I was diagnosed 1 1/2 years ago and finally following an even stricter version of SCD I am beginning to feel good again and finally able to function. But my world is still pretty limited because anywhere I go in public I have to be careful of gluten and I first get a blinding headache that tells me I am being exposed and must leave immediately. If I leave the area my head begins to clear but if I linger too long I become very ill.
Before anyone replies that inhaling gluten can't possibly cause these symptoms please restrain yourself. Not believing my reaction does not add any value to my question or my situation. And I am glad for those of you who can't imagine this reaction because it means you don't have this kind of an issue. I want to hear from the folks who also have issues with inhaled gluten causing severe neurological issues like blinding headache, problems with cognition, memory, language then motor skills culminating in an overwhelming need to sleep as if drugged (and GI symptoms set in within 12-24 hrs).
And I guess I need some tips on how I can live with this type of reaction and still make a living for my son and I.