery or at least discover these allergies. How did some of you find out about those allergies like corn, dairy, soy etc? Was it just a process of elimination or testing? I'm going a little crazy because I was feeling so good for the last year and then this started again except for the return of constant diarrhea. Any suggestions would be welcomed.

Yes, I seem to be one of those who keeps discovering new things I react to. With me, it all seems to be based around foods that are high in lectins, and I get the same response from them all, not your typical gluten response, although it does cause extreme bloating, which in turn sets off what someone I have talked to about it calls a "cytokine storm". This person controls the storm with antihistamines since he claims it is similar to a histamine response. I do not tolerate antihistamines :( I end up with bursts of tachycardia and erratic heart beats and other scary stuff from the lectins. Took a long while to figure it out because of course docs are of no help. The corn I knew about before I quit gluten, and the reaction was identical to gluten, the soy (high in lectins) caused a very itchy rash, as did potatotes. I have figured it all out through a process of keeping track of responses and elimination. I think if I went back to soy and potatoes now I would probably get the lectin response from them, but NO WAY will I do that. The latest food eliminated was quinoa, also high in lectins (as are the gluten grains, so there is a connection there). All this has probably not been of a lot of help to you, except for the process, and the links between all the intolerant foods (lectins). My main problems before gluten free were bloating, vasovagal syncope (fainting from pressure on the vagus nerve) and diarrhea.

At least my reactions come on on the same day as I consume the food, normally within 4-6 hours, and it normally happens after I go to bed and the abdominal contents rearrange themselves (I have to sleep on my back because of a back problem).

The only suggestion I can make is to keep a food and symptom diary. I don't know how adventurous you are in your diet. Mine is quite limited now so it is not very often that I add something new; that is how the quinoa really stood out. I always double check to make sure I have the right culprit.
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#616874 Doc Tomorrow - Which Tests To Request?

Posted by on 14 June 2010 - 04:28 PM

Thanks for the additional info, Mushroom.

I just wish I could feel more certain about it. With my lactose intolerance problem, it can't be measured with a test.

I'm going to have to really think this all over carefully and keep reading.

Well, the lactose intolerance, if it is reasonably recent (i.e., not lifetime) is a sign that your villi in the small intestine have been damaged because the enzyme that digests lactose is produced at the tips of the villi which are the parts that are damaged first. I was lactose intolerant for years before I recognized I was gluten intolerant. And no, I never bothered with any testing because I was not going to eat gluten anyway. You are sounding like the doctors :lol: - if it can't be measured with one of their tests it doesn't exist - NOT!! Gluten intolerance is very real and most of us find we are able to live within that gray area of knowing something that we can't prove.

One thing you could do would be to order the Enteriab stool/saliva testing online. This will measure IGA, casein and soy intolerances, give you a fecal fat score as a measure of how well your digestive system is working, and test for genetic markers for celiac and gluten intolerance. It will not, however, tell you whether or not you have either :(
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#616309 Doc Tomorrow - Which Tests To Request?

Posted by on 12 June 2010 - 02:02 PM

Mushroom - thanks for the further thoughts on the test. It sounds like since this test came through the way it did - my other tests should be a true indicator of whether I have gluten intolerance then?

It is possible that I don't have this disease. I could be all wrong. It just would be nice if the evaluation and tests could be conducted properly to make sure I'm right or wrong.

You can count yourself lucky that your doctor actually ran the control test; :) many of them don't :(

Just a slight correction to your wording - your other tests should be a true indicator of whether or not you have diagnosable celiac disease. It is still possible to test negative on the tests and be intolerant of gluten, unfortunately; even to be celiac. Some people with negative blood work test positive on biopsy. I would estimate that most people who test negative on both blood work and biopsy feel better if they stop eating gluten. That is why it is suggested that after all testing (including potential biopsy) is completed, that you give the gluten free diet a good trial. Doctors generally are not aware of non-celiac gluten intolerance and will tell you, upon negative testing, that it's okay for you to eat gluten since you are not celiac. But if you are a non-celiac gluten intolerant you can do yourself as much harm eating gluten as if you were celiac :o

I know you probably didn't want to hear this, but the testing is not that accurate, and not necessarily indicative of what gluten is doing to your body. So I hope your results give you a diagnosis on which to "hang your hat".
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#616225 Unsure Of What To Do..

