cassP

Hi. I've been lurking for awhile & finally decided to join. Looking back, I've had all kinds of symptoms as early as age 8. I started getting tested for Lupus at age 14- because of the classic "butterfly" rash on my face (which actually disappeared at age 27 when I went wheat free & gluten lite on the Bloodtype Diet for Type O).
Anyways, after 2 years of blood tests- a Lupus Diagnosis could not be made- and a Sjorgens test was negative. I never even made a connection till this year- that my elevated speckled ANA could be related to Celiac.
So, as I mentioned above- I found Dr. D'Adamo's Bloodtype Diet in 1999. I was truly, predominantly, wanting a diet to lose weight. I had no idea- that eating mostly meat & veggies, and removing wheat from my diet- would not only slim me down, but progressively cure every annoying physical ailment i had.
I only thought to ask my doc for a Celiac panel after my best friend mentioned it- after being Gluten Lite for almost a decade (with month long binges here and there)- it's no surprise I had 2 inconclusive blood tests... (TTG weak positive, Antigliadin IGA & IGG negative, Endomysial Antibody Positive, IGa serum LOW). I never had the small intestine biopsy because my Health Insurance denied me.
That was 2 years ago, and I just couldn't shake the non-diagnosis... as I looked in the mirror and realized the little holes in my teeth are possibly ANOTHER classic symptom- I decided to order the Gene test through Enterolab. I was expecting to only get one gluten sensitive gene & still be guessing- but I got 2 DQ8s.
Well, that was more than enough motivation to adhere 100%. After YEARS of GI pain combined with my own research, blood & gene tests- I suspect I am a Celiac with some Fructose Malabsorption. Now, I just want my G.I. to formally diagnose me- so that my parents and siblings will get properly checked.
Sorry so long- it's nice to be here- and I'm looking forward to sharing information and support with everyone