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nasalady

Member Since 19 Jul 2008
Offline Last Active Mar 30 2011 04:18 PM
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Posts I've Made

In Topic: Can Medication Affect Test Results? Labs?

23 November 2010 - 04:31 PM

Does anyone know if prednisone, remicade and/or imuran can affect labs? What about endoscopy/biopsies? If those drugs suppress the immune system, do they make the villi appear normal (albeit temporarily).


Hi kelliac,

My gastroenterologist gave me a clinical diagnosis of celiac disease even though my tests were negative (blood work and biopsy). I have the HLA DQ8 marker, reacted very strongly to a gluten challenge, and have family members with celiac disease, including 3 of my 5 grandchildren. He said that my prednisone and Imuran would suppress antibody production and allow my villi to re-generate.

I guess the bottom line is that we need to listen to our bodies. How do you feel when you eat gluten? How do you feel when you don't? If you feel better gluten free, then you have your answer! It doesn't really matter whether they call it celiac disease or gluten intolerance because the treatment is the same for both: the gluten free diet!

Good luck with everything!
JoAnn

In Topic: Feeling Lost - Can You Help?

29 June 2010 - 05:07 PM

So for starters - what would you do? I don't see that it can hurt to do the blood test. Then if it is negative I can still try elimination diet. I don't know though. I guess if I will be doing it either way it doesn't hurt to start.


I think that you already have a good idea there....get the blood test done but be prepared for a possible false negative.

So there in lies the real problem. I can't find a place to start! I find lots of symptoms and what to eat and not to eat... but I am looking for a resource that will tell me everything I need to get rid of and how to eat the first couple weeks. I need to know how "clean" my kitchen should be... I just feel lost! there's so much information! I just want something that tells me how to diagnose by elimination diet, what I eat for how long, symptoms to watch for etc...


One of the best resources for how clean your kitchen should be and simple things to eat for the first couple of weeks that I know of is the following post on Karina's blog:

How to start living gluten free

Take it easy....identify things that you eat right now that are gluten free! Do you eat steak? eggs? vegetables? potatoes? rice? All of those things are naturally gluten free. Raw, unprocessed foods are best because when seasonings are added you can get hidden gluten in there. But Karina says it best...please read the post on her blog and I think that will give you good info to start with.

If I were you, after the blood testing is done, I would go gluten free for about 3-4 weeks then try eating gluten and see how you feel. If you feel better without gluten and worse when you eat gluten then that's really all you need to know, IMHO!

Good luck with everything!!
JoAnn

In Topic: Gluten Sensitivity Gene...years Of Pain?

15 March 2010 - 05:57 PM

Hi Everybody..This is my first posting and have a lot of questions on how having the gluten-sensitivity gene actually translates into real autoimmune symptoms. I have been on the autoimmune misdiagnosis roller coaster for about 4 years now. What started as red inflamed eyes turned into hip pain, extreme joint pain, feet and hand pain, skin rashes and anxiety. I have been told I have lupus, Sjogren's, adrenal fatigue etc.. My labs show a positive ana titer and a low serum 4. But my rheumy can not come up with an actual diagnosis because my labs are constantly changing.

I do have some GI issues but they would be way down on the list of complaints. Today would be day one of the gluten-free diet and I would like to know there is some hope that this could actually help.

Thanks in advance for any input, advice or experiences shared...

Irisheyes


Hi Irisheyes,

As previous posters have said, the short answer is YES. Celiac disease is a very complex disorder; most people think it only involves the GI tract, but researchers have found that celiac causes the body to produce antibodies against bone, skin, and even the brain!

Some or hopefully all of your symptoms may (eventually) go away on the gluten free diet. Like many of us, you may be sensitive to more than just gluten....other possible culprits include dairy, soy, corn, etc. Some are so ill when they start the gluten free diet that it can take months or even a year or two before all of their issues go into remission.

This has been mentioned before, but I will reiterate: if you want to be ACCURATELY tested for celiac disease, i.e., have blood tests for the autoantibodies, etc. that go with the disease, and/or an intestinal biopsy, you MUST continue to eat lots of gluten until all testing is done. You can go gluten free AFTER you finish the tests.

Now, as to the link between celiac disease and other autoimmune conditions, medical researchers have discovered that untreated celiac disease can actually "open the door" for other autoimmune disorders to develop. Here is a great article on how this happens: Zonulin and Celiac Disease.

Many of us have multiple autoimmune diseases, in fact the older we are, the more of them we have, as a rule. Take a look at the list of autoimmune diseases in my signature; I wasn't diagnosed with celiac until I was 52. :(

Of course, I'm a bit complicated because I also have Lyme disease....Lyme disease can ALSO trigger autoimmune diseases and fibromyalgia. But I do blame celiac for at least half of my other conditions!!

I suspect, from your name, that you're either Irish or of Irish background. Me, too. :)

FYI, the Irish have one of the highest rates of celiac disease in the world. And they're no slouches at developing other autoimmune diseases either! The luck of the Irish at work, no doubt! :P

Remember to keep an open mind and do lots of research for yourself!! You may have more than one disorder there, that always makes things complicated.

Good luck with everything!
JoAnn

In Topic: Gluten Sensitivity Gene...years Of Pain?

15 March 2010 - 05:14 PM

I am also trying the gluten free diet..actually started it last week in hopes that it will help with my muscle and jiont pain...along with my gastro problems.I havent noticed a difference in the muscle and jiont pain yet,but Im sticking to it anyway.My doctor is sending me for bloodwork for celiac,and I was told I dont have to eat gluten for it to be accurate...but everyone else says I do have to eat it...Im so confused!!


Your doctor is wrong. You have to eat LOTS of gluten until after all tests are done (including bloodwork and intestinal biopsy) if you want accurate results. The more gluten the better!

You can go on the gluten free diet the day after testing is done....you don't have to wait for the results! :)

In Topic: Doctor'S "Diagnosis"

14 March 2010 - 06:31 PM

I'm speechless.

Very close correlation between Type 1 diabetes and Coeliac Disease.

My grandmother was a Type 1 diabetic as were 3 of my aunts, as is my older son. I am not but have Coeliac Disease ( + bloodwork and biopsy)

Mum's side of the family is riddled with auto-immune disease.

AND you are hypothyroid. Do you have Hashimoto's Disease? I also have Hashi's


Hi Nutralady,

Celiac disease is closely correlated with MANY other autoimmune diseases, particularly the thyroid ones (Hashimoto's and Graves Disease). We have all of the above in our family, plus lupus, Addison's disease, rheumatoid arthritis, autoimmune hepatitis....you name it, I'm sure I can find a cousin of mine who has it. In my case, it's my father's family that's "riddled with" AI diseases. :)

Celiac disease is notorious for "opening the door" for other AI diseases to develop. For more information on how that happens, you might want to read this article: High zonulin levels in celiac disease can lead to other autoimmune diseases

Good luck!
JoAnn