Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


a ditmars

Member Since 10 Mar 2008
Offline Last Active Mar 18 2008 01:00 PM
-----

Posts I've Made

In Topic: New To This

18 March 2008 - 01:00 PM

There is genetic testing available through www.EnteroLab.com. If your daughter aready tested positive that would mean that either you or the childs father would also have the gene. If it were me, and I was expecting a baby I would get tested as soon as possible and also have the baby's father tested also. I my own case I wished I had known when I was nursing my son. I was passing gluten to him then and most likely when I was pregnant too. There is a huge link between cases of children and learning disablities, Autism, loads of other disorders that are connected with Celiac.

The test is a cheek swabbing so it is simple to do on a small child also. Some say the testing (cost $150) is pricey but it sure beats the years of illness, testing and doctors visits my son had to endure before we finally found genetic testing. It turns out that both his Dad and I are gene carriers. Nearly every member of our extended family has now been diagnosed.

Good Luck,

Allison

In Topic: Worried That Bloods Will Be Negative

16 March 2008 - 06:41 PM

Hi Nikky,

What I suggest is to try a gluten free diet with your niece. With some help from a good health food store, I started a dairy free diet with my son to start then went gluten free about a month later. In days after going gluten-free I saw a huge difference and it was easy to see that a gluten-free diet was doing good things for him. It wasn't until a year later that we finally got a diagnosis. Your sister should probably do some research first about hidden gluten, it seems to be in everything, also many folks with gluten intolerance have difficulties with soy and dairy proteins also. Making a change in diet could be an easy and inexpensive way to get started.

Good luck.

Allison

In Topic: Worried That Bloods Will Be Negative

15 March 2008 - 05:17 PM

Nikky,

You might suggest your Aunt look into genetic testing through www.enteroLab.com. The test is a simple swabbing of the inside of the cheek, so it is easily done on a small child. My son is five and we had him tested with this lab, he tested positive for the gene for celiac. He had 5 different test done prior to this one. They all showed he did not have celiac, but like your neice he showed all the symptons of the disease. It is very common for blood and stool testing to come out negative, but the gene testing is the end all be all.

Hope this helps.

Allison

In Topic: Worried That Bloods Will Be Negative

15 March 2008 - 05:06 PM

ok, im not a parent but im an auntie. does that count???

my neice is 5 years old and has classic symptoms of coeliac, (D. very thin but pot belly, irritable and behaviour and concentraition problems). My sister has been tested and came back negative but shes prepared to get my neice tested. My worry is that her tests will be negative despite the symptoms and the fact that im a coeliac :unsure: , and with me being 15 i dont know how seriously my sister would take me if i told her to try the diet out :blink: . Do you have any suggestions how i can help? Thanks in advance. :)


In Topic: Low Oxalate Diet -need Advice

13 March 2008 - 09:41 AM

Rachel, Thanks thats good advice. Some time ago my son had issues with yeast, prior to going gluten-free/CF, so your thinking is probably correct. I've started giving him activated charcoal and will try the epson salts baths. I had stopped these some time ago because they seemed to contribute to a loose bowel problem we were having but maybe the combination of the charcoal and baths will balance things out. I've among loads of other supplements that he has been taking have been giving him 300mg of Cal. Citrate prior to everymeal in hope this would help too. Poor kid, today he has blisters on his lips but in general is in a much better frame of mind. Perhaps we are past the worst of it.

To anyone with a child on the austisic spectrum. The low oxalate diet is worth trying, minus the withdrawals and toxic dumping. My son's language has improved by leaps and bounds!!!

Thanks again, Rachel

Allison