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starrymazed

Member Since 01 May 2008
Offline Last Active Aug 21 2008 06:46 AM
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Topics I've Started

Please Help With Daughter's Blood Test Results!

24 June 2008 - 05:54 PM

Hello. I have posted on here a few times, and recently I was diagnosed (through biopsy) with celiac disease. I fully believe that my daughter (possibly my son as well) has it. While they don't have a dr appt for that until July 1st, my seven year old daughter just recently had a slew of blood work done for her psych dr (she was just diagnosed as having ADHD) and I am trying to make sense of the results. Basically, her Creatinine levels, Bilirubin, Hematocrit, MPV, Neutrophil, and Lymphocyte %M levels were all low, while her Platelet count and Lymphocyte % levels were high. Does anyone know what this means? Is it celiac? She has plenty of stomach, skin, and head issues to make me believe that is what it is, but these blood results are scaring me. Please, any input would be much appreciated. The dr didn't offer much advice; she said that the celiac could explain these levels.

Dr Dx'ed Me... But Biopsy Negative

11 June 2008 - 04:57 PM

I mentioned in another thread that I had the endoscopy and biopsy done last week. I immediately found that I have a gastric ulcer, slow emptying stomach (but no diabetes), GERD, scalloped mucosa, and a small hiatal hernia. I have had many different skin issues for years, and stomach and head problems since I was a small child, along with bipolar disorder and anxiety. The biopsies came in today, and my dr told me that though I came back negative for celiac, duodentis, h. pylori, and only have mild gastritis, she fully believes that I have celiac based on the previously mentioned list and the fact that I was gluten free for two weeks before I found out I was going to have the endoscopy. I had a blood test while gluten free which was negative as well. My only reason for still thinking celiac (aside from the positive reaction while gluten-free) was the scalloped mucosa. Now, I don't know how many samples they took, and while I am entirely grateful for such a wonderful doctor, I still am longing for a more "definitive" answer. As far as my family and friends know, I have celiac. But, for me personally, I was hoping for the "gold standard" to prove to myself. Did or does anyone else feel this way? My dr fully believes that I have celiac's, and I will undoubtedly continue a gluten-free diet. I was just hoping for that positive, you know? :(

Finally Had Egd And Biopsy Today...few Questions

05 June 2008 - 01:50 PM

I talked to my dr after the procedure and recieved a copy of the report itself. While I have to wait a week for the biopsy results, I did find out that I have GERD, a small hiatal herna, a gastric ulcer, and possibly gastritis. The report also says they biopsied for gastritis, duodentus, and to rule out H. pylori as well as celiacs disease. He told me my that my twenty years of taking over the counter pain medicne for headaches probably caused the ulcer, and not to take anymore. He also gave me Prilosec, and told me to go back to a gluten free diet. What realy does all this mean? When I asked if they suspected celiacs, he said they need to wait for the biopsy results. Are this many stomach issues normal? Does anyone have any similar experiences? I just don't know what to think. Celiacs? Or something else altogether? In any case, I am gluten free as of today, my stomach feels awful, and I am more confused than before. Any input would be GREATLY appreciated! Thank you so much for reading!

Upper Gi Results

06 May 2008 - 01:26 PM

So I finally got to speak with the NP who ordered my bloodwork and upper GI today, and she confirmed that my blood tests for giladin? were normal. She said that my upper GI showed something, however, I was driving in my car when she called. From what I gathered, she mentioned maybe something being inflamed near the opening of my stomach, and it started with a "d". I asked her to repeat it, but, again, I was driving. The only thing I can find is duodenum, which is a small protion of the intestine that connects to the stomach. I am not sure that is what she said it was. In any case, I told her that I have been gluten free and how much improvements I have had in the last two weeks. She told me that the blood tests are not always reliable for celiac or wheat intolerance, and a gluten-free diet is sometimes the only way to tell. She said that I should continue eating gluten-free, and then said she would talk to the doctor and get back to me tomorrow to see if they want to biopsy my stomach. I am not sure why, exactly, and now I am kinda more confused. I am greatful, however, to have a doctor who seems more knowledgeable than others with regards to gluten intolerence. Has anyone had a similar experience?

New- Disappointed Don't Know Where To Go From Here

01 May 2008 - 06:15 PM

Sorry this is so long, but I really could use advice.
Ever since I was a young child, I have been plagued by frequent headaches, as well as severe dry skin, including Keratosis Pilaris. I have never found a good explanation for this. I am a pretty healthy 27 year old female, and I have always been pretty skinny, borderline underweight (5’3” and my weight won’t rise above 110, usually around 105). I have also been diagnosed as bipolar for over 10 years.
Anyway, here is the thing. Ever since I can remember, I have never been able to burp. Instead, what happens is that I feel the pressure (gas I assume) coming up my throat and then my throat kind of growls. I also feel overly full when finishing a meal and bloated, and my stomach makes loud, embarrassing noises constantly- hungry or not. In any case, about two weeks ago I decided to try a gluten free diet. After many unexplained skin rashes, (I am told they are viral) as well as eczema (which developed as an adult- while eating a vegan diet), and incredibly itchy leg syndrome, I ultimately had had enough of the big distended belly and love handles. For as skinny as I am EVERYWHERE else, good diet and exercise has never reduced that spare tire look I have.

In this short amount of time since going gluten free, I have seen the most amazing results! The Keratosis Pilaris I have had my whole life is almost completely gone from my stomach, arms, thighs, and buttocks. The two skin tags on the outer side of my butt/thigh area have lightened in color and reduced in size, the dark circles that I have had my entire life improved as well. The most incredible thing, however, is that I lost the majority of the love handles and the distended belly in a matter of a few days! I am talking over two inches from my waist and lower waist. I no longer feel bloated nearly as bad after eating, my throat noises have gotten better, and the consistency of my bowel movements are better. I have LOVED wheat products my whole life, and never would have thought they were behind all these issues. There have been more improvements than I have even listed here.

The problem that I have is that my allergy skin test for wheat was normal, as well as my celiac blood panel and upper GI that I had done recently. Is it all in my head? Do you have any advice for me? I am so sorry to write this long ramble, but I just found out the blood test results today, and I have to admit that I am very disappointed. My mother, sister, and my daughter all have similar issues, and I was hoping that the test might help them figure out something as well.


Thanks!