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suzyq63

Member Since 28 Jun 2008
Offline Last Active Dec 23 2011 03:09 PM
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Posts I've Made

In Topic: Celiac And Other Auto-Immune Diseases

17 January 2011 - 05:27 PM

We're dealing with two autoimmune diseases so far. Alison was diagnosed with Type 1 diabetes in January, 2008, and immediately started losing weight after diagnosis. She was screened for celiac, but only had a high IgG antigliadin antibodies; other tests were negative. She was screened every 6 months and the numbers started climbing. She was finally diagnosed with celiac (by biopsy) in August 2010. She deals with other non-autoimmune issues, so I really hope we're done with any more diseases!

Paula

In Topic: Baking Cookies Specifically Chocolate Chip

15 January 2011 - 12:19 PM

Have you tried the recipe using Butter Crisco? I am no expert at gluten-free baking, but I used that recipe and substituted the Bette Hagman blend. I added 1/2 teaspoon of xanthan gum. They came out very well. I even tasted the raw dough; and other than a slight grittiness, the dough tasted exactly like the gluten dough. I've only done it once so maybe I just got lucky.

Paula

In Topic: Need Emergency Help Regarding Generic Medication

10 January 2011 - 04:35 PM

Thank you. I only asked about topiramate, so I don't know about any other meds made by Mylan. In the end, we got the prior authorization for name-brand topamax and were able to fill it late this afternoon. I now have to seriously consider if we want to try the generic in the near future. The price for the name-brand went up again (my copay is still the same though). The pills are just over $10 per pill and Alison takes 6 pills per day. That price is utterly ridiculous! Unfortunately, the generic is often not exactly the same as the name brand when it comes to seizures, so it's a tough decision.

Paula

In Topic: Need Emergency Help Regarding Generic Medication

10 January 2011 - 11:18 AM

Thanks. I do feel better about using a generic, at least as far as celiac is concerned. I'm still nervous to switch her to a generic due to having such excellent seizure control with the name brand. I'd really hate to lose control. But there's not much more I can do now; we're at the mercy of the insurance company. I should find out later today or tomorrow morning which medication she'll be taking.

Paula

In Topic: Need Emergency Help Regarding Generic Medication

10 January 2011 - 10:21 AM

I may have answered my own question. I decided to call the manufacturer of the name brand to ask them about their gluten-free status. They will only say that they do not use and wheat, rye, barley, spelt, etc. in their manufacturing process. They do not test at the end. So I guess that the generic is equivalent to the name brand as far as gluten-free goes. I'm not sure of its efficacy for seizure control since every patient is different.

Paula

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