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starrymazed

Member Since 01 May 2008
Offline Last Active Aug 21 2008 06:46 AM
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Posts I've Made

In Topic: Please Help With Daughter's Blood Test Results!

25 June 2008 - 03:32 AM

I am aware that this is not a test for celiac's disease. What I was more specifically asking was if there is a connection between celiac's disease and having the Bilirubin and low blood count levels that she has. That is what I cannot determine online, and while I am awaiting the doctor, I thought I would ask on here as there seems to be quite a few people who know their stuff. :)

In Topic: Scared Of Endoscopy

06 June 2008 - 09:19 AM

I just had an EGD yesturday, and I did not see, feel, or hear a single thing. They put me out cold. They told me I would feel drowsy like I was drifting off to sleep, and that is all it was. I woke when it was over and felt fine. Good luck.

In Topic: Finally Had Egd And Biopsy Today...few Questions

06 June 2008 - 05:38 AM

((((((((hugs)))))))) I hope you feel better soon. The report he gave you has strong indications of celiac but many doctors will not diagnose unless the villi are totally destroyed. It sounds like you have a smart GI who recognizes the celiac changes, I would agree with him that you should get on the diet. You also should not stop the diet if the biopsies are negative, there is a lot of small intestine there and biopsies are hit and miss. I am betting you will feel much better soon.




Thank you. I am feeling pretty crappy today, with my stomach and muscle aches. I am not sure, but I would imagine it has something to do with the EGD and the biopsies. Thank you for your response.

In Topic: Finally Had Egd And Biopsy Today...few Questions

05 June 2008 - 03:15 PM

I forgot to mention that report also stated they suctioned 150cc of biliary fluid and that they biopsied a section with "scalloped mucosa". I thought that the scallpoed mucos was consistant with celiacs, but why would they suction fluid out? I am so overwhelmed right now. And the fact that there is a week wait for the biopsy results really stink. The worst is my stomach right now. I feel absolutely horrible :(

In Topic: Upper Gi Results

08 May 2008 - 12:10 PM

Well, the NP called me today and told me that the doctor definitely wants to do a EGD with biopsy for my duodenum. She told me to start eating gluten again, like a serving a day, and to increase it so I am eating a normal (gluten filled) diet two weeks before the procedure (June 5). I hate to start eating gluten again, but I want to know what is going on. In the past two weeks of being gluten free, I have "tested" myself with small amounts of gluten three times, and each time I had side effects ranging from canker sores, to sharp stomach pains, to the mysterious red bumps I get on my arms and thighs. I have two small children, though, and my daughter has had many stomach and behavioral issues for most of her short life (almost 7). So, I am going to go through with it to see if I can get some sort of diagnosis and take it from there with my daughter. As soon as I have the biopsy, I plan on going back to a gluten free diet, without a doubt. I have seen and felt so many improvements in my skin and my stomach in the past two weeks, and I want to stay this way. :)