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suzyq63

Member Since 28 Jun 2008
Offline Last Active Dec 23 2011 03:09 PM
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Topics I've Started

Need Emergency Help Regarding Generic Medication

10 January 2011 - 09:48 AM

Thanks to our health insurance company, my daughter with celiac may have to switch to a generic seizure medication. The insurance company messed up and now she is due to run out of her meds tomorrow morning! I called CVS to find out which manufacturer they use for the generic of topamax (topiramate). I called the company and they said they do not use the term gluten free; they don't do end-of-line testing. They state that "we do not add gluten". The starches they use are corn, rice, or potato. Alcohols are synthetic. So now I'm not sure what to do. We are hoping to get a prior authorization through today so she can continue with the name brand; without prior authorization the insurance will not cover the name brand at all now. The name brand is super expensive; the insurance is paying $1600 per month. There is no way we can pay out of pocket for the name brand.

Would you consider this generic safe? There are 17 different manufacturers of topiramate, but Mylan is the company used by CVS. What do you do about generics? Do you research to find out all manufacturers and then call every one of them and then find a pharmacy that will use whoever will verify they're gluten free?

Paula

Need Otc Iron Without Intestinal Side Effects

30 November 2010 - 06:46 AM

My daughter was diagnosed with celiac in August. We caught it super early (we watched the numbers increase over the course of 2 years) so at her 3 month follow-up, all her numbers were back in the normal range. However, her anemia has not improved at all.

Her hgb was 10.1 in July, so she started taking Bifera (recommended by the gastro). At her follow-up her hgb was still 10.1. Her iron-binding capacity was 507 (range of ? - 400). I believe it was her ferritin that was 16 (range 50-170). All those other MCV, MCHC, etc. were all abnormal too. The primary care doctor said to eat red meat and she should be fine. We do eat red meat, not every day but we do eat it. I don't understand why her numbers won't come up. I'm wondering if there's a better iron supplement to use. From what I've read, heme iron is better absorbed by the body and many supplements contain non-heme (plant-based) iron. What do you use?

Paula

Egg Noodles?

26 September 2010 - 11:08 AM

Does anyone make a gluten-free egg noodle? One of our family's favorites is Creamy Italian Noodles. Yesterday I bought Tinkyada lasagna, cooked it partially, cut it into egg noodle size strips; then today I finished cooking them and proceeded to make the recipe. I made plenty of extra so my daughter has a couple of meals' worth of "noodles" in the freezer; so at least I won't have to go through the tedious task of cutting lasagna noodles for a while. Thanks.

Paula

Whole Body Hurting?

26 September 2010 - 10:54 AM

Is this a common symptom? My daughter has been gluten-free for about 6 weeks. Celiac was caught extremely early stages. Prior to diagnosis, she would often complain of her whole body hurting - like the body aches you get when you're sick. Those complaints had gone away but have come back in the last 2 days, usually at night. She also deals with Type 1 diabetes and epilepsy; it can be hard to figure out what is related to what. Thank you.

Paula

Adhesive To Reglue Crown - May Be Dumb Question

30 August 2010 - 05:29 AM

My daughter was diagnosed almost 2 weeks ago, so we're definitely new to this. Although I have done a lot of research since she also has Type 1 diabetes and expected she would some day be diagnosed with celiac.

She has to have a crown "reglued" this afternoon. Could there be a possibility of gluten in adhesive? I will call the dentist, but want to know what I'm talking about when I ask him. Thanks.

Paula