Thx for your response. Yeah, that is very technical- so are you saying that CD4+ and CD8+ T cells are the same cells that are in the celiac intestine? That is very weird! I wonder if a Rheumatologist would know of this connection.
It just seems that these syringomas are so rare and I found an article saying that the first case of eruptive syringomas was reported in 1987, that is so recent. I doubt a lot of Dr's would have insight to this since it seems so abnormal/rare.
It does seem coincidental though. I have my follow up appt to go over the endo biopsy Friday with the GI Dr, so I will ask him, but I doubt he will know
I've just had so many weird symptoms this year, I am wondering if they are all connected somehow. My other weird symptom was 2 enlarged left axillary lymph nodes that no one could figure out. They were painful too. They were enlarged for about 6 mos, but on my last ultrasound they were back to normal size. It was scary, I was referred to an oncologist for fear of lymphoma.
Well after 30 years of symptoms & 16 years of countless Doctors & labs I can tell you pin pointing which autoimmune condition you are dealing with is no easy task. About 9 years ago they dxed me with SLE Lupus, gave me treatments that didn't work for me...I just kept getting sicker & sicker. 2 Years ago they found celiac & I can't get a straight answer if I have both or just celiac....some Drs say yes both, some say untreated celiac caused lupus, now they say they doubt it's lupus. Anyways with autoimmune conditions if you have one you are likely to have others. Some scarier than others. I do have hashimoto's, celiac, arthritis, allergies, asthma, colitis, are other autoimmune conditions that run in my family... that's another thing they do run in families. For many autoimmune conditions the treatment is the same regardless of the name they put on the condition...they are all some form of your immune system attacking your own body.
I think spinal tap is needed to dx MS but they can run MRI's & nerve tests to see if they find any abnormalities. Those tests are less invasive I've had them...no so bad.Had never heard of syringomas, but just googled them & have seen them before...look like in most cases they are harmless. Also lots of people I know with lupus have enlarged lymph nodes that are not because of cancer or anything. Probably good to have it checked out but try not to worry too much.
ANA is the basic autoimmune condition test but as I have found out celiac & hashimoto's can cause this too, as well as having a family member with an autoimmune condition, or it's just normal in some people.
A Rheumatologist is supposed to be the Dr to see for autoimmune conditions but I have found they focus mostly on arthritic conditions. Have very little input on non arthritic autoimmune conditions - like celiac...they send ya to the GI who focuses on the gut not the other symptoms...so sometimes it feels like there is not a specific Doc to help with the confusion of autoimmune illness.
Still I would see if your primary will refer you, if your Dad had MS it's probably worth looking into. They can run a bunch of tests, some pick up on specific autoimmune conditions other are more general.
Hope your having some luck! Feel free to ask me questions any time.