Posted by on 12 June 2010 - 01:56 AM

I have had celiac for 10 years and for 2 years ago I got a huge antibiotic dose and I got very bad and I know have dysbioses, leaky gut ++ I have been on strict SCD for 10 months and have shown great improvement. Specially after starting with digestive enzymes in December. I am now able to eat 10 soft vegetables, meat and some type off sea food without getting pain and bms are good.

I am going to take a CDSA stool test to see if I (and my doctor) can figure out what is wrong with my gut (there is something more then only celiac..). But before I going to take CDSA I need to be medication free for 2 days and not take medication and supplements when I take the test (to days). So total of 4 days with out any enzyme or medication.. And because my stomach is very slow it will be best to be 3 days without enzymes.. So that will be 5 days without anything.

I just started with Bio Gest and S.A.T and I has really helped me. I have been able to introduce new food and I am able to DIGEST fat! I eat the chicken skin now and I don't get any pain and the BM is very good. Before if I tried eating skin I got bloated stomach and floating poop with undigested food pieces.

Now I am taking digestive enzyme to every meal and S.A.T + Bio Gest to meals that are higher then "normal" in fat (for me).

I am just so unsure what to do because I want to take the test. But I don't want to stop enzyme because I get pain.

I'm just so confused :(

The stool test can tell you a lot, so it might be worth a bit of suffering to have it done. Just lay off the foods that normally set you off, like the chicken skin - you really don't need that anyway, use herbs and spices to give it good flavor. Eat sparingly so you don't over load your system and give it easy to digest foods, no cruciferous vegetables, no raw food; eat apple sauce, rice pudding, fin fish, cooked veggies and rice, skinless chicken, canned fruits. Hey, you can do this for a few days, really you can.:)
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#615968 Need Advise

Posted by on 11 June 2010 - 12:49 AM

My 19 year old daughter has gone a few times to the dr and had blood and stool tests as a result of severe cramping and pains in her stomach that often make there way to her chest area. She was given strong medicine that made her sleep and not alert to play college sports. She has been feeling better but has loose stool with every bowl movement. She also had a psoriasis and a sore developed in her mouth last week. Does anyone have any suggestions or feelings on the above?

I agree with WheatChef that it would be interesting to know what she was tested for and what the results were for those tests. The doctor may not have any familiarity with celiac disease. What was the "strong medicine" she was given and what was it for?

Psoriasis is an autoimmune disease, like celiac disease, and often occurs in conjunction with celiac. Celiac disease has a tendency to lead to other autoimmune diseases. Mouth sores as you are probably aware are a sign of gluten intolerance.

Your daughter needs to either find a doctor who knows something about celiac disease, and get further testing, or stop eating gluten and see if she feels better. Those seem to be the only two paths open to us. Some go around banging on doctors' doors for years; others just say to heck with it, if it works to stop eating gluten that is what I am going to do. We have had many long discussions on here on the whys and wherefores and outcomes of these different approaches. When it all comes down to it, the individual has to make the decision as to what is best for them.

Just so you and your daughter know, the proper testing procedure for celiac disease from the perspective of the medical profession is the celiac blood panel, which consists of:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Total Serum IgA

If the blood tests are positive the patient is then referred to a gastroenterologist who performs a procedure called endoscopy, whereby a tube is inserted under sedation down the esophagus and into the small intestine to examine it for damage. Biopsy samples are taken which are then looked at under a microscope.

If none of these tests are positive, does it mean your daughter can continue to eat gluten? According to most doctors the answer is yes. But most do not know about non-celiac gluten intolerance, which does not test positive on their tests but produces the same symptoms and causes the same damage to the body as celiac disease. So the consensus on this forum is that after all testing is complete (and she must continue eating gluten until the testing is complete for it to be valid) she should give the gluten free diet a strict three month trial. This should tell her whether or not gluten is a problem for her. If she shows no improvement then she should continue to try to get a diagnosis for her symptoms.

I hope this has been of some help to you. :)
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#614951 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 05 June 2010 - 06:27 PM

:lol: :lol: :lol:

Alright young lady! I think you've had way too much fun for one day! Time to come in and settle down.

Who was supposed to be watching Em, anyway? :unsure:

I just told her to go outside and play :o and next thang I knew, she was out plussing every Tom, Dick and Harry :rolleyes:
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