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Rebecca's mom

Member Since 30 Jun 2008
Offline Last Active Jun 19 2011 03:15 PM
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Posts I've Made

In Topic: Severe Muscle Weakness. Unknown Cause.

24 February 2010 - 04:29 PM

I've been gluten-free since April, 2008, and went to see an ocular plastic surgeon today, because my right eyelid has started to droop. I was *this* close to getting an eyelid lift covered by my insurance when she said that she needed to do one more test, "Just to be sure".

Well, wouldn't you know it, I "failed" that test, and now I have an appointment in May to see a neurologist to be tested for Myasthenia Gravis. And now that I have started reading about it, I am realizing that I have been having several of the symptoms associated with it over the past few months - all of which I attributed to either age or weight or both.

I had been feeling so GOOD after going gluten-free, and then the past couple of months I started feeling really lousy. I guess it would be good to have a definitive diagnosis, but I was thinking that all of my little health problems were behind me. I guess it could be a LOT worse....

In Topic: Question About Listing Of Celiac Support Groups

05 July 2009 - 12:35 PM

Thanks so much!

In Topic: Weight Loss Surgery, Questions About Celiac Disease

28 June 2009 - 04:55 PM

Just out of curiosity, what made you look at Celiac Disease in the first place? I do hope that you are able to find some answers to your questions, but even if your test results come back negative, you might want to give a GFD a try. I don't know if the WLS will affect your test results or not - it might be something to ask your GI and/or PCP. At the very least, encourage your son to have both himself and his son tested for celiac disease - it could save them both many years of physical suffering! Your son will likely find that he is able to lose some (if not most) of the excess weight that he is carrying around.

Please let us know what you find out!

In Topic: Citric Acid Sensitivity

31 May 2009 - 11:17 AM

I haven't noticed a problem with citrus fruits, but I haven't eaten any in a while - it will be interesting to see what happens. It appears that - in my case, at least - I personally am having a reaction to the Aspergillus mold that is used during the manufacturing of "food grade" citric acid. I have a similar reaction to vinegar, as well - apparently some people with mold allergies can have bad reactions to vinegar.

I knew that I was allergic to mold - it never occurred to me that mold could be an INTERNAL allergy......

In Topic: Citric Acid Sensitivity

28 May 2009 - 05:33 PM

I am so glad I ran across this thread - I've been having reactions to canned pineapple, and I couldn't figure out what could have been causing it! I have a different "reaction" from most people - I start itching uncontrollably when I accidentally ingest gluten, and it doesn't take much at all. I also have been having problems with an ingredient called "Natamycin", which is now a common additive in shredded cheese.

Thanks so much for the info!