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CCR

Member Since 11 Jun 2008
Offline Last Active Apr 16 2013 01:57 PM
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Topics I've Started

In Search Of A gluten-free, Nut-free, Soy-free Crepe Recipe!

08 September 2008 - 02:23 PM

My 8th grader's French teacher wants to have a monthly French food party in class. She is very open to accommodating his allergies (nuts, soy) as well as his celiac disease. I told her I'd search for a gluten-free crepe recipe. Anyone have one? I'd be very grateful.

Carin

What Follow-up Should I Receive Post-diagnosis?

02 September 2008 - 09:31 AM

After my endoscopy and diagnosis, the gastroenterologist basically said "Bye. Go gluten-free. See you in a few years. You might want to find a nutritionist through your primary care provider."

So now, 3 months later, I am having my first appointment with my primary care provider and I don't know how savvy she'll be about celiac (not very, I fear, since she resisted authorizing bloodwork for my sister after my diagnosis). I need to take charge of my care, right? So I want to know what I should ask for when I see her on Monday.

I was anemic (the symptom that led to the endoscopy) so I know to ask her to check my iron levels. Anything else? Specific vitamin deficiencies, maybe?

A celiac center opened at a hospital about 30 minutes away (at Saint Barnabus in NJ) so if this doesn't go so well, I may head there next. But I like my doctor and I want to give her a chance first.

Any tips?

Carin

How Long Does It Take To React To Gluten?

20 July 2008 - 08:00 AM

I had the weirdest experience yesterday. I have never had a reaction to gluten but was diagnosed celiac by biopsy, so I have been gluten free for about a month. Yesterday, I ate a gluten-free breakfast and a gluten-free lunch (both in the safety of my home and my husband ate the same food and was fine...he's not celiac), then made gluten-free cookies for a barbecue. Got to the barbecue and spent the next hour…ahem…indisposed. I hadn’t eaten any food there at all. And it had been hours since my lunch.

Is it possible to not react to gluten for 4-6 hours after ingesting it? I am wondering if I accidentally glutened myself with my old cookie sheets or with my mixer (though I really cleaned it before I used it). I did eat a few cookies while baking them. I really doubt it was the Lipton Iced Tea I drank at the party just before I got sick. Maybe it was Nestea. I have to google both of those and check.

I have heard that even people who never reacted to gluten before can start reacting once they have been gluten-free for a while but this really surprised me. I didn’t dare eat a thing until I got home at midnight and even then I just had a banana. I’m fine today. So far.

I guess it’s possible that my sick spell had nothing to do with celiac at all…maybe I had a 60 minute bug! But that seems like wishful thinking.

Any thoughts on the above would be most welcome.

Carin