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aliciam

Member Since 18 Feb 2008
Offline Last Active Feb 25 2008 12:20 PM
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Topics I've Started

My Nephew Might Have Celiac Disease

18 February 2008 - 03:07 PM

Hey!

I am new to this forum. I have Celiac Disease and have been on a strict gluten free diet for two years. My nephew (brother's kid) is 15 months now and has all the symptoms I had when I was a baby. He has severe breathing problems and bloody stools, constant mucus build up in his chest. He has been in and out of the hospital too many times. They keep saying it is allergies to milk, soy and 1,000 other things, but not gluten or wheat. They have put him on every diet except for gluten-free diet and nothing works. He now has stopped growing and gaining weight. I am super frustrated because they will not listen to me. My brother has been tested for Celiac Disease and it came back negative, but I still do not think he is in the clear. He has major stomach issues, seizures and diary allergies. He only had a blood test. He did ask his doctor about testing my nephew for Celiac Disease and the doctor said no he was too young for that and that he is doesn't think he has it, so that was good enough for my brother and sister-n-law. I am starting to get scared because his symptoms are getting worse. Can someone please give me information and advice on how to approach them again without seeming too pushy. I do not want to scare them away and I am only trying to help. I don't want my nephew to go through what I had to go through being undiagnosed for 27 years of my life.

Thanks so much!

Alicia