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ksymonds84

Member Since 28 Jan 2008
Offline Last Active Sep 02 2011 02:09 PM
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Topics I've Started

Need Help With Hubby's Test Results

28 August 2011 - 07:07 AM

Hi everyone,
My husband was diagnosed Gluten Intolerant a year ago. He's done okay, he no longer has that urgent need to go feeling in the morning but he still has some bloating and gas especially at night.
My big concern is that he went for his annual to have his blood drawn for his thyroid and this time had a full blood work up. His white blood count was low 3.11 with 4.0 being the normal range and the doctor told him his vitamin b12 was low so they did the test again. They called and said that the wbc improved but was still low and they want him to see a hematologist. Me being the big online researcher that I am looked up low wbc and freaked out over some of the serious possibilities!
When I discussed this with my mother in law she calmed me down and said it was probably celiac related. His brother who is celiac and was diagnosed 7 years ago still gets b12 shots. Wanted to get you guys opinion as well and if anyone can relate? Thanks in advance, haven't been on the board for awhile since I've been feeling fantastic gluten free but glad to know you are all still here!

Help I Feel Like I Am Killing My Husband

21 October 2010 - 07:35 AM

Okay guys I need your help. My husband went gluten free in August because of positive antibodies. He chose not to scope after how much money out of pocket it cost us when I did and his brother is a biopsy diagnosed celiac. Anyway, I've made two homemade dinners for him. One is my pizza crust that I've created that is very yummy but the 3 times I've made it reducing xantham down from tsp to 1/2 tsp to 1/8 tsp he is still in MAJOR stomach pain.
Here is the recipe ingredients:

3/4 cup rice flour
1/3 cup tapioca flour
1 Tbsp potato flour
1 tsp california style garlic salt ( I use McCormicks)
1/8 tsp xantham
1 tsp instant yeast granules
1 tsp sugar
cup red bridge beer or other gluten-free beer warmed to 105 to 115 degrees (rice milk?)
1 egg white
1 tsp rice vinegar (or apple cider vinegar)
TBS canola or olive oil (I use canola

The other recipe is a buttermilk buscuit recipe I got somewhere one the net
1/2 cup potato starch
3/4 cup cornstarch
1 3/4 teaspoons xanthan gum
1 tablespoon baking powder
1/4 teaspoon baking soda
1/2 teaspoon salt
1 tablespoon sugar
1/3 cup cold butter, cut into 1/4-inch cubes
3/4 cup buttermilk

So the common ingredient is the xatham but he eats udi's and rudi sandwhiches both fine and they have xatham? Also he eats cheese and is fine with taco's ect. He also can eat corn on the cob and be fine. This pain is VERY intense. We had the pizza last night and he woke up at 3:00 with heartburn then at 6:00 the pain started. He's lying on the couch now and I feel terrible!! We are talking SEVERE intestinal pain here. The only other time this happened that I didn't make it (he did) was calamari that was coated in deby's gluten free flour. There is no ingredient list on the box but know that it has xantham or guar gum. Sorry so long, does anyone have any ideas?

When Gluten Free Is Not Enough

24 September 2010 - 08:58 AM

I've been seeing quite a few posts related to not getting better on the gluten free diet and wanted to tell my experience to give some hope. I'm into my 3rd year gluten free now. The first 3 months I had big improvements (I lost quite a bit of weight from having daily diarrhea) but still had problems so I eliminated dairy and for the next 9 months did even better but still had days of unexplained big D blowouts. I kept a food journal but it didn't make since that I was okay with something one day and not the next. Reading this forum showed me that some people had problems with soy so I thought I would be tested with soy. I used enterolab and just went ahead and did the gluten, casein, soy, malabsorption ect even though I already had a gluten intolerant diagnoses from my general practictioner and later after a miserable gluten challenge a positive biopsy, to see if I still showed antibodies. I did but very low (14 when their positive is 10, I had been almost 2 years gluten free)and almost normal malabsorption. Casein was very negative. Soy tested high so I asked my Gastro doctor and he said go ahead and remove it and see. Again, it helped but STILL had unexplained episodes of big D.
My brother in law who is also celiac (positive biopsy and positive Herpetiformis Dermititis biopsy)told me that his doctor believes he has a problem with fructose malabsorption and that it sometimes overlaps with celiac. I did some digging on FM and it was like a light bulb going off! I went on a low fructose diet also including fructans (onions,artichokes, asparagus ect) and now I'm 99% better! FM is not like celiac to where I can never have fruit, honey, ect every again or worry about cross contamination, its all about personal threshold and how much per sitting. Some with FM have severely low threshold for fructose. Lucky for me, I just have to be careful with how much fructose I have at one sitting and never within 3 hours apart. Also, I've found onions to be my enemy but still cook with them for flavor then don't eat the flesh where the fructose resides.
In a nut shell if you are still not doing any better after being strictly gluten free for a few months or more, keep digging. Dairy, soy, and fructose seem to be the most common intolerances but everyone is different and could react to nightshades, corn ect. Happy healing!