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Member Since 08 Jul 2008
Offline Last Active Oct 16 2011 09:34 AM

Posts I've Made

In Topic: Help

05 November 2009 - 02:27 PM

I was diagnosed with sma syndrome back in March 08' and I don't know how to even start handling it. I think about it all of the time and I'm really scared of what could happen. I feel the pain and discomfort of it almost everyday. Its not as bad as it was last year but its just about the same though. I seen a couple of doctors about it and all they can tell me right now is to try to change my diet and see where that goes. When they diagnosed me my spacing around my artery was only 4mm. I can't even play with my kids sometimes. I just really need some kinda guidence I've been on my own most of my life without parents so this is really tuff on me. I just wanna feel better.

Hi :)--

If you have any questions, or you don't know where to start, or just need to vent, go for it!! We're all here to listen and help.

In Topic: Someone To Talk To

05 November 2009 - 02:25 PM

Hey everyone,

I am a college student who was recently diagnosed with celiac's disease. Often I find myself frustrated and dissapointed with friends and family members because they have a hard time understanding the things I struggle with in regards to living the gluten free lifestyle (fear of restaurants, cooking in other kitchens, and insisting on preparing my own foods for the holidays to name a few!). It would be nice if I had someone else my age to talk to about these issues, but I seem to be the only one in this area (Central California) with celiac disease. Is there anyone else out there needing someone to talk to too?


Hey :)! First off welcome to the forum! I don't live in california and I'm only 15 but I'd love to talk with you!! If you have any questions, ask away!! You can message me on here anytime or just add to this discussion :)

Look forward to talking with you :)!!


In Topic: My Vent....

19 September 2009 - 05:05 PM

That is tough. I've never been there as the teacher but Ive been there as the student and it stinks. I really really do not understand how they can just ignore it when we have a 504 plan in place. My mom is a teacher and always reads it if a child has one. It becomes very frusterating and is continuing to happen first with art projects then when I tried getting school lunch and now when teachers bring in snacks for homeroom. Its unbelievable. Sorry to hear this is happening to you too...

In Topic: Is Anyone Able To Explain This?

19 September 2009 - 04:53 PM

Hello all, this is my first post on these forums so please take it easy on me :lol: .
I guess I'll start from the beginning. About 2 months ago I came to the realization that I
might have a gluten intolerance because out of the blue, about a year ago, I noticed that certain foods like bread, cereal and pasta would all give me indigestion. When this indigestion first started I had no idea about gluten intolerance and just continued eating my regular diet. Around the time that I turned 22 I started to get curious about why this indigestion kept happening to me so I did what a lot of people on this site probably did and started googling.
After a little searching I came across the topic of gluten intolerance/celiac disease and began to wonder if this is what the problem was.

Now that I had a possible answer to my problem I decided to test it out so I went gluten "free" for a while and noticed that my indigestion problem disappeared. Now for my question. After discovering that I might have a gluten intolerance I noticed that certain foods that contain gluten didn't bother my digestive system while others did. For example kellogg's bran flakes, brand named breads (like wonder bread) and chef boyardee ravioli would all give me terrible indigestion but foods like Fiber1 cereal, bread (that was made fresh in a bakery), hamburgers (homemade and fast food) and spaghetti would not give me any digestion issues whatsoever. So I was wondering if anyone had an explanation for this "anomaly". Thanks in advance! :)

Not everyone that has celiac disease has the classic symptoms...they may also have the symptoms with only certain foods too..so you really should be tested.

In Topic: Teen Wanting Celiac Online Friends!

13 September 2009 - 02:15 PM


this is a link to the recipe i got out of my cookbook from roben ryberg "Gluten Free Kitchen." she really knows her stuff.

i like to change the flour mix though.. last time i did cornstarch equal to the amount called for but subbed half the potato starch for buckwheat flour because i hadnt ever used them. these turn out really well. i roll them out on sugared parchment paper so that you can pick up one side of it to roll them up. the dough is very soft and wet and its really difficult to pick it up to roll haha
good luck i think you'll be happy with them. and im hoping to undertake poptarts really soon :D wish me luck

Thanks for the link!! I made them today and they are so so so delicious!!! I've tried making them before and failed so thanks :)

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