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S_J_L

Member Since 14 Apr 2008
Offline Last Active Mar 26 2010 03:55 PM
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Posts I've Made

In Topic: Far Too Underweight, Possibly Refractory?

07 March 2010 - 11:13 PM

Hey, thanks everyone.

The problem is i don't even feel sick when i eat gluten, so its hard to figure out if i have another intolerance. Nothing in particular makes me feel sick. Apart from the past 2 months i don't normally have digestive upsets. And as i said im feeling better again and apparently i had no sort of infections.
Celiac disease was only investigated for me because of my inability to gain weight, and constant tiredness. Tht was it. I've been seeing a dietician every couple of months for the past 2 years and even she doesn't know what advice to give me anymore. I had even been getting extra calories by taking fortisip (hospital grade drink), but that doesn't give me extra weight either.
Even if you eat all these extra calories you can't put weight on if your intestine won't absorb it! This concerns me.
Does anyone here have refractory celiac? I want to know what your issues were.
I hope i don't have it but i'll have to wait a couple of months for my endoscope

In Topic: Far Too Underweight, Possibly Refractory?

07 March 2010 - 02:03 PM

Thanks for your posts, yes i have eliminated all those sources of gluten.

For some reason there is a '-1' at the bottom of the post, how do i get rid of it haha

In Topic: Iga Anti-t.tg Levels Still High

13 July 2009 - 12:08 AM

Hi,
I am having the same problem-im so upset.
I got diagnosed around april last year and my levels were 164. Then in december it was 38, and now its 40 again. I can't think of where the gluten could be hiding!
I have major issues of being underweight-bmi of 16. The doctor doesnt see me putting on any weight until these levels are normal.

Am i allowed to eat food that says 'is produced on a line that produces gluten-containing products'??

In Topic: What Is 'subtotal' Villous Atrophy?

06 April 2009 - 10:10 PM

Please? Any ideas...

In Topic: What Is 'subtotal' Villous Atrophy?

04 April 2009 - 08:09 PM

OK, thanks.
Anyone got suggestions about the weight issue- i just don't know what to do. Ive seen a dietician a couple of times as well.