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Member Since 24 Mar 2008
Offline Last Active Apr 08 2010 07:02 AM

Topics I've Started

Carnegie Deli, Dallas Bbq In Nyc

25 March 2010 - 11:06 AM

My daughter is traveling with a school group to New York, and they are scheduled to eat at the Carnegie Deli and Dallas BBQ. Does anyone know of any gluten free options at either of these places? She is a little intimidated about asking for gluten-free foods, and I am trying to make it as easy as possible for her.

Also, if anyone happens to know of any breakfast spots that would be good within walking distance of Sheraton Manhattan at Times Square (W. 73nd St., Central Park West and Columbus) please let me know. She has plenty of breakfast bars packed, but if there is anything gluten-free around it would be great to know.

Thanks for any help.


04 March 2010 - 08:49 AM

May I please have a bit more clarification on how "Reputation" works? First, does every number represent one vote on one post? Since you can only vote a post up or down, I am assuming "Neutral" means that you haven't reached some critical mass required to move to the next level. How many votes are required to leave "Neutral," and what are the next levels?

Perhaps this hasn't even been determined yet, since I haven't seen anyone who isn't neutral. I admit I would be unlikely to care about this if I wasn't the only person I have seen with a negative number, and the only one with a red bar under my name. My posts are pretty much entirely sharing my experiences. I have gained so much from others' experiences here - not just moral support but things which have propelled my son enormously on his path to good health, and I share in hopes of doing the same for others. So a negative vote doesn't strike me as a simple disagreement - how can you disagree with someone's experiences? And if you do disagree, isn't an explanation more helpful than a vote? Jestgar, thank you for the kind thought that someone just hit a wrong button. I'll hold that thought, just wish I could use it to erase the red bar.

Celiac Kids And Sports

22 February 2010 - 07:39 AM

My 10 year old son is not recovering as well from his lacrosse practices as I think he should. Three days later he is still wiped out, physically and emotionally. It was the same with soccer in the Fall. At the beginning of the soccer season we were thrilled that he finally had the stamina to play a team sport, and sure that he'd be less fatigued by the end of the season, but it never got any better.

He loves to play, and is one of those kids who goes all out. Years of pain prior to his diagnosis have made him a tough cookie, and he doesn't complain a lot or use his fatigue as an excuse, but he is sore all the time and everything he does seems to take huge effort. I have been thinking about taking him to the doctor, but doctors don't seem to worry too much about fatigue. One doctor gave me an inhaler in the past "in case" he had exercise induced asthma. (He doesn't.) Like many celiac kids, he has had numerous CBCs, and I don't know what else we should check on.

Is this a normal kid, or normal celiac kid, response to strenuous exercise? I would like to think I am over reacting due to years of having to worry about his health. I just wish the little guy could get a break . . .

School Cafeteria Lunches

23 January 2010 - 11:19 AM

Our elementary school prepares gluten free meals for my son. I believe they do so in compliance with disability laws, and I wanted to share our positive experience.

We recently moved and enrolled my children in a new school system. My 4th grade son had never eaten school lunches in the past - he was extremely picky due to his painful experiences with food, and the odds of him eating anything on the menu was slim. On the monthly menus that came home from his past school, there was a statement about who to contact if different meals were medically necessary, but I never called. He has come a long way with his pickiness, so I called the new school cafeteria when we moved to see if they have any gluten free menus. I was referred to the nutritionist who told me there is a three week cycle of gluten free meals, and she emailed it to me. She was extremely knowledgeable about cross contamination issues, and she and I have both talked a lot to the school cafeteria manager. Now I just email every couple of weeks the days that my son will be eating, and his meals are ready for him. He tells me the server changes gloves before she gets his meal from the heater and hands it to him. There are some foods on the menu my son won't eat, so he packs a lunch those days. The nutritionist would change the menu cycle to all things he likes, but he likes to bring his lunch some days. Even though no one else in the school requires gluten-free meals, they purchase gluten-free bread and sometimes cookies for him. It has been an extremely positive experience for my son. He is excited about eating at school, the cafeteria workers are extra nice to him, and it is helping him eat a wider diet.

Does anyone else have a school cafeteria that will prepare gluten free meals? Our school would also prepare gluten-free breakfast for my son, but we haven't chosen to take advantage of that. I hope more and more schools will make this an option.

Pain Since Doc Added Medicines

13 November 2009 - 07:38 AM

We recently moved, and my 9 year old son with celiac disease met his new GI doctor. As far as we were concerned, he was doing fine, although food moves very slowly through his system, and even with his daily miralax he has 5 or more small, prolonged (but soft) bowel movements a day. His doctor had his belly xrayed and learned that he had too much stool, and added metamucil and senna to his daily routine. He has been having fewer but more substantial bowel movements, but now his tummy hurts almost all the time (when pain was infrequent before.)

Do you think it is more likely that the metamucil, which is bulking things up, or the senna with its impact on the muscles, is causing the pain? I have tried to call our doctor, but the offices have been closed for the last couple of days because there is so much flooding here in Virginia Beach, and I thought I'd see if anyone here had any thoughts.

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