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Member Since 18 Aug 2008
Offline Last Active Sep 30 2010 10:42 AM

#637541 Celiac And Now Autoimmune Hepatitis

Posted by on 06 September 2010 - 07:49 PM

On Aug 13, I was officially diagnosed with Celiac Disease and 12 days later, was diagnosed with Autoimmune Hepatitis with Stage 4 Fibrosis...wondering what is next???

I have only been on my gluten-free diet for 2 weeks and 2 days ago, started taking Prednisone and 6-mp for the AIH and am having issues again with everything that I eat! I have dropped 6lbs in 2weeks and scared to lose anymore weight but eating is making me very sick.

My whole story is on my profile page but I would love to hear if others are/have been in the same boat. I just don't know what to expect with all of this.


Hi There!
I wanted to let you know you are not alone, I was dxed with celiac in July of '08 I have been gluten free ever since. A couple months before my celiac dx they thought I had autoimmune hep. my labs had shown it for almost a year. So they ordered a liver biopsy, & they said the results really surprised them....my liver was very healthy with only minor inflammation. My GI thought my liver labs would normalize going gluten free...& they have! It did take almost a year. But they have stayed normal since.

Now healing varies from person to person, I'm one of those who needed to do alot more than just gluten free & two year later still have alot of healing to go. I found out pretty quick my body would not tolerate soy, cow dairy, or most grains. I had a bunch of new food allergies & sensitivities. My Drs now think leaky gut is a problem.

So don't get discouraged it's a major life change & takes some experimenting but over all we feel much better off gluten-free than while consuming gluten.

As for the autoimmune stuff...I also have hashimoto's, colitis, raynaud's, sjogrens & possible lupus. & Yes they say if you have one autoimmune condition you are likely to have more. Most are not too serious (a few are but they should see those in labs/symptoms) most are treated the same way...prednisone & it will reduce inflammation, help the pain & make you gain weight. If you are on it long term it has some side effects so try to stick with it as needed.

I get mixed info about my autoimmune combo, some say I have all some say some, some say the untreated celiac caused them & they may get better with time & being gluten-free.

Just wanted to share, hang in there!
Ask any questions you need...hope you feel better!
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