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Rebecca's mom

Member Since 30 Jun 2008
Offline Last Active Jun 19 2011 03:15 PM

Topics I've Started

Question About Listing Of Celiac Support Groups

05 July 2009 - 10:58 AM

I just went to the link for the listings of local Celiac Support Groups, and the last state listed is Montana. I am pretty sure that there are local support groups in the states that begin with the letters N-Z; is a page just missing, or am I going crazy?


25 April 2009 - 06:51 AM

I didn't know if anyone might know where I can find an answer to my question. Recently, I have had a reaction to a couple of foods which I thought were gluten-free (I read the label and didn't see anything which set off warning bells). When I looked at the labels on these foods, there was an ingredient which I don't recall seeing on any other foods - Natamycin. Upon further investigation, I could find very little information on this product, especially the manner in which it is processed. It is apparently used as a mold inhibitor (I do know that I am allergic to mold........). The company which is listed is in China, so I sent them an e-mail, but I don't know what, if anything, will become of it.

Have you heard anything about this ingredient? I can't say for sure if it is causing a gluten reaction in me, because my "symptoms" aren't those of the typical celiac disease patient - I hardly ever get diarrhea or stomach upset. What I do get is itchy skin, the "fidgets", and bloating/weight gain. I noticed the itchy skin and the bloating over the past few days (I had only eaten one of the foods before yesterday, then ate both - then made the correlation).

One of the sites which I was directed to was Whole Foods Market, and they will not accept any foods in their stores which use natamycin, other than cheese slices (one of the 2 products which gave me problems - not bought at WFM, but at Sam's Club). I am not sure why they have this policy, so I have sent them an e-mail asking about that.

Any help that anyone can give me would be greatly appreciated! Obviously, I am not going to be eating either of these items again, but I am wondering if I need to worry about giving foods with this ingredient in it to my other family members with celiac disease / Gluten Sensitivity, or if this is just a coincidental allergic reaction on my part. Thank you so much -

Subject Heading Suggestions

24 April 2009 - 02:47 PM

I am wondering who we would need to contact to see if it would be possible to "add" a forum subject. I am sure that a lot of people have questions about "intimate" issues (sexual, physical [non-sexual], emotional, etc.) after a celiac disease diagnosis, but there isn't a place that exclusively deals with this issue, and it isn't easy to find answers to some questions. A person really has to look hard for these topics on various forums.

Obviously there would have to be limits to what can be posted to such a forum, but I do think that it might be a valuable addition to the forum section. Thanks for listening!

Teresa Koch
Fort Worth, Texas

Delicate Subject - Anyone Else?

22 April 2009 - 09:26 AM

Hi all,
My DH has been gluten-free for a couple of months now (gluten sensitive, not celiac disease), and I am wondering if we are the only people who have made this serendipitous discovery. I'm not sure how to put this, but he's - um - "bigger and better" (lots!) when he's gluten-free.

Believe me, I'm not complaining; it's REALLY great - it's like we're 20-year-olds all over again. If anything, I complain if he eats something that he knows gives him trouble (ahem, the Steak Bowl at Taco Bell - thanks for "nothing".....), because for a couple of days afterward, it's not quite the same!

Goodness, this is so embarassing! I don't usually talk about these kinds of things to strangers, but I don't have many friends who have celiac disease, and even if I did, how would I go about broaching the subject? "Oh, by the way, if you eat Gluten-Free, you might not need Viagra for a VERY long time....."?

Anyway, I've bared my soul, so 'fess up people. Has anyone else had this experience? Does it last (I hope the answer is "Yes"!)? Is this the best thing since sliced bread? (It is for DH and me!)

Lord, I hope my family members don't read this -

Unusual Question

16 April 2009 - 07:22 AM

Hi all,
I am not sure if this is due to celiac disease or something else. I have NEVER been lactose intolerant. I have DH, but my bloodwork came back negative for celiac disease - since the 2 are associated with each other, I have been on a GFD for the past year. I haven't had any problems with any dairy products until just recently. I am wondering if it is possible to develop LI this long after initiating a GFD.

I should also mention that I have been on a pretty intensive dose of Bactrim for the past 6 weeks. Normally, I don't have any problem taking antibiotics, but I am wondering if the length of time combined with the dosage might be what is contributing to my stomach feeling queasy, instead of a lactose intolerance. I am taking the Bactrim to clear up the last few stubborn sores of my DH, so I can probably back off of the dosage if I need to.

Has anyone else had anything remotely like this happen to them? I don't have a problem with the gluten-free diet, but I love my dairy products - that would be MUCH harder for me to give up!!!!!!


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