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Member Since 20 Apr 2008
Offline Last Active Oct 21 2012 05:00 AM

Posts I've Made

In Topic: Newly "diagnosed" And Can't Take The Severe Abdominal Pain!

23 June 2012 - 11:14 AM

Have they checked you for Crohn's - Inflammatory Bowel Disease which can affect your digestive tract anywhere from the mouth to the anus? Pancreatic problems can be a side feature of this disease. An endoscopy [through the mouth into the small intestines] can only go so far into the small intestine. Sometimes, a Pill-cam [pill + camera that is swallowed and is recorded as it travels throughout the intestinal tract by a belt you wear for a day or two] is the only way to see all of the small intestine. Sever pain like you have been having is NOT a part of Celiac. However, you could also have celiac disease or gluten intolerance along with another digestive disorder. I sure wish you luck in getting a diagnosis real soon so you can start getting well! Congratulations on the new baby!!!!

In Topic: Anyone Else Unable To Eat Fruits And Veggies And A Whole Bunch Of Other Food?

23 June 2012 - 09:54 AM

Since you are "self diagnosed", kind of like me, there are a couple of other possibilities you might want to check out that could explain some of the other food sensitivities you are noticing. A gluten free diet would make a significant difference in 2 other digestive disorders that I can think of:

[1] FRUCTOSE MALABSORPTION [and a more serious condition called Hereditary Fructose Intolerance] : Generally these are conditions where fructose [fruit sugar]is not digested properly. Wheat contains many components, one is a starch called a Fructan [made up of a long chain of fructose molecules, one after the other, with an glucose on the end]. So, FM or HFI folks eat a gluten free diet to avoid Fructans rather than the gluten. They are also sensitive to fruits and veggies, some types more so than others, depending on the amount of sugar in each one. All sweets [cakes, cookies, candies, sodas, etc] are problematic too because sucrose [white table sugar] is ½ fructose + ½ glucose. Also, FM is frequently seen along with any other digestive disorder. There is a breath test to diagnose FM, while HFI is diagnosed by liver biopsy or a sugar induction under medical supervision [both rather invasive procedures].

[2] INFLAMMATORY BOWEL DISEASE [IBD] which is made up of two main diseases, Crohn’s [CrD] and Ulcerative Colitis [UC]. Gluten, dairy, and sugars are frequently sighted as triggers that initiate “flares” [digestive symptoms similar to being “glutened” in celiac disease] – so dietary changes are often recommended, including a gluten free diet. IBD can be mild to sever, with many food triggers – sometimes raw fruits + veggies, sometimes other foods, and unknown non-food triggers. Flares can be episodic or continuous – there are many variations in presentation, and is somewhat difficult to diagnose because of this. Intestinal biopsies, sometimes along with other intestinal investigations, are necessary to diagnosis IBD. Associated conditions include vitamin deficiencies, osteoporosis, arthritis, peripheral neurologic problems, etc.

So…you can see how confusing it can get to find a diagnosis when you realize that a gluten free diet helps, but isn’t the whole answer. Also, to complicate things more, it is possible to have celiac disease or gluten intolerance along with either of the two diseases mentioned above.

In Topic: Celiac With Throat Squeezing

23 June 2012 - 08:12 AM

I tend to have this too, but mine is more triggered by sugars...especially upon the first sip of soda. It's more like a throat muscle spasm; definitely NOT a burp. It's like my body is saying, "NO WAY!" to the sugar. [Besides the gluten sensitivity, I am Hereditary Fructose Intolerant] Anyway, since the trigger is gluten for your little one, perhaps it is just a reflection of the celiac disease..a warning of 'incoming' gluten and the body is rejecting it. My experience has been that doctors tend to be clueless about this throat thing. I don't know if an upper endoscopy would pick it up since it is gluten induced.

In Topic: Mouth Ulcers?

23 June 2012 - 04:32 AM

I used to get these frequently before starting a gluten free + dairy free + low sugar diet. About that time I was told to add Bronson's "Super B" vitamin complex and it has really made a difference. Now I hardly ever have mouth ulcers...and the few times they have popped out, they were much milder and didn't last near as long. So, I would suggest talking to your doctor about adding this. Digestive problems usually lead to poor vitamin absorption in the small intestine, so added vitamins and minerals are important for optimizing health.

In Topic: Restaurant Waitress

05 December 2011 - 01:30 PM

I have found that we really can’t trust wait-folks, or even a chef, to know what is in the food when eating away from home. If you are really sensitive, added seasonings or pre-prepared mixes used to shortcut a recipe, can easily contain gluten in words on the label unrecognizable to someone not in-the-know. Have you seen the long “no-no” list on Celiac.com? It is hard to expect that others are truly aware of all the factions of gluten on that list that we must avoid. So, trusting them to recognize what’s safe is not really a good idea, unless they drag out all the packages and let you read them yourself. In reality, only YOU are the expert in these situations….and it is up to you to protect yourself. My rule is, WHENEVER IN DOUBT, DON’T EAT IT!
Since I must avoid gluten, all dairy, and foods high in sugars, I have found some sure, safe bets. Hope these hints are helpful to others: (1) Rather than getting hurt feelings, I try to remember that being there to socialize is more important than the food. (2) I always take along some safe treats… just in case there’s not much offered that I dare eat.(3) I almost always eat a little something beforehand, so as not to be tempted to eat something that’s questionable because I’m sooooo hungry. (4) I might bring a gluten-free-DF casserole to share. (5) In restaurants - salad with oil + vinegar or squeezed sliced lemon for dressing; plain steamed veggies; oil-grilled meats/fish without sauces; a plain baked potato or plain white rice, are always safe. (5) In emergencies - Wendy’s chili is safe + Fritos [just corn, oil + salt] with a plain side salad; order a hamburger without the bun [but, be real careful because some fast food places have additives in their meat]; Subway/Quiznos veggie salad + a small tin of tuna brought from home; Chipotle/other similar place will serve a burrito-in- a-bowl, without the tortilla – you get to choose the ingredients.

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