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Member Since 03 Jun 2008
Offline Last Active May 08 2010 11:13 AM

Posts I've Made

In Topic: How Long After Diagnosis Did Your Child Start Gaining Weight?

08 May 2010 - 11:00 AM

My son was only 41 pounds when he was diagnosed at age 8. He is now 10 and weighs 57 pounds. He gained weight very quickly at first and we were thrilled. He hasn't gained any weight for a few months now. He is still small for his age but it's not so painfully obvious now.

In Topic: Leg Pain

04 April 2010 - 09:11 AM

I've been getting pretty bad bilateral leg pain/weakness off and on for a long time. It seems to be worse in the morning, and is sometimes accompanied by tingling in my feet or hands. Is this something that is Celiac related? I've had my thyroid levels checked as many family members have Hashimotos , but i'm fine. I also had normal calcium, magnesium and b12 levels.......I do have a slight D deficiency.
Does anyone else get this? I've been gluten free for a couple months......will this go away?

I get leg pain when I eat gluten. It's more like restless leg symdrome. They ache (especially at night) and I feel like I must move them in order to feel better. I was glutenated last week and my legs have been bothering me for the past few nights.

In Topic: Pregnancy Responsible For Triggering Celiac Disease?

04 April 2010 - 07:36 AM

Thanks for your reply, I'm glad your friend found out before her 5th pregnancy and so was able to enjoy it. I can totally relate to just wanting the pain and discomfort to end rather than being able to focus on my unborn baby and enjoy the pregnancy. I feel guilty for not being able to enjoy it and find myself rubbibg my tummy wishing it better instead of rubbibg baby bump to feel a connection with him or her.
I also have an underactive thyroid (since I was 10) and have read that this can also contribute to celiac disease so it seems I may be a candidate for it, I just find the waiting for the blood test results frustrating. However I am already trying a gluten free diet just to see if I feel any better on it and I am already starting to feel some immprovements after just a few days, so this is positive :)

Thanks again for you reply.

In Topic: Help! Son Was gluten-free For Years And Responding, Now Growth Has Stoppe...

08 October 2009 - 04:56 PM

My son has not gained any weight for months now. In fact, he has lost a few pounds so I can sympathize. He gained weight quickly in the first year. Now that we are at 19 months gluten free the growth has stopped and he is regressing. I am so worried. When he had his one year follow up test he was not making antibodies. We haven't changed anything in his diet so I'm not sure what is going on.

In Topic: Why Now?

08 October 2009 - 04:46 PM

My son was the first person ever to be diagnosed with Celiac on both sides of the family. I didn't even know what Celiac was prior to his diagnosis. My husband also questioned my symptoms and said my issues might be sympathy pains for our son. I have always had minor stomach problems but it wasn't until my 2nd C-section in August of 07 that my minor problems blossomed into major, life altering problems. I had no idea what was causing my sudden onset of problems. Everyone, including myself, chalked it up to stress. I began making a connection between feeling horrid after eating whole wheat pasta but I really didn't think much more about it. When my son was diagnosed in March of 08 I finally realized that I might have Celiac too and sure enough I do! I am certain that my 2nd C-section was my trigger. Genetic testing was so helpful in my situation since I had been gluten free for a year and was not going to undergo a challenge.