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Member Since 22 May 2008
Offline Last Active Feb 20 2011 04:40 PM

Posts I've Made

In Topic: Doctor Won't Confirm

07 October 2010 - 10:38 AM

I agree that it sounds like she has positive test results and I don't understand why the doctor would hesitate to diagnose her. My son was 7 when he was diagnosed and his results were on the 'mild' side as well. He had definite symptoms (abdominal pain, dark circles, pain in his legs / joints) and they told us that his biopsy results showed early signs of celiac disease and his blood results were 'low positive.' They diagnosed him, but did say that his results were probably on the low side because we caught it early. He did have the genetic test and it came back positive as well.

In Topic: When Teachers Don't Understand Celiac Kids

18 June 2010 - 05:30 AM

Grace's Mom,

Big hugs to your daughter ... I just about cried reading your post! My oldest son was 7 when he was diagnosed and the first months were the hardest. The end of the year is extra tough with all of the parties and summer birthdays they celebrate. It's so disappointing that your daughter's teacher handled the cake situation like that! I would absolutely tell the principal exactly how you feel and what happened ... hopefully they can pair her with a more compassionate teacher next year!!!

One thing we did when my son was newly diagnosed was to host a party ... a 100 % gluten free party where he could have every item on every table. We had chips, guac, and salsa, made tacos, gluten-free brownies and ice cream for dessert. I think that helped a lot and we try very hard whenever we have people over to make sure he can have 90% of what is offered. We do have a gluten-free house now (except some of my husband's breads and cereal) which has helped a lot, but that's also because we now have 4 out of 5 family members eating gluten free!!

I am so sorry that your daughter is going through such a tough time. It sounds like you're working hard to help her have her own treats / foods when you're out!! It will get better!!


In Topic: Bread Please!

19 February 2010 - 01:00 PM

We gave up on the frozen gluten free breads and make our own using the Pamela's mix. My 3 sons (3,6, and 9) eat it and love it! It's not crumbly and keeps for days without drying out! We go through a loaf a week, but you could easily make it and then freeze half of it in slices to use later.

In Topic: New Celiac 4 Yr Old - How Gluten Free Is Free?

19 February 2010 - 12:57 PM

I, too, think it's wonderful that you're so concerned about your grandchild and helping keep her healthy! My parents live 3 1/2 hours away so it's a little different from your situation. They bought a new cutting board, toaster, and a pasta strainer (all easy ways to get cross contamination) and only bring them out when we come to town. We do use their metal pots and certain skillets (not the cast iron) without problem. When we get to town, I'll clean a section of the counter and it stays gluten free while we're there.

Maybe you could find one part of your counters that could stay gluten free so you don't have to worry as much about cleaning them all the time. And, I like the suggestion of making one cupboard gluten free ... pots, pans, snacks, etc. There are a lot of gluten-free snacks for children that age which are easy to find (tons of ideas on this forum) and it's pretty simple to make any child's favorite meal gluten free!

It all take a little time to learn what foods are safe and working with your son and DIL it'll all get figured out soon!

Good luck!

In Topic: 14 Year Old Just Diagnosed With Celiac

30 January 2010 - 05:41 PM

There are a couple shopping guides that list Gluten Free products. I used one called Cecelia's Marketplace (http://www.ceceliasmarketplace.com/) when we got started almost two years ago. It was a life saver! I found that I could buy special pastas, bread mixes, crackers and such at a store like Whole Foods and then shop at my local grocery store for the mainstream foods like pasta sauce, yogurts, chips, and such to safe money. They also email you (if you sign up on their site) when a product changes or loses it's gluten-free status after testing.

Good luck!

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