Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 05 Sep 2008
Offline Last Active Apr 07 2014 12:42 PM

Posts I've Made

In Topic: Desensitizing The "other Food Intolerances"

07 April 2014 - 12:44 PM

Mast Cells are certainly involved in the mechanism that caused me to develop many "delayed food allergies". 


Until I recently found the correct combo of H1, H2 and Mast Cell Blockers to control the mast cell reaction within my digestive system -- I had never got any food back that I've had to remove these past five years - except almonds.  No amount of rotation helped, I failed every challenge to every food for the past three years.


I can now do most dairy - just not aged cheese along with small amounts of corn and rice.  Taking it very slow as I am fearful of yet another backslide.


I hope rotation helps you, but if you have gut inflammation caused by the many mediators that mast cell dump when out of control, I highly recommend seeking the advice of a top notch allergist to find the correct prophylactic antihistamine usage for your body.


For those of you reading along that don't know me -- I rarely advise folks to add medication to solve dietary isusses.  If a change in diet is enough to improve health, that should always be tried first IMO :)

You chopped a useful link out of something I posted :( 

It was so unfair, I didn't want to post here for a long time.  I wasn't expecting to hear from the same person who did that to me.  So sorry, I can't reply.

In Topic: Desensitizing The "other Food Intolerances"

07 April 2014 - 08:20 AM

I decided to eat most of those foods only once every 8 days.  I've actually developed new delayed food allergies to some foods that I was eating once every 4 days.  That happened with allergenic foods - seeds and nuts mostly. 

In Topic: Desensitizing The "other Food Intolerances"

06 April 2014 - 07:33 AM

The research in oral desensitization for IgE allergies is still very new, very experimental and very undetermined as far as if the patient will remain not allergic. It also requires life long (as far as they can tell now) maintenance daily to weekly.  Also, there isn't a lot of research on FPIES. They don't even have a billing code for it so it's not recognized by a lot of Dr's at all.


Many people choose to take daily antihistamines to help with symptoms of airborne allergies. Perhaps it's something to consider.  

What I'm doing is very experimental - but then, going on a longterm hypoallergenic elimination diet is also experimental, and I think it may be bad for my immune system. 

I do take an antihistamine, the loratadine.  The 15 mg loratadine I take every day is more than the 10 mg "standard" dose.  I've heard the 10 mg dose is actually a rather small dose, and I found 15 mg works better to decrease the food reaction.

My delayed food allergies probably involve mast cells, because the mast cell stabilizer cromolyn helps prevent the reaction, as does the antihistamine. 

That doesn't imply that my delayed food allergies are IgE-mediated, because there are other immune mechanisms for triggering mast cells. 

I read an old article where they found that histamine and other inflammatory stuff is released in the gut when celiacs eat gluten.  So mast cells might be involved in developing celiac disease. 

In Topic: Candida

18 July 2013 - 07:26 AM

Candida releases a compound that causes you to produce pro inflammatory cytokines

Candida makes prostaglandins that change the host's immune system: see http://www.ncbi.nlm....icles/PMC98248/
I've also read that fungi can cause reactions via the innate immune system. It seems our bodies don't want to allow a decay process to start, so we have built-in immunity that wards off fungi - but that built-in immunity can be very irritating and pro-inflammatory.

In Topic: Cromolyn Makes My Food Reactions Less Intense

18 July 2013 - 06:50 AM

I had a food accident yesterday - out of stress I guess, I bought some pomegranate/blueberry juice that I thought was pure pomegranate juice. 

I'd taken 400 mg cromolyn 2.5 hours earlier.  I'm not sure how much that dose had worn off.

I took 400 mg more cromolyn right after the blueberry-juice accident.  I don't know whether chasing an allergenic food with cromolyn helps or not.

But anyway, my reaction was relatively mild.  I'm still coping.  Without the cromolyn, food accidents make me quite irritable and emotionally reactive, but I don't feel particularly irritable, having taken cromolyn. 

Celiac.com Sponsors: