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Member Since 01 Sep 2008
Offline Last Active Jan 23 2014 01:40 AM

Topics I've Started

Fibromyalgia Anyone?

12 January 2014 - 03:06 AM

Hi all,

Over the last few years I've been having some deep muscle pain and tingling in my hands and feet. Around August of last year I started developing insomnia, debilitating exhaustion, agonizing nerve pain all over but especially in my hands and feet, an inability to regulate body temp and extreme myalgia pain all over my body to the point of having to use a cane to walk. I have also experienced brain fog, memory loss and sensory sensitivity to light, smells, noise and touch..... you name it, it creates pain for me.


In May, after seeing 6 different doctors, I was diagnosed with Fibromyalgia. I now have to take 4 different medications daily to try to get the nerve misfiring under control and to help me get some sleep. I also take pain meds every 6 hours and I have a stronger pain med for really bad days. In the last 2 months I have had to go to the hospital 3 times for morphine shots when the pain has become unbearable. I had to quit my job because I could no longer perform.


My question is, do any of you have Fibromyalgia or CFS? Were you diagnosed before or after celiac disease or gluten sensitivity? All of my Dr.'s were surprised to learn I have Celiac disease and don't seem to think there is a connection. I was wondering what your experience might be if you have both and if you have any pearls of wisdom.



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