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wilsjel

Member Since 24 Jul 2008
Offline Last Active Jul 27 2008 06:48 AM
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Topics I've Started

Does This Sound Like Celiac's?

24 July 2008 - 11:51 AM

Hello,

Probably like many of you, I have been through my round of doctors and have just been “diagnosed” with Celiac’s disease.

I wanted to post my history to see what you all thought – I am just not totally convinced that my symptoms mimic Celiac’s. My doctor told me to, “Go online and google it and you will find that it directly describes you.” …I just want to see if anyone has any similar experiences / symptoms and get some opinions from the people who actually live with it! (=

So, where to start? ... First off, if this matters - I'm a 19 year old female (:

In 2006, I was diagnosed with PCOS due to bloodwork and irregular periods. Since, I’ve been on birth control and have had absolutely no problems or really even symptoms – besides the irregular periods when I am not on birth control.

So, fast forward. March of this year. One weekend, I just got this horrible pain in my lower back. I went to the ER, thinking it may be kidney related (it was in the “kidney area”) and all bloodwork / urine came back normal. The doctor there seemed to think it was muscular (which I KNOW it was NOT) and gave me an injection of anti-inflammatory which did not touch the pain one single bit. A CT scan was also done which was normal.
After that, I was on the couch for about 2 weeks with excruciating pain in my back area.
It eventually went away, being constant but with much less intensity. Now, it comes every once and a while and does hurt, but not like it did in March.

So – I went to my doctor and she suggested it was colitis or diverticulitis (my dad had diverticulitis and had part of his colon removed). She scheduled me for a colonoscopy with a gastroenterologist.

Colonoscopy was completely normal except for a spot of irritation which the GI doctor said would heal itself and was already on the road to recovery… The tissue taken was also completely normal.

After the colonoscopy, I was still in a lot of pain, my stomach hurt constantly. My gastroenterologist then ordered an ultra-sound. Once again, completely normal.

Then, I started having blood in my stool. I had blood in my stool about a year or two ago – at that time, I called my doctor and he did not seem worried at all. Well, this instance of blood- there was a lot. And I was worried. I called the gastro and he didn’t seem to be concerned, just to keep an eye on it (I kept reiterating there was a lot of blood, but no one seemed concerned).

So, I had large amounts of blood twice in my stool in less than two weeks apart. It concerned me, but as a gastroenterologist, I assume he heard it all of the time and wasn’t concerned.

He decided to do a lower flex sigmoid after the blood, to make sure my colon was indeed ok. That was also normal- the irritation found in the initial colonoscopy was also gone. (He had been relating a lot of my problems to that “irritation”- that miraculously disappeared?). The tissue taken during that scope was also normal.

I went to my gyno, suspecting something like endometriosis. HE was the one who suggested Celiac’s- and I just now started my gluten-free days. He wants me to do a trial diet for about a month to see if my stomach feels better. On a daily basis, I feel bloated and just painful in my pelvic / lower GI area. He said that will go away when I eliminate gluten from my diet.

I told him I was very skeptical about it because I did not understand how / why that would cause so much blood in my stool. Also, this disease does not sound like it comes on suddenly, like my pain when it first started.

This are just speculations I have – I am definitely willing to try this gluten-free diet, but I am also wondering if you all have had similar experiences/ symptoms… or if you all think I do or I don’t sound “Celiac”.

Thanks for your responses in advance, I really do appreciate any input!