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Rebecca's mom
Member Since 30 Jun 2008Offline Last Active Jun 19 2011 03:15 PM
About Me
Youngest daughter (with Down syndrome) had "Silent" celiac disease; diagnosed in April, 2008 - rest of family tested negative on blood tests
After I went on gluten-free diet, realized that I am, at the very least, Gluten Sensitive (have not had genetic testing done) - will never go back on gluten, because the reaction is just not worth it -
Had rest of family genetically tested - none of them carry the celiac disease gene, but all of them have 2 gluten-sensitive genes; must mean that I am the carrier -
Wondering if the skin condition that I had (non-itchy lesions that wouldn't go away until gluten-free diet) might have been a form of DH
I am now doing personal research into a possible connection between undiagnosed maternal celiac disease and the incidence of Down syndrome births, given the high number of people with DS who also have celiac disease
After I went on gluten-free diet, realized that I am, at the very least, Gluten Sensitive (have not had genetic testing done) - will never go back on gluten, because the reaction is just not worth it -
Had rest of family genetically tested - none of them carry the celiac disease gene, but all of them have 2 gluten-sensitive genes; must mean that I am the carrier -
Wondering if the skin condition that I had (non-itchy lesions that wouldn't go away until gluten-free diet) might have been a form of DH
I am now doing personal research into a possible connection between undiagnosed maternal celiac disease and the incidence of Down syndrome births, given the high number of people with DS who also have celiac disease
Community Stats
- Group Advanced Members
- Active Posts 69
- Profile Views 3,160
- Member Title Community Member
- Age 52 years old
- Birthday October 18, 1960
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Gender
Female
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Location
Fort Worth, Texas
